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  1. J

    Symptomatic Carriers

    I've been reading posts that mention carriers having sinus and lung symptoms also and was wondering if anyone had researched this or talked to their doctor. This really worried me, because I thought we had really addressed the issue when we had my husband tested through Ambry Amplified and he...
  2. J

    Has Allie ever provided value to you in this community?

    From comments Allie made, I think that the main problem is that she doesn't hear from all the people who appreciate and enjoy her as a friend and as a resource. Negative comments are written clearly, but we just appreciate the positive rather than acknowledging it. From the people I've heard...
  3. J

    CF Conference CDs

    I was hoping someone could clarify for me what parts of the conference are included in the conference CD? Specifically, I'm referring to the Complete Conference CDrom Set. The ordering website (<a target=_blank class=ftalternatingbarlinklarge...
  4. J

    double delta f508

    There have been several references to what double f508 means recently, so I searched for threads dealing with it and have included these links below. Hopefully they help some, I scanned for dealing wtih double delta f508 rather than content. <a target=_blank class=ftalternatingbarlinklarge...
  5. J

    Compressor for nebulizer

    I'm hoping someone has a brilliant idea to help me out. I'm looking for a quieter compressor to use with my nebbed drugs at work. Right now I have the ProNeb Ultra, and I find myself not doing treatments that I should because I don't want to create the noise. Now, yes I do realize that it's...
  6. J

    tobramycin for sinuses

    My pulmonologist recommended that I talk to my ENT about what he thinks of treating my sinuses wtih serial tobramycin. However, when I was reading up on this on the internet, I came across two ways this is done: using tobi in a nebulizer with a sinus attachment or using iv form tobramycin for...
  7. J

    mucopurulent rhinorrhea

    Hoping someone more medical than me can confirm if I'm understanding this term correctly.
  8. J

    Enzymes ...

    I'm wondering what people's experiences have been with not taking their enzymes.  What symptoms occur?  What foods are particularly bad?  Before I was diagnosed, the doctors had taken me off of milk products, so I'm guessing that's a big trigger, but I'm wondering about other peoples...
  9. J

    Odd memories of parents

    Anyone else discovering that their parents were a little odd (CF-related, though maybe just general!).  A large number of my friends have kids now, so I'm spending a lot of time with them.  In watching, I've had some memories which made me laugh (now -- the main one that I'm going to share...
  10. J

    Eyelashes ?

    Does anyone ever wake up in the morning with little crystals of salt between their eyelashes?  Not like normal "eye boogers" but just salt that's between the lashes?<br> <br> I'm not sure if this is a result of sinus irrigations or a CF thing, so I thought I'd ask!
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