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  1. M

    Tooth Extracted

    Has anyone here had a tooth extracted??? My tooth that I had filled a week and 1/2 ago is dying and likely has an infection. I am on an antibitoic. I can't afford a root canal.... so I am leaning more towards getting my tooth pulled. Are there any CF related risks I should be aware of. My...
  2. M

    Tooth or Sinus infection

    I had a tooth filled last week. It was a deep filling. Shortly after the dentist visit my sinuses began to drain. I had some sinus issues before the filling... my husband said my breath and nose smelled funny. On Sunday my sinuses started to drain full time. I flushed out my nose and had a very...
  3. M

    Tooth is falling apart

    I chipped a tooth a while ago (on a fork) .... part of the side came off. Tonight while eating out with friends my tooth crumbled (a large part of it fell off). I obviously swallowed the tooth part without noticing it. When we got home my husband looked at the tooth. A large portion of my tooth...
  4. M

    Birthday Coming up.... Family likes cake and ice cream

    I developed diabetes a couple of years ago. My family members are big fans of birthday cake and lots of ice cream. I can't touch the stuff. I broke the rules right after my diagnosis and had a small piece of cake and paid dearly with totally messed up sugars. The next birthday there was no...
  5. M

    Sudden change in blood sugars

    The past few week my sugars have run higher than normal especially my morning sugars. I have been eating pretty much the same as normal. All of a sudden I got up other other morning and my sugars are back to normal. The past few weeks they have been running 112-125) and they are back down to...
  6. M

    Rehab frustration

    I have had lots of pain since doing pulmonary rehab. My knees are swollen and ankles are crackling. My shoulds also hurt occassionally. Today I am in horrible nerve pain in my hip (nerve pain all down my leg and into my foot). I talked to the therapist about the pain and swelling. I even talked...
  7. M

    Colorado Wildfires

    We have had a few wildfires in the past week. We have one right now north of where I live and it is pretty big and out of control. The air quality is horrible. We are more than an hour away but the air here is gray and icky. Plz keep the firefighters in your thoughts. I am staying indoors...
  8. M

    Water for humidifier

    I finally got a humidifer for my oxygen. What kind of water to use??....obviously not tap. Distilled in the jug, boiled like I use to flush my nose and wash nebs or some other kind of water. I don't want any new lung bugs growing because of using the wrong kind of water.
  9. M

    Big Nose Bleed-- on nighttime oxygen

    I woke up this morning and felt all those lovely dry "boogies" in my nose from the night time oxygen. Yes, I stuck my finger up my nose like I normally to loosen them up (Yes, I am a nose picker). All of a sudden I had a massive nose bleed. It started to pour out my nose into my hand. I stuffed...
  10. M

    Can't keep up- exhausted

    I have been doing cardiac rehab. Tomorriw is my second exercise session at hospital. All if a sudden this week my hip has been bothering me... Old joint problem The past two days my left knee is giving me fits. I officially tweaked it tonight while cooling down from walking. On top of the...
  11. M

    Stress Test

    I had a stress test yesterday for my cardio/pulmonary rehab. I thought my chest and my knees were going to explode. I guess I did okay... figure I will hear the final results (including blood work) later on this week from CF doc. I thought they were going to drain my blood from my body... they...
  12. M

    cannula keeps coming out at night

    I changed cannula on Tuesday. Ever since then the nose pieces seem super shallow in my nose. The nose part keeps popping out at night. Do I have a defective cannula??? I don't usually have this problem. One night I found them down around my mouth and anothe morning they were up by my forehead...
  13. M

    Can't quit coughing

    A few weeks ago I developed super tightness in my chest.... felt like a rhino on my chest. I cough so hard that I throw up. A few days ago they started me on prednisone for 5 days. No taper just jumped off at 40 mg. The prednisone didn't help.... at all. Yesterday afternoon I got blind sided...
  14. M

    Pleurisy or lung inflammation

    I have been having horrible chest/sternum pain. Just got a call from the nurse that I may have simple lung inflammation or pleurisy. I am scheduled to go in next week and do another lung function test and do a chest x-ray. They started me on a predisone burst today to see if the tightness and...
  15. M

    Sternum Pressure and Soreness

    I have been having pressure and tightness in my sternum the past few weeks (where the ribs connect on the left side). I get lots of muscle spasms on the left side of my chest. My chest gets tight.... if I cough enough the tightness loosens in the sternum area. I even have a sore (hot spot) on...
  16. M

    Oxygen Concentrator Question

    I have been on night time oxygen for a couple of weeks. I am renting a concentrator..... When I go to bed I set the oxygen on 2 liters. Some mornings it is slight lower than 2 liters (more like 1.75 liters). Why would the liter level drop during the night?? No one in my house is touching the...
  17. M

    Starting Oxygen at Night

    They day has finally come.... I am going to be starting oxgyen at night. I did a sleep study last weekend and I guess my numbers were horrible. I haven't heard what they are and I am too freaked to ask. I do know that just laying down on my pillows my numbers dipped down to 88% at the beginning...
  18. M

    High Morning Blood Sugars

    The last 3 monrings when testing my blood sugars they are in the 120's range. This morning they were 126. Yikes!! During the day my sugars doing down two hours after each to 80-120. My endo says I have boderline diabetes. The only time before this when my sugars run this high in the morning is...
  19. M

    Lung bleed and more

    This weekend my lungs bleed off and on. I don't care how often it happens--- it freaks me out!! I started on an antibiotic last night and it is kicking my butt. I am on Augmentin. It is about the only oral antibiotic that is left for me. I am so fatigued after my second dose. I can't remember is...
  20. M

    Need urgent prayers

    I have an MRI scheduled for today. I found out this morning that they will insert a needle into my hip socket and put the dye right in the hip. FREAKING OUT!<br>Even with having CF I am freaked out about needles and pain. Big baby!! I have already had 2 panic attacks as soon as I found out...
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