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  1. R

    WWYD

    My daughter is 8 years old and involved in lots of activities as well (Cheerleading, Softball, ect.) There is no way that I would even chance it exposing her willingly and knowingly to another person with CF. There is just no good reason to do that. Just my opinion.
  2. R

    WWYD

    My daughter is 8 years old and involved in lots of activities as well (Cheerleading, Softball, ect.) There is no way that I would even chance it exposing her willingly and knowingly to another person with CF. There is just no good reason to do that. Just my opinion.
  3. R

    Reeling tonight

    I don't post on here often although I am constantly reading. I could not leave this forum without posting to you. Tom, I have no words to express the sadness I feel for you and your family. It is so unfair that you and your family have to make these decisions for Micah. My thoughts and prayers...
  4. R

    Reeling tonight

    I don't post on here often although I am constantly reading. I could not leave this forum without posting to you. Tom, I have no words to express the sadness I feel for you and your family. It is so unfair that you and your family have to make these decisions for Micah. My thoughts and prayers...
  5. R

    7 year old waking up with tummy aches

    <P>Hayley, my 7 year old CFer, has been waking up at night complaining of her stomach hurting.  She will often say her stomach hurts, but usually just to get out of eating the rest of her dinner or something else that she does not want to do.  Two nights of the last two weeks she has woken up in...
  6. R

    7 year old waking up with tummy aches

    <P>Hayley, my 7 year old CFer, has been waking up at night complaining of her stomach hurting. She will often say her stomach hurts, but usually just to get out of eating the rest of her dinner or something else that she does not want to do. Two nights of the last two weeks she has woken up in...
  7. R

    7 year old waking up with tummy aches

    <P><BR>Hayley, my 7 year old CFer, has been waking up at night complaining of her stomach hurting. She will often say her stomach hurts, but usually just to get out of eating the rest of her dinner or something else that she does not want to do. Two nights of the last two weeks she has woken up...
  8. R

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    Harriett, Thank you so much for your reply. They have just run the initial immunoglobins blood screen,which showed her igG levels to be low, I believe that hers was around 200 and it should be anywhere from 400-1500 for her age. It also checked the other levels, but those were okay. Our...
  9. R

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    Harriett, Thank you so much for your reply. They have just run the initial immunoglobins blood screen,which showed her igG levels to be low, I believe that hers was around 200 and it should be anywhere from 400-1500 for her age. It also checked the other levels, but those were okay. Our...
  10. R

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    Harriett, <br /> <br />Thank you so much for your reply. They have just run the initial immunoglobins blood screen,which showed her igG levels to be low, I believe that hers was around 200 and it should be anywhere from 400-1500 for her age. It also checked the other levels, but those were...
  11. R

    Immunoglobulin Deficiency? Anyone have this or been tested for this?

    Also posted in Family Section. My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. She just always seems to get sick, especially in fall and winter and usually requires inpatient hospitalizations...
  12. R

    Immunoglobulin Deficiency? Anyone have this or been tested for this?

    Also posted in Family Section. My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. She just always seems to get sick, especially in fall and winter and usually requires inpatient hospitalizations...
  13. R

    Immunoglobulin Deficiency? Anyone have this or been tested for this?

    Also posted in Family Section. <br /> <br />My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. <br /> <br />She just always seems to get sick, especially in fall and winter and usually requires...
  14. R

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. She just always seems to get sick, especially in fall and winter and usually requires inpatient hospitalizations 3-4 times per year with IV...
  15. R

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. She just always seems to get sick, especially in fall and winter and usually requires inpatient hospitalizations 3-4 times per year with IV...
  16. R

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. <br /> <br />She just always seems to get sick, especially in fall and winter and usually requires inpatient hospitalizations 3-4 times per year...
  17. R

    Only one IV med?

    My daughter is 6 with CF and on Zosyn right now for an excerbation. We usually do Tobramycin and Fortaz, but our doctor wanted to give her a break from that and try Zosyn. So far it seems to be working pretty well and much nicer only having to deal with one med.
  18. R

    Only one IV med?

    My daughter is 6 with CF and on Zosyn right now for an excerbation. We usually do Tobramycin and Fortaz, but our doctor wanted to give her a break from that and try Zosyn. So far it seems to be working pretty well and much nicer only having to deal with one med.
  19. R

    Only one IV med?

    My daughter is 6 with CF and on Zosyn right now for an excerbation. We usually do Tobramycin and Fortaz, but our doctor wanted to give her a break from that and try Zosyn. So far it seems to be working pretty well and much nicer only having to deal with one med.
  20. R

    Make a Wish?

    My daughter Hayley is 6 years old and we are going on her MAW trip in November. She wished to go to Disney World and we are staying at Give Kids the World. We can't wait! We got to pick our dates and purposely picked dates in the fall so the weather would be cooler and not so humid for...
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