Thanks for the personal info everyone. Sorry for the late response but I dont get on here to often. I too did more them my fair share when I was in my teens and early 20's so Ive been there and done that. Just curious what everyone else does. I mean we were given a new set to live, right?
I was only told by my transplant team to avoid grapefruit, sushi and alcohol. Havent heard of the others but like everyone says each facility has different guidelines for post transplant patients.
I'm curious to see how many people drink alcohol after transplant. Do you drink once in a blue moon, once every month, etc. I know each hospital has different suggestions on this topic, but I have noticed that it seems drinking in moderation every once in awhile is acceptable. I rarely drink and...
I had one done years ago but no fever or pain. I was unable to use pulmozyne b/c it caused bleeding and was taking vit k to prevent future bleeds. I remember the vest would also cause me to bleed to so had to be careful about using it. Wasnt massive bleeds but streaks in the sputum.
Sorry to...
I was transplanted at UT Southwestern but followed my doctor to Baylor of Dallas. I guess that is why there are more CF patients being transplanted at Baylor than before.
I was transplanted at UT Southwestern but followed my doctor to Baylor of Dallas. I guess that is why there are more CF patients being transplanted at Baylor than before.
Hello,
I was pretty busy when I first woke up with staff and such. Once the first day was over I basically kept busy with T.V., magazines, and a gameboy. you can pm me with any questions that you have. Good Luck with everything!
Hello,
I was pretty busy when I first woke up with staff and such. Once the first day was over I basically kept busy with T.V., magazines, and a gameboy. you can pm me with any questions that you have. Good Luck with everything!
I would list yourself.
I didnt think that I needed a transplant soon but my lung functions were in the teens. I flirted with this number for 3 years until I caved in and was listed. At anytime though I could have gotten a severe infection and had been deemed not healthy enough to have the...
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