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I have not posted in a while because I was trying to deal with my CF in my head as well as physically.... that being said I am now in a 'happy place' and am ready to start fundraising again. I trying to shed some light on what people with CF go through on a daily basis, things that most people...

This is a very hard matter to deal with. Just recently I dealt with this and I am almost 21, for me I am one of those people that can't just take the doctors word for it and has to actually experience it. I thankfully realized that the doctors are right and what they tell you really will help...

On a slow week I work 40 hours-- most times like now I am workin about 55-60 hours. So basically I leave the house by 5 to workout before I go to work and yesterday I didn't get home until 8. I completely clear my schedule during the week. I don't go out, just work, workout and sleep. On the...

Thats so good- I love doing things to help talk about and raise awareness for our 'orphan disease' <img src="i/expressions/face-icon-small-sad.gif" border="0">

I settled when I was younger but now I just won't do that anymore... I don't care what others think. If it was to much for a person (i.e. boyfriend/ friend/ spouse) to handle then they wouldn't be there at all. I have just recently learned this and no longer ask my boyfriend if he wants to leave...

With my insurance I have to pay upfront for all of my meds, including TOBI and pulmozyme. Then about two or three weeks later they send me a check. The part that is hard is the beginning of the year when our cap is like 1,000 a person that you have to pay upfront. We usually have that done by...

Feel free to add me---- http://www.myspace.com/tiregrl19 I love myspace <img src="i/expressions/face-icon-small-smile.gif" border="0">

That was me above-- sorry forgot to sign in <img src="i/expressions/face-icon-small-smile.gif" border="0">

I work 50 to 60 hours a week and while I am in school I work only 35-40 hours. I am a very active person, if I don't work I don't function. When I do take a break I make calls from my home or while I am sick I do the same. Its amazing how much you can still do and take a break. If you feel that...

I have, until recently, been struggling with this. I would push my ex boyfriends away once I thought I liked them a little to much to avoid the stress of thinking about this. Then I found the guy I am currently involved with and I knew there was no pushing him away. I have had this conversation...

Okay I am very passionate about this subject, so here goes. I just received my wish the end of February, I am healthy but have CF. My wish supervisor encouraged me for years before I actually signed up for one. The wish I chose originally when I was 17 had a huge waiting list so I decided to...

So I know the aggrivation you are talking about. People ask me all the time oooooh, are you sick. I just say yes just a bit of a cold. I have found that is so much easier. Or the you must smoke a couple packs a day to get a cough like that and that voice. I just give them the 'you are a retard'...

I am so sorry to hear this... yucky!! your family is in my thoughts and prayers.

Why it's "good hmmmmm.... I always got out of the mile run at school, oh and swimming!!! I always have wonderful skin when I am on home I.V.'s from all the saline. My dog loves to give me kisses whenever I am sweaty because she loves the salt. When you really aren't wanting to go out with your...

Kylie, I am actually a pretty healthy CFer. My FEV1 was mid to high 80's until I was 17 and now it is 60 as of last doctor visit. I went into the hospital in December for a 2 week tune up and it was 40. I am trying my hardest to try and get it up high enough to start dancing again, then I know I...

So we all know that CF sucks on its best day, BUT... Here is what I have gotten from it that is good.<br> 1. I have an awesome job... I work for my dad but two years ago when I had just turned 18 he gave me a business to run and form myself, I was only mature enough to do that because of CF.<br>...

Because I have CF I am not sure how hard it would be to tell your child that hes doomed- I am going to speak rather plain here but that's what this forum is for. To tell a child that they probably won't live to see their children grow up and/or have a child. There is no magic pill to make them...

Aren't we just a lucky few to have gotten this yucky thing with the CF. I remember when we found out what it was and the doctor told us it was rare my dad says, Oh sure, first I give her the CF and now I give her something that only a handful of people have, don't I feel good! He was joking...

For all of you who are wondering what the actual name of it is- it is Severe episodic arthritis. Here is the name and number of my doctor, he seemed to know quit a bit about it and knows a doctor in New York as well. I guess there is a little 'phone tree' that they have. His name is Dr. Joseph...

I am so glad that this helped you understand what she is going through. I remember adults when I was younger saying I was being to dramatic. This is why I posted this- to help those who have what I have had and can't seem to find a cure. I hope all feel better and keep getting your rest!!!