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I honestly could care less what the name of the drug is called, as long as it works. It sounds pretty promising to me. My 4 year old has the G551D mutation. This is such an amazing thing for us...

I honestly could care less what the name of the drug is called, as long as it works. It sounds pretty promising to me. My 4 year old has the G551D mutation. This is such an amazing thing for us...

I honestly could care less what the name of the drug is called, as long as it works. It sounds pretty promising to me. My 4 year old has the G551D mutation. This is such an amazing thing for us...

My 3 year old freaks out the moment we walk down the hall to the room.. Won't cooperate for anything.. Just cries and screams.. We've bought him Doctor equipment for role play and he does great at home.. We thought he would be over this by now but he's not.. He is just scared.. And to be honest...

My 3 year old freaks out the moment we walk down the hall to the room.. Won't cooperate for anything.. Just cries and screams.. We've bought him Doctor equipment for role play and he does great at home.. We thought he would be over this by now but he's not.. He is just scared.. And to be honest...

My 3 year old freaks out the moment we walk down the hall to the room.. Won't cooperate for anything.. Just cries and screams.. We've bought him Doctor equipment for role play and he does great at home.. We thought he would be over this by now but he's not.. He is just scared.. And to be honest...

Do you feel really hot or just sweaty? I always wonder if my son feels hot but he isn't hot too touch, just really sweaty..

Do you feel really hot or just sweaty? I always wonder if my son feels hot but he isn't hot too touch, just really sweaty..

Do you feel really hot or just sweaty? I always wonder if my son feels hot but he isn't hot too touch, just really sweaty..

Our clinic does throat cultures every 3 months no matter what.. Sometimes we go in just for a culture after a Tobi treatment. Jen... You hang in there too.. It is so frustrating for it to keep coming back.. I go crazy santizing my house daily and still can't keep it away... Stay in touch..

Our clinic does throat cultures every 3 months no matter what.. Sometimes we go in just for a culture after a Tobi treatment. Jen... You hang in there too.. It is so frustrating for it to keep coming back.. I go crazy santizing my house daily and still can't keep it away... Stay in touch..

Our clinic does throat cultures every 3 months no matter what.. Sometimes we go in just for a culture after a Tobi treatment. <br /> <br />Jen... You hang in there too.. It is so frustrating for it to keep coming back.. I go crazy santizing my house daily and still can't keep it away... Stay in...

Do your CFers sweat ALOT when they are sleeping???? I know that they sweat alot but he wakes up sooooo sweaty.

Do your CFers sweat ALOT when they are sleeping???? I know that they sweat alot but he wakes up sooooo sweaty.

Do your CFers sweat ALOT when they are sleeping???? I know that they sweat alot but he wakes up sooooo sweaty.

My 3 year old justs itches his nose the whole time.. He says he needs a tissue cause his nose is running..

My 3 year old justs itches his nose the whole time.. He says he needs a tissue cause his nose is running..

My 3 year old justs itches his nose the whole time.. He says he needs a tissue cause his nose is running..

My 3 year old son cultured pseudomonas for the first time about 3 months ago... We have been doing Tobi every 28 days.. The pseudomonas is still there after 2 rounds of Tobi.. We will be starting our 3rd round in a couple weeks.. My question is how common is it for the pseudomonas to take awhile...

My 3 year old son cultured pseudomonas for the first time about 3 months ago... We have been doing Tobi every 28 days.. The pseudomonas is still there after 2 rounds of Tobi.. We will be starting our 3rd round in a couple weeks.. My question is how common is it for the pseudomonas to take awhile...