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Alysa was just tested to see if she is allergic to aspergiliosis (sp?) and turns out she is.. just wondering if anyone else has a little one with the same thing? Her blood test came back with normal levels so if she has it in her lungs then it is not really affecting her yet. They have put her...

My girls are both on cotazyme 8 (little beads in a capsule). Just curious how I can go about trying to teach Alysa (3.5 years old) how to take her enzymes without applesauce. We are having trouble because as soon as the capsule gets wet (or she bites into it) the beads get all over her mouth and...

I know this should be posted in Families (which is it) but I thought I would gain some more insight from posting in the adult section as I am sure some of you may have some experience with this. Poor Kiana (my 13 month old) sounds like she drowning every time she coughs and lately she has been...

Poor Kiana (my 13 month old) sounds like she drowning every time she coughs and lately she has been getting sick as a result of it. Poor things pukes all over her crib and we dont notice until we get her in the morning <img src="i/expressions/face-icon-small-sad.gif" border="0"> Any ideas on...

I think I have asked this before but I am stumped again. DD1 wil not let me do her CPT... she squirms and gets out of my grasp, she puts her hands on top of mine and moves them off her body. I tried to tell that she needs to do it, I tried to get DH to do it (she does better with him but he isnt...

I understand that daycares have policies and protocols to follow such as: if a child is coughing then it may mean they have a cold and should be sent to see a doctor in case they are contagious.... well my girls cough a lot and sometimes to the point where they sound like they are choking. DH...

My daughter Kiana is turning one on the 12th and she just went for a chest xray today. Depending on what they find (they fear pneumonia - which Alysa was just getting over) they may admit her. This means she would be spending her first birthday in the hospital. I am freaking out and stressing...

WOOHOO This was happening right at my work place! So exciting... it was in the paper this morning and I had to share Breakthrough holds promise for cystic fibrosis By Communications Staff Wednesday, July 30, 2008 A University of Western Ontario professor studying cystic fibrosis (CF) has...

WOOHOO This was happening right at my work place! So exciting... it was in the paper this morning and I had to share Breakthrough holds promise for cystic fibrosis By Communications Staff Wednesday, July 30, 2008 A University of Western Ontario professor studying cystic fibrosis (CF) has...

This was sent to me and even though I am not overly religious it has touched me and given me hope, strength, and courage to continue the fight for my daughters. The Chosen One I had a dream the other night It came to me so clear I stood before the throne of God Afraid to come too near God...

I am not sure who wrote this but it was sent to me and even though I am not religious it has touched me and I thought I would share it with you... The Chosen One I had a dream the other night It came to me so clear I stood before the throne of God Afraid to come too near God said to me "I...

I am the mother to two beautiful CF children but sometimes I wish that they werent sick. I wish I didnt have to deal with enzymes, "pat-pats", medications and I wish I could go a day without stressing over a newly developed cold. I belong to another parenting forum and I read posts about...

They have no clue why Alysa is not responding to all the antibotics she has been on (even in hospital) I mean she is improving and looks "like a normal, healthy 3 year old" but they are still concerned so they have decided to test her for diabetes. They say it is a long short and are pretty...

After about a month of antibiotics and a bronchoscopy which showed her growing Staph (or something.. whatever pseudomonas grows from) Alysa was admitted to the hospital this morning when she couldnt bring her oxygen levels up past 90 and a chest xray showed pneumonia. Please keep her in your...

My mother in law was telling me about a commercial she saw about CF (it may just be airing in Canada) and I cant seem to find it online to see it. It's of a boy laying in a pool with only his face above the water and it says something like "CF patients can feel like they are drowning" and then...

My mother in law was telling me about a commercial she saw about CF (it may just be airing in Canada) and I cant seem to find it online to see it. It's of a boy laying in a pool with only his face above the water and it says something like "CF patients can feel like they are drowning" and then...

Long story short.. her right lung was nice and clear and whatever was in there they were able to suck up. The left lung... not so good. The mucus was VERY thick AND GREEN and it even clogged the suction tube so they had to leave it. The doctors are convinced it will grow something and fear it...

Alysa has been having serious problems with her mucus. Her clinic doesnt know what is going on and have decided to do a bronchoscope on her (putting a camera into her lungs and then filling it with liquid and drawing it up). They think she has 'something going on' in her lower lungs that isnt...

double post - oops

Putting "pen to paper" this is what I came up with this morning. It didnt take me long (10 mins with editing) but I thought I would share it... I held you close last night to me As you coughed, cried, and wheezed. I held back my own tears As I saw yours hit my knees I rubbed your hair, kissed...