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  1. J

    New CF diagnosis

    My dd's CF doctor has never mentioned H. Infl. to us before but I recently saw a list of everything she has cultured over the last several years and H. Infl. shows up about 10 times. I wonder if it's something they don't worry about unless the child is very young?
  2. J

    New CF diagnosis

    My dd's CF doctor has never mentioned H. Infl. to us before but I recently saw a list of everything she has cultured over the last several years and H. Infl. shows up about 10 times. I wonder if it's something they don't worry about unless the child is very young?
  3. J

    Creon capsules with microspheres not working

    Our dd did the same thing when she was just under 2 years old. We all found out pretty quickly that you can make a child put something in her mouth, but you can't make them swallow it. We ended up using a pill popper that we had gotten from our veterinarian for our cat. We had an extra that had...
  4. J

    Creon capsules with microspheres not working

    Our dd did the same thing when she was just under 2 years old. We all found out pretty quickly that you can make a child put something in her mouth, but you can't make them swallow it. We ended up using a pill popper that we had gotten from our veterinarian for our cat. We had an extra that had...
  5. J

    Can somebody tell me...

    In order to have CF, you must have two defective genes. Two copies of DF508 just means that both defective genes are the same. There are over 1200 different defects that can cause CF. DF508 is the most common.
  6. J

    Can somebody tell me...

    In order to have CF, you must have two defective genes. Two copies of DF508 just means that both defective genes are the same. There are over 1200 different defects that can cause CF. DF508 is the most common.
  7. J

    School rampant with strep throat

    Mydd with CF has been diagnosed with strep three times through throat culture and never had any symptoms at all. The first time, wefound out thatmy other daughter had a sore on her finger that was actually a strep infection. She also had no other symptoms. Even if the schools are careful about...
  8. J

    School rampant with strep throat

    Mydd with CF has been diagnosed with strep three times through throat culture and never had any symptoms at all. The first time, wefound out thatmy other daughter had a sore on her finger that was actually a strep infection. She also had no other symptoms. Even if the schools are careful about...
  9. J

    Duocal

    We used Duocal with our dd since from before she turned two until she was about 6yo. She was also allergic to milk and Soy. It is expensive but it was a good supplement. It mixes easily and does not have much taste. We added it to her Rice milk (and later Soy milk when her Soy allergy went away)...
  10. J

    Duocal

    We used Duocal with our dd since from before she turned two until she was about 6yo. She was also allergic to milk and Soy. It is expensive but it was a good supplement. It mixes easily and does not have much taste. We added it to her Rice milk (and later Soy milk when her Soy allergy went away)...
  11. J

    creon help

    <br>We were told that Creon 6 digests 6 grams of fat. A Creon 12 digests 12 grams of fat. So for someone who produces no enzymes of their own, they will need one Creon 6 for every 6 grams of fat consumed.There are basically 3 different kinds of Enzymes that are produced. One kind digests fat...
  12. J

    creon help

    <br>We were told that Creon 6 digests 6 grams of fat. A Creon 12 digests 12 grams of fat. So for someone who produces no enzymes of their own, they will need one Creon 6 for every 6 grams of fat consumed.There are basically 3 different kinds of Enzymes that are produced. One kind digests fat...
  13. J

    creon help

    <br>We were told that Creon 6 digests 6 grams of fat. A Creon 12 digests 12 grams of fat. So for someone who produces no enzymes of their own, they will need one Creon 6 for every 6 grams of fat consumed.There are basically 3 different kinds of Enzymes that are produced. One kind digests fat...
  14. J

    When to go to the hospital

    <br>Our children's pediatrician says not to give fever reducer unless she really needs it for comfort.  A fever is one way the body fights infections.  You are reducing your body's natural ability to fight it.
  15. J

    When to go to the hospital

    <br>Our children's pediatrician says not to give fever reducer unless she really needs it for comfort. A fever is one way the body fights infections. You are reducing your body's natural ability to fight it.
  16. J

    When to go to the hospital

    <br>Our children's pediatrician says not to give fever reducer unless she really needs it for comfort. A fever is one way the body fights infections. You are reducing your body's natural ability to fight it.
  17. J

    Should I keep giving her Cyproheptad?

    My DD had terrible temper tantrums the first few days after starting Cyproheptadine.  The tantrums and bad moods slowly go away over a couple of weeks.  Definitely, a lower dose might be better.  Prior to last summer she was on three pills a day but the appetite enhancement had lost most of it's...
  18. J

    Should I keep giving her Cyproheptad?

    My DD had terrible temper tantrums the first few days after starting Cyproheptadine. The tantrums and bad moodsslowly go awayover a couple of weeks. Definitely, a lower dose might be better. Prior to last summer she was on three pills a day but the appetite enhancement had lost most of it's...
  19. J

    Should I keep giving her Cyproheptad?

    My DD had terrible temper tantrums the first few days after starting Cyproheptadine. The tantrums and bad moodsslowly go awayover a couple of weeks. Definitely, a lower dose might be better. Prior to last summer she was on three pills a day but the appetite enhancement had lost most of it's...
  20. J

    R117h 7T, intermediate sweat test result

    <br>I don't have any experience with R117h 7T but I know their are many people with confirmed CF who do not have high sweat test results.  You should definitely persue the full Ambry panel if the second sweat test still comes back intermediate or even if it comes back low.  Proactive...
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