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<br>I don't have any experience with R117h 7T but I know their are many people with confirmed CF who do not have high sweat test results. You should definitely persue the full Ambry panel if the secondsweat test still comes back intermediate or even if it comes back low. Proactive treatmentof CF...

<p><br>I don't have any experience with R117h 7T but I know their are many people with confirmed CF who do not have high sweat test results. You should definitely persue the full Ambry panel if the secondsweat test still comes back intermediate or even if it comes back low. Proactive treatmentof...

<br><br>All of my kids have gotten flumist for the last three years-even my dd with CF. There is so little virus and it is so weakened that there is very low risk. I wouldn't worry about your son's friend-though of course you should do what you're comfortable with.

<br><br>All of my kids have gotten flumist for the last three years-even my dd with CF. There is so little virus and it is soweakened that there is very low risk. I wouldn't worry about your son's friend-though of course you should do what you're comfortable with.

<br><br>All of my kids have gotten flumist for the last three years-even my dd with CF. There is so little virus and it is soweakened that there is very low risk. I wouldn't worry about your son's friend-though of course you should do what you're comfortable with.

We came home from the hospital yesterday and we're doing home IVs.  I certainly have a new appreciation for everyone who has done this before.  The rest of the time in the hospital was mostly uneventful and much better than the first day, though we are all very glad to be home.  I stayed with...

We came home from the hospital yesterday and we're doing home IVs. I certainly have a new appreciation for everyone who has done this before. The rest of the time in the hospital was mostly uneventful and much better than the first day, though we are all very glad to be home. I stayed with her...

<p>We came home from the hospital yesterday and we're doing home IVs. I certainly have a new appreciation for everyone who has done this before. The rest of the time in the hospital was mostly uneventful and much better than the first day, though we are all very glad to be home. I stayed with...

My dd used to do Ultrase but now we are on Creon.  The smelly gas seems to have gone away with the switch to Creon.  I haven't noticed any change with weight gain.

My dd used to do Ultrase but now we are on Creon. The smelly gas seems to have gone away with the switch to Creon. I haven't noticed any change with weight gain.

My dd used to do Ultrase but now we are on Creon. The smelly gas seems to have gone away with the switch to Creon. I haven't noticed any change with weight gain.

Interesting.  Our almost 8yo dd used to take Ultrase and had lots of very smelly gas.  We switched to Creon several years ago.  She has not had much stinky gas for several years.  I had never correlated it with the switch to Creon but now I see a couple of others seem to have the same results. ...

Interesting. Our almost 8yo dd used to take Ultrase and had lots of very smelly gas. We switched to Creon several years ago. She has not had much stinky gas for several years. I had never correlated it with the switch to Creon but now I see a couple of others seem to have the same results. I...

Interesting. Our almost 8yo dd used to take Ultrase and had lots of very smelly gas. We switched to Creon several years ago. She has not had much stinky gas for several years. I had never correlated it with the switch to Creon but now I see a couple of others seem to have the same results. I...

Thanks so much.  Yes.  We're at a CF center.  I don't blame the nurses. They were great, and very patient, empathetic and understanding.  My dd is just extremely strong willed and hates, hates, hates needles.  I hope she grows out of it.  It's almost as hard on me as it is on her.<br>

Thanks so much. Yes. We're at a CF center. I don't blame the nurses. They were great, and very patient, empatheticand understanding.My dd is just extremely strong willed and hates, hates, hates needles.I hope she grows out of it. It's almost as hard on me as it is on her.<br>

Thanks so much. Yes. We're at a CF center. I don't blame the nurses. They were great, and very patient, empatheticand understanding.My dd is just extremely strong willed and hates, hates, hates needles.I hope she grows out of it. It's almost as hard on me as it is on her.<br>

Just thought I'd update.  We were admitted this morning.  It did not go well.  It took over two hours to get the PICC line in.  We would think she was sleeping and try to do something and she'd wake up and struggle...hard.  Lots of blood.  Had to move to the other arm.  When she finally did...

Just thought I'd update. We were admitted this morning. It did not go well. It took over two hours to get the PICC line in. We would think she was sleeping and try to do something and she'd wake up and struggle...hard. Lots of blood. Had to move to the other arm. When she finally did sleep and...

<p>Just thought I'd update. We were admitted this morning. It did not go well. It took over two hours to get the PICC line in. We would think she was sleeping and try to do something and she'd wake up and struggle...hard. Lots of blood. Had to move to the other arm. When she finally did sleep...