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  1. C

    To those on kalydeco---Lauren (your thoughts, please)

    As with any new medication, it must be integrated into our lives, and setting an alarm to take it at 12:00 hour spacing on the dot, 30 minutes after eating something is only going to make it more difficult to develop adherence to this medication. Yes it is only a pill, but I know plenty of...
  2. C

    To those on kalydeco---Lauren (your thoughts, please)

    As with any new medication, it must be integrated into our lives, and setting an alarm to take it at 12:00 hour spacing on the dot, 30 minutes after eating something is only going to make it more difficult to develop adherence to this medication. Yes it is only a pill, but I know plenty of...
  3. C

    To those on kalydeco---Lauren (your thoughts, please)

    Thanks Mandy, It is incredible. Before starting Kalydeco, I was (and still am) a very productive cougher. By comparison, any chest tightness/inflammation was secondary. On the drug, I am still productive throughout the day, but it feels like I just took my albuterol puffer. C
  4. C

    To those on kalydeco---Lauren (your thoughts, please)

    Thanks Mandy, It is incredible. Before starting Kalydeco, I was (and still am) a very productive cougher. By comparison, any chest tightness/inflammation was secondary. On the drug, I am still productive throughout the day, but it feels like I just took my albuterol puffer. C
  5. C

    To those on kalydeco---Lauren (your thoughts, please)

    Hi All, I have been on Kalydeco for two weeks through the last VX-770 research effort tracking long term use for a year at UVA. I am continuing my full routine of meds for the time being. The first change I notices were my nasal passages - within about 4 hours. They feel like I just did a...
  6. C

    To those on kalydeco---Lauren (your thoughts, please)

    Hi All, I have been on Kalydeco for two weeks through the last VX-770 research effort tracking long term use for a year at UVA. I am continuing my full routine of meds for the time being. The first change I notices were my nasal passages - within about 4 hours. They feel like I just did a...
  7. C

    4 Minute Mile....anyone?

    Not to beat on it, but I just noticed that you are a woman. A sub 4 minute mile for a woman is truly an elite, olympic caliber time.
  8. C

    4 Minute Mile....anyone?

    Not to beat on it, but I just noticed that you are a woman. A sub 4 minute mile for a woman is truly an elite, olympic caliber time.
  9. C

    4 Minute Mile....anyone?

    I ran competitively in high school and college, and my personal record was a 4:34 mile. It was one of the hardest things I ever did, and took years of training. I would set goals that aimed to chip 10 seconds off per year. You need to set reasonable goals that are difficult, but that you have a...
  10. C

    4 Minute Mile....anyone?

    I ran competitively in high school and college, and my personal record was a 4:34 mile. It was one of the hardest things I ever did, and took years of training. I would set goals that aimed to chip 10 seconds off per year. You need to set reasonable goals that are difficult, but that you have a...
  11. C

    New Therapy for a cure

    The possibility of a new antibiotic tool doesn't equal a cure... language is important, and the authors of that article should have been more careful. Sorry, just find it annoying as it shows a lack of the authors understanding of the disease, and laziness on their part.
  12. C

    New Therapy for a cure

    The possibility of a new antibiotic tool doesn't equal a cure... language is important, and the authors of that article should have been more careful. Sorry, just find it annoying as it shows a lack of the authors understanding of the disease, and laziness on their part.
  13. C

    New Therapy for a cure

    The possibility of a new antibiotic tool doesn't equal a cure... language is important, and the authors of that article should have been more careful. Sorry, just find it annoying as it shows a lack of the authors understanding of the disease, and laziness on their part.
  14. C

    Cystic Fibrosis is a Business!!!!!!!!

    Your lack of information and knowledge is matched only by the level of your denial. Get help, and don't deprive your daughter of the preventative treatments and maintenance medications that will greatly improve her length and quality of life, and possibly save it.
  15. C

    Cystic Fibrosis is a Business!!!!!!!!

    Your lack of information and knowledge is matched only by the level of your denial. Get help, and don't deprive your daughter of the preventative treatments and maintenance medications that will greatly improve her length and quality of life, and possibly save it.
  16. C

    Cystic Fibrosis is a Business!!!!!!!!

    Your lack of information and knowledge is matched only by the level of your denial. Get help, and don't deprive your daughter of the preventative treatments and maintenance medications that will greatly improve her length and quality of life, and possibly save it.
  17. C

    Broken collar bone

    I broke my shoulder once bicycling, (Glenoid Fracture), which while not the same as a collar bone injury, presented a lot of the same problems you will face. First, if you have surgery or not, its probably not going to improve your recovery time all that significantly, or make things more or...
  18. C

    Broken collar bone

    I broke my shoulder once bicycling, (Glenoid Fracture), which while not the same as a collar bone injury, presented a lot of the same problems you will face. First, if you have surgery or not, its probably not going to improve your recovery time all that significantly, or make things more or...
  19. C

    Broken collar bone

    I broke my shoulder once bicycling, (Glenoid Fracture), which while not the same as a collar bone injury, presented a lot of the same problems you will face. <br /> <br />First, if you have surgery or not, its probably not going to improve your recovery time all that significantly, or make...
  20. C

    CF causing severe depression.

    I have a few thoughts... While I haven't had serious issues with depression, I have had some anxiety problems in the past, and have tried to develop ways to handle many of the feelings being discussed, including issues surrounding mortality/death, feeling different, etc. First of all, there is...
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