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About 3 weeks ago we moved into a new rental house. It appears to be in good, clean condition, built in 1950. Ever since I have slept in this house I feel horrible. My chest is tight, feels "heavy" actually, increased congestion, even slight chest pain every so often, etc. I went for my check up...

Hey everyone? I am about to start a vertex-661 trail. My question is: For anyone that has been enrolled in any of the vertex studies and have RECEIVED the drug, what happens when the trial is over and you stop taking the drug? does your lung function drop/you go back to feeling how you did...

On Sunday afternoon, out of the blue I was brushing my teeth & noticed that my left ear felt clogged & my hearing was muffled on that ear. Within 5 minutes I got a loud, very loud ringing in that ear. I saw an ENT yesterday who did a hearing test & diagnosed me with sensorineuro hearing loss...

Going on vacation. How do you sterilize the altera neb without using the Nuk sterilizer? Any help is appreciated. Thanks!

Does anyone know if it is ok to take the fizzy NAC while pregnant? Any help would be appreciated, thank you!

Hello all. I need to go on IV's on Monday & it seems the only thing I am not resistant to in one of my PA strains is colistin. I remember my former CF doc once telling me that IV colistin was "nasty stuff," & my current doc tells me there are some bad neurological side effects from it. So, I am...

Hey everyone! I just got the vest in January (the InCourage system) & would like to take it with me when I travel in a few weeks. My question is, how do I do this? Do most people check it with luggage? I am afraid it will not be handled with care. Or do I carry it on the plane, yet it is quite...

Hi all! Hope all the moms & mom-to-be's are feeling well. I had my 20 week OB appointment yesterday with ultrasound. The baby looks great, which is a huge relief. My last ultrasound was at 8 weeks, so I was really nervous & hoping things were developing well. My weight is up 10 pounds since...

I know I've heard a million times that the vest is ok to use while pregnant, but is there a certain frequency or pressure pregnant women should be using? My husband was watching me do the vest last night, & was very nervous about it hurting the baby. I told him it was fine, but then I got to...

Hey all! I've been keeping a secret: I'm pregnant! I'll be 16 weeks on Tuesday. I've known since the 1st day of my missed period back in January, but waited to announce to anyone until the past few weeks. We weren't "trying" so I was really surprised (pleasantly). We were gonna start trying next...

Hi everyone! I live in Chicago & have my whole life. I love my CF clinic. My husband just got transferred to Kansas City, Missouri so I need to find a new CF clinic. We will be moving in mid April. I am so nervous & scared as I know some adult CF clinics can be terrible & not really established...

Just want to ask all CF mom's out there this question. My husband & I have been thinking about starting a family for the past 2 years. CF wise, my health was always VERY stable until a year & a half ago when I had to have 3 tune-ups in a year. My PFT's are good, I have been running 20-25 miles a...

Hailey, just wonering if everything is ok. I know you're due in a couple weeks & I haven't seen you on this site in awhile. Just checking in & hope you're doing well!<img src="i/expressions/face-icon-small-happy.gif" border="0">

Hey everyone! I need some help. 3 weeks ago my FEV1 was 67% down from 80%. I got admitted & after 3 days I was up to 76%. So I went home with my PICC & about 5 days later got a HORRIBLE cold/viral/sinus infection. I got readmitted & FEV 1 was 74% and 72%. So, got discharged AGAIN & went home...

Hey there! I have a PICC in & need it for another week. I am supposed to go on a girls weekend to California (4 hour flight for me) & I really want to go if I feel ok. I may still be on the IV meds & still have my PICC at that time. Is it possible for me to fly? I guess I just worry about the...

I've always thought that colistin mmade me feel just "weird" & I hate doing it. I only do it now if I'm having a flare up or something. I've been on it now for 2 1/2 weeks & noticed the past few days that I was having weird neck pain/sensitivities, almost like a tingling sensation on the left...

Hi there! I have been seeing a naturopathic medicine doc for about 10 months & she has been great help in improving my health with supplements, vtamins, etc. My husband & I are considering pregnancy & she is suggesting I do some IV's of vitamins including vit C, Calcium, Magnesium, and a few...

Hi there! I called to order my supply of hypertonic saline & they told me it is on backorder until September! I use CF pharmacy. Anyone else heard this? Is there anywhere else to get it? I am so worried my lung function is going to suffer. I LOVE my hyper saline. Any suggestions?

My doc had just prescribed Cipro since I have a horrible cold that has gone to my chest. Last year I took Cipro & it did nothing for me. Anyways, I also take Zithromax M-W-F. If I take my a.m. Cipro, do I need to wait a certain amount of time before I take my Zithromax?

I just got a horrible cold/sinus infection! I am so stuffed up, yet nothing is coming out. I can't even do my SINUS RINSE. The water is not even flowing through my sinuses. I have never taken robitussin, but was wondering if that would help thin things out & get the junk flowing?? Or, will that...