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  1. M

    poopy help, please...DIOS?

    Just a thought... does he take an antacids like prevacid? We had Brinly (3yrs old) on one from birth and we really did not think she needed one so we stopped and after about a month of being off she started being very gassy, horrible stools and not eating and also would complain of stomach aches...
  2. M

    poopy help, please...DIOS?

    Just a thought... does he take an antacids like prevacid? We had Brinly (3yrs old) on one from birth and we really did not think she needed one so we stopped and after about a month of being off she started being very gassy, horrible stools and not eating and also would complain of stomach aches...
  3. M

    poopy help, please...DIOS?

    Just a thought... does he take an antacids like prevacid? We had Brinly (3yrs old) on one from birth and we really did not think she needed one so we stopped and after about a month of being off she started being very gassy, horrible stools and not eating and also would complain of stomach aches...
  4. M

    poopy help, please...DIOS?

    Just a thought... does he take an antacids like prevacid? We had Brinly (3yrs old) on one from birth and we really did not think she needed one so we stopped and after about a month of being off she started being very gassy, horrible stools and not eating and also would complain of stomach aches...
  5. M

    poopy help, please...DIOS?

    Just a thought... does he take an antacids like prevacid? We had Brinly (3yrs old) on one from birth and we really did not think she needed one so we stopped and after about a month of being off she started being very gassy, horrible stools and not eating and also would complain of stomach aches...
  6. M

    poopy help, please...DIOS?

    Just a thought... does he take an antacids like prevacid? We had Brinly (3yrs old) on one from birth and we really did not think she needed one so we stopped and after about a month of being off she started being very gassy, horrible stools and not eating and also would complain of stomach aches...
  7. M

    FEVER

    Just another thought... He maybe allergic to Bactrim? My oldest had a rash with Omecief and had a very bad red pimply rash itchy everywhere even in her hair! And i would check his urine? She also had a urinary tract infection. Later diagnosed with kidney reflux.
  8. M

    FEVER

    Just another thought... He maybe allergic to Bactrim? My oldest had a rash with Omecief and had a very bad red pimply rash itchy everywhere even in her hair! And i would check his urine? She also had a urinary tract infection. Later diagnosed with kidney reflux.
  9. M

    FEVER

    Just another thought... He maybe allergic to Bactrim? My oldest had a rash with Omecief and had a very bad red pimply rash itchy everywhere even in her hair! And i would check his urine? She also had a urinary tract infection. Later diagnosed with kidney reflux.
  10. M

    Air Trapping in Lungs?

    Sharon- Thank you for your reply! Brinly has turned out to be anemic on top of her air trapping (reason for her pale face) and we added iron supplement to her diet. We just finished TOBI and go to the clinic again in 2 weeks. Why did you feel the need to get a second opinion???? I really am...
  11. M

    Air Trapping in Lungs?

    Sharon- Thank you for your reply! Brinly has turned out to be anemic on top of her air trapping (reason for her pale face) and we added iron supplement to her diet. We just finished TOBI and go to the clinic again in 2 weeks. Why did you feel the need to get a second opinion???? I really am...
  12. M

    Air Trapping in Lungs?

    Sharon- Thank you for your reply! Brinly has turned out to be anemic on top of her air trapping (reason for her pale face) and we added iron supplement to her diet. We just finished TOBI and go to the clinic again in 2 weeks. Why did you feel the need to get a second opinion???? I really am...
  13. M

    New and needing some help

    Jody- My 2 1/2 is on TOBI and i have never heard of E FLOW?? What is the difference the nebulizer?? Courtney- My 2 1/2 is a trooper too- we also turn on HER choice of a video during treatments and i explain to her the faster you are in doing your meds the faster you can run and play for the...
  14. M

    New and needing some help

    Jody- My 2 1/2 is on TOBI and i have never heard of E FLOW?? What is the difference the nebulizer?? Courtney- My 2 1/2 is a trooper too- we also turn on HER choice of a video during treatments and i explain to her the faster you are in doing your meds the faster you can run and play for the...
  15. M

    New and needing some help

    Jody- My 2 1/2 is on TOBI and i have never heard of E FLOW?? What is the difference the nebulizer?? Courtney- My 2 1/2 is a trooper too- we also turn on HER choice of a video during treatments and i explain to her the faster you are in doing your meds the faster you can run and play for the...
  16. M

    Air Trapping in Lungs?

    Hi There~ I am wondering if i should be extremly worried or not?? At our last cf clinic appt. the xray showed air trapping in my 2 1/2 year olds lungs? She has been pale and stuffy (no cough) hence - why we went to the clinic. The doctor's comment was "i am concerned but not worried yet" She...
  17. M

    Air Trapping in Lungs?

    Hi There~ I am wondering if i should be extremly worried or not?? At our last cf clinic appt. the xray showed air trapping in my 2 1/2 year olds lungs? She has been pale and stuffy (no cough) hence - why we went to the clinic. The doctor's comment was "i am concerned but not worried yet" She...
  18. M

    Air Trapping in Lungs?

    Hi There~ I am wondering if i should be extremly worried or not?? At our last cf clinic appt. the xray showed air trapping in my 2 1/2 year olds lungs? She has been pale and stuffy (no cough) hence - why we went to the clinic. The doctor's comment was "i am concerned but not worried yet" She...
  19. M

    Zantac/ previcid/ side affects/

    I am worried about the side affects of previcid etc. too! Our daughter in my opinion does NOT have GERDS i feel like they gave it to her assuming she would b/c she has cf??? I have halfed the docs dosage and am thinking about not giving it to her all together?? Does anyone NOT take...
  20. M

    looking for info on mutation 1717-1g2a

    Our 2 yr old daughter has the DF508 and the 1717-1G<A mutations. I am not sure if this is the same mutation of your grandson but it seems similar? Do you have the excate numbers correct? What we have found is that is very rare only about 7% of cfers have it but it is a stage 1 mutation that...
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