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Update on our 15-month old daughter-what a long journey this has been-We had our first appt.w/ our immunologist doc.yesterday. Remember that pulmo doc.wanted her to be seen by him after her bronch.in July,but old pediatrician refused to make referral-Here's the Dx- He suspects transient infancy...

Do the oily stools create irritation and redness for babies still in diapers? She at times will have a bright red bottom I associated w/normal baby stuff- I realized today that any skin in the diaper area that is in contact w/her stool instantly turns bright red.

I have alternated from running a humidifier that I thought would keep the mucous easier to break up, and then I think sometimes this is all coming from her nose and draining into her chest at night and I was getting her too hot and making her more stuffy and I will try a cool temperature-I will...

Thank-you for your responses and time.

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Low sweat test values- 7 & 8- possible to be that low and still find CF in the Ambry Amplified test? Daughter is 15 months old-2 separate sweat tests-same arm each time- results 7 & 8- ever known ANYONE that low to show positive w/full genetic mutation tests for CF?

does anyone hce children w/CF & pectus excavatum w/flaring of lower ribs?/Wrinkly feet as well? Wondering if anyone was aware of a connection between CF and pectus excavatum(sunken,hollow breastbone appearance with bottom ribs flaring out? My daughter has what is known as pectus...

GI Doc has ordered fecal fat and other stool tests-said he was doing that to address oily/greasy stool issue-will this help to confirm pancreatic involvement assoc.with CF?

GI Doc.ordered fecal fat and other stool tests-said doing this to address oily/greasy stools- would this help confirm a CF diagnosis?

Please let me know about this-both her sweats were done on her rigt arm in same place-how accurate is that? both negative- 7 & 8-

Anyone have low numbers on sweat test and then show postive for CF w/genetic testing? What's the lowest you have any knowledge of ? My baby has all classic symptoms, but mucous in her chest did not culture any bacteria and her sweats were LOW 7 & 8- Pulmo doc.won't run full Ambry- They are...

2 neg.sweat tests- LOW 7 & 8- tested neg.for 32 genetic mutations? I have new pediatrician- Baby has appt.w/immunolgist next week-Constant bloodwork/tests- she has been admitted to hosp.twice since July- Pulmonolgist since CT scan was neg.-she does have pectus excavatum but they said it is not...

We are still waiting on Ambry results. 2 negative sweat tests 7 & 8-super low.baby still sick - Pulmonoligist found low IGM level -32- in her bloodwrk-said we need to be seen by immunologist-this has definitely been a roller coaster ride-and not an amusing one- we go from one possible DX to...

Answering some questions I've been asked-2nd sweat test in -negative-8-last one was a 7. Doc.said Ambry test would take several weeks-I specifically asked for Ambry Amplified? Sputum cultures have not grown anything as of yet-wait until Monday for that final result-Baby not any better-4...

We went today and had 2nd sweat test done-we are still waiting on genetic Ambry results-We had it done because daughter is not better and so far cultures from bronch/scope Tues. have not grown anything-1st sweat test was a low 7- When we went for 2nd sweat test today, I noticed they attached 2...

Just wondering how CF affects routine bloodwork-if things usually are in normal ranges or do certain things always show abnormal numbers? I'm just wondering about regular bloodwork-cbc,chem profile- not the actual genetic testing for CF.Thanks-

We finally got our bronc/scope on 13 month old daughter-She came thru the procedure great! Doctor said "she had more mucous in lungs than he expected to see." He suctioned 6 ccs of mucous from left lower lung-small areas in right lung appeared blistering red, but not bleeding-doc thinks that may...

Please see next topic for update and history. Thanks to everyone.

1 year old daughter became ill in March 2007.Diagnosed as asthma in May but did not repond to pulmocort and albuterol could not stop wheezing-chest x-ray showed hyperinflation and small possible area of collapsed lung? Sent to pulmonologist-He upped her pulmocort,started singulair, asthma still...