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  1. M

    Does anyone else freak out when things get tough

    WOW redheadedmommy, 4 treatments! Good for u, and I hope that works! And yes it totally sucks having absolute no control over your health. In my teens I was totally able to be like, "Screw you CF!" and not look after myself as well, but still be able to bounce back! I dont know if its with age...
  2. M

    Does anyone else freak out when things get tough

    WOW redheadedmommy, 4 treatments! Good for u, and I hope that works! And yes it totally sucks having absolute no control over your health. In my teens I was totally able to be like, "Screw you CF!" and not look after myself as well, but still be able to bounce back! I dont know if its with age...
  3. M

    do you ever get better on your own?

    Hi Sasha! I know everyones saying this already but: Listen to your DOCTORS! I am a prime example: I was 18, went into university and lived in dorms and my normal pfts were in the 80s to 90s. The first week there I got sooo sick. My parents told me that we should hit the road and see the doctor...
  4. M

    do you ever get better on your own?

    Hi Sasha! I know everyones saying this already but: Listen to your DOCTORS! I am a prime example: I was 18, went into university and lived in dorms and my normal pfts were in the 80s to 90s. The first week there I got sooo sick. My parents told me that we should hit the road and see the doctor...
  5. M

    Menstrual Cycle changes?

    I had the same problem too! I went to a doctor that specializes in hormones (forget what they are called lol!) and she put me on a hormone called progesterone. It completely fixed it! Normally my periods are NOT regular at all (Ill go without one for months) but because I was bleeding every 2...
  6. M

    Menstrual Cycle changes?

    I had the same problem too! I went to a doctor that specializes in hormones (forget what they are called lol!) and she put me on a hormone called progesterone. It completely fixed it! Normally my periods are NOT regular at all (Ill go without one for months) but because I was bleeding every 2...
  7. M

    Joint Pain

    That completely sucks! I get pain too but I know what the cause is. Unfortunatly I am 21 with osteoporosis because of my past diet chooses and because I was on huge doses of prednisone (for aspergillous) for a long time and recently just got off it by decreasing the dosage over time. Are you...
  8. M

    Joint Pain

    That completely sucks! I get pain too but I know what the cause is. Unfortunatly I am 21 with osteoporosis because of my past diet chooses and because I was on huge doses of prednisone (for aspergillous) for a long time and recently just got off it by decreasing the dosage over time. Are you...
  9. M

    Painful Stabbing in the Muscles around the Lungs

    Hi Everyone, Soabout 4 days ago, I had some painful muscle stabbing in the lung area which is normal for me if Ive been coughing alot during physio sometimes. However, its gotten worse up to the point each time i cough it feels like a enormous knife is slicing up my rib cage in the right side...
  10. M

    Painful Stabbing in the Muscles around the Lungs

    Hi Everyone, Soabout 4 days ago, I had some painful muscle stabbing in the lung area which is normal for me if Ive been coughing alot during physio sometimes. However, its gotten worse up to the point each time i cough it feels like a enormous knife is slicing up my rib cage in the right side...
  11. M

    Does anyone else freak out when things get tough

    Yes, yes, yes! Just recently I moved 6 hrs from home to live with a friend to go to university and Ive been doing EVERYTHING right and more and biking to skool all the time (50 minutes) and feeling so great!....until I had my pfts tested at the clinic here and they dropped 13%. I was soooo...
  12. M

    Does anyone else freak out when things get tough

    Yes, yes, yes! Just recently I moved 6 hrs from home to live with a friend to go to university and Ive been doing EVERYTHING right and more and biking to skool all the time (50 minutes) and feeling so great!....until I had my pfts tested at the clinic here and they dropped 13%. I was soooo...
  13. M

    Question about Prednisone

    Hey Allisa! I was on a heavy dose of prednisone about six years ago and still am on it but a much lower dose for the inflammation in my lungs. The side effects the doctors were concerned about was initially diabetes (testing my blood sugars for a week to see if pancreas was affected) and I think...
  14. M

    Question about Prednisone

    Hey Allisa! I was on a heavy dose of prednisone about six years ago and still am on it but a much lower dose for the inflammation in my lungs. The side effects the doctors were concerned about was initially diabetes (testing my blood sugars for a week to see if pancreas was affected) and I think...
  15. M

    Question about Prednisone

    Hey Allisa! <br />I was on a heavy dose of prednisone about six years ago and still am on it but a much lower dose for the inflammation in my lungs. The side effects the doctors were concerned about was initially diabetes (testing my blood sugars for a week to see if pancreas was affected) and I...
  16. M

    Bicycling

    before i hit my teens, i was always moving around and out doing activities and all that and my PFTS were over 120%! but at 13 yrs i got admitted in the hospital because my stomach wasnt emptying meaning i wasnt eating hardly anything because of it. but after i got out of the hospital, i never...
  17. M

    Bicycling

    before i hit my teens, i was always moving around and out doing activities and all that and my PFTS were over 120%! but at 13 yrs i got admitted in the hospital because my stomach wasnt emptying meaning i wasnt eating hardly anything because of it. but after i got out of the hospital, i never...
  18. M

    Bicycling

    before i hit my teens, i was always moving around and out doing activities and all that and my PFTS were over 120%! but at 13 yrs i got admitted in the hospital because my stomach wasnt emptying meaning i wasnt eating hardly anything because of it. but after i got out of the hospital, i never...
  19. M

    Lynazolid WARNING!

    thats so good that you caught it early! i wish i had known about that side affect but unfortunately they dont tell you
  20. M

    Lynazolid WARNING!

    thats so good that you caught it early! i wish i had known about that side affect but unfortunately they dont tell you
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