Search results

I have a pretty good memory because Abby slept most of the appointment so I didn't have to worry about entertainment. I think when she gets older it will be increasingly difficult to remember everything! Thank you, folione, for your suggestion about not worrying about her weight. It is normal...

Neither of them. University of GA's fight song is the greatest ever. :-) Gooooooo Dawgs! Em

Wow...I had hoped to type out this post Tuesday night, but we were so incredibly tired from our journey to Atlanta (mostly because we had to leave Warner Robins at 6 AM for her 9:30 appt) that I couldn't force my fingers to type. Here's the gist of the day: 1. We met with the Respriatory...

I know it probably seems silly to ask this question, but I just didn't know if my pedi was being paranoid or what. I think his experience with CF has been one with children who have the "classic" symptoms, so dealing with a healthy baby with a CF diagnosis puzzles him a bit. I just don't want...

Hey you all! We are getting ready for our first CF clinic appointment on Tuesday and at Abby's 1 month check-up on Friday, her pediatrician suggested that they have her retested on Tuesday. His thought is that the amnio/genetic testing could have been wrong and there is no point treating her...

Discuss the issue with the band director. They can come up with many possible solutions for you. In some cases new mouth pieces can be purchased and the director can show you and your children how to clean the instruments. I have no experience as a parent and band, but I do have band director...

I like RIsa's idea of calling the media and having a discussion with them about it. If you have a good relationship with the principal/dean/headmaster of the school, I would talk to him/her about it first before going to the media and having Courtney put in the middle of a showdown. I DO think...

A 504 in the US safeguards a child's needs. You can include things like, after handling "community" supplies in the classroom (markers, scissors, etc.) your daughter must be allowed to use her anti-bac. This will prevent a teacher from seeing her use it and confiscating (sp) it or "calling her...

That is totally twisted. Thanks for sharing.

Heather, Will do. Should I take a frying pan with me? You can take one with you! Em Barbara, Heather's post describes how the whole CF gene thing works better than mine does. Don't freak out when you read my post. I'm glad your child only has to have one Delta gene. I hope there isn't a 2nd...

Delta F508 is classified as one of the most severe CF genes out there, but there are so many good treatments and since you are working on trying to eliminate a CF diagnosis, your timing for your child couldn't be better. I agree with one of the previous posts. I researched this WAY TOO MUCH...

Heather, Can I get you to talk to my inlaws? We are of the same mentality as you about preventative care with our Abby (diagnosed prenatally) and they just don't get why we are jumping through all of these hoops now that she is here and everything appears "fine." We are attention seeking and...

I've often wondered that as well. Good question!!!

Manners...I wish some people had them. :-) I get exactly what you are saying Julie!! It isn't just on this forum, it is everywhere. My students last year were terrible at not thanking me for doing nice things for them (on an individual basis, not as a class...I never expected the class to say...

We've just heard from a handful of folks who have or have contact with Abby's gene combination. The clinic folks also made mention that the combination usually is PS. Other than that and some of the research we have read online (which is rather dry reading) about the gene and the combination, we...

Thank you all so much for your input. Abby and I still are not in a breastfeeding routine, but I know we'll get there. I'm sure that we will discover that soon enough. Part of our nursing problem, I think, is that I get engorged so easily and it makes it hard for Abby to latch and for me to be...

I was under the impression from my prenatal visit at the CF clinic that "once pancreatic sufficient, always pancreatic sufficient," however, I don't know for sure. I'm sure someone on here does and I'll ask at Abby's first clinic appointment on Sept. 12. Thanks for sharing and asking!! Em

...and I got a call back from her pediatrician... her PKU came back all within normal limits. WOOHOO! Yea! Mama is doing the happy dance!

Hey y'all! Finally have news... Abby has a little fat in her stool, but they don't see the amount as a problem. Was explained to me that everybody has some fat in their stool. The Pancreatic Elastace (sp.) test that looks at the enzymes came back over 500 which means that she won't need...

Abby was born at 38 weeks. Thanks for the info, Julie. I'll call the pediatrician tomorrow. :-) Em