Search results

  1. S

    can CREON capsules be kept in a refrigeorator?

    Hi, I always keep an open container in the fridge of creon, but generally only one or two bottles the rest I store in a cupboard. We don't run temps as high as you more the 27-33C. Don't find condensation a problem, but mine are poured out into a little bowl in the fridge rather Than kept in...
  2. S

    Decline in PFTs

    What about ABPA, it plays havoc with my sons PFT's. We have also done Pulmozyme and HTS together. Although we discuvoered the the HTS made his lungs reactive and tighten up so we had to stop.
  3. S

    Decline in PFTs

    What about ABPA, it plays havoc with my sons PFT's. We have also done Pulmozyme and HTS together. Although we discuvoered the the HTS made his lungs reactive and tighten up so we had to stop.
  4. S

    Decline in PFTs

    What about ABPA, it plays havoc with my sons PFT's. We have also done Pulmozyme and HTS together. Although we discuvoered the the HTS made his lungs reactive and tighten up so we had to stop.
  5. S

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    My 10 year suffers quite badly from ABPA diagnosed at age 5 with IGe levels of over 18,000 highest our CF doc had ever seen. Last year his lung function dropped from 82% to 52% because of ABPA, he was hospitalised for 4 weeks straight and he went on Sporonax (pink and blue pills) 4 pills daily...
  6. S

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    My 10 year suffers quite badly from ABPA diagnosed at age 5 with IGe levels of over 18,000 highest our CF doc had ever seen. Last year his lung function dropped from 82% to 52% because of ABPA, he was hospitalised for 4 weeks straight and he went on Sporonax (pink and blue pills) 4 pills daily...
  7. S

    ABPA - allergic reaction to aspergillus (in a nutshell!)

    My 10 year suffers quite badly from ABPA diagnosed at age 5 with IGe levels of over 18,000 highest our CF doc had ever seen. Last year his lung function dropped from 82% to 52% because of ABPA, he was hospitalised for 4 weeks straight and he went on Sporonax (pink and blue pills) 4 pills daily...
  8. S

    How do you manage working when a child with cf goes through long bouts of illness?

    I have just given up work for at least the next 4 years. I have 2 kids with CF and it just became impossible trying to maintain some kind of balance.
  9. S

    How do you manage working when a child with cf goes through long bouts of illness?

    I have just given up work for at least the next 4 years. I have 2 kids with CF and it just became impossible trying to maintain some kind of balance.
  10. S

    How do you manage working when a child with cf goes through long bouts of illness?

    I have just given up work for at least the next 4 years. I have 2 kids with CF and it just became impossible trying to maintain some kind of balance.
  11. S

    How do you manage working when a child with cf goes through long bouts of illness?

    I have just given up work for at least the next 4 years. I have 2 kids with CF and it just became impossible trying to maintain some kind of balance.
  12. S

    How do you manage working when a child with cf goes through long bouts of illness?

    <br />I have just given up work for at least the next 4 years. I have 2 kids with CF and it just became impossible trying to maintain some kind of balance.
  13. S

    Shopping List at the grocery store for a CF family

    Ours are full of mini chocolate bars, full fat custard, yoghurts, chocolate puddings, biscuits, cream, butter, high fat cheese, salami. I used to wonder about what people think, as we (the parents) on the heavy side, but now i don't.
  14. S

    Shopping List at the grocery store for a CF family

    Ours are full of mini chocolate bars, full fat custard, yoghurts, chocolate puddings, biscuits, cream, butter, high fat cheese, salami. I used to wonder about what people think, as we (the parents) on the heavy side, but now i don't.
  15. S

    Shopping List at the grocery store for a CF family

    Ours are full of mini chocolate bars, full fat custard, yoghurts, chocolate puddings, biscuits, cream, butter, high fat cheese, salami. I used to wonder about what people think, as we (the parents) on the heavy side, but now i don't.
  16. S

    Shopping List at the grocery store for a CF family

    Ours are full of mini chocolate bars, full fat custard, yoghurts, chocolate puddings, biscuits, cream, butter, high fat cheese, salami. I used to wonder about what people think, as we (the parents) on the heavy side, but now i don't.
  17. S

    Shopping List at the grocery store for a CF family

    Ours are full of mini chocolate bars, full fat custard, yoghurts, chocolate puddings, biscuits, cream, butter, high fat cheese, salami. <br /> <br />I used to wonder about what people think, as we (the parents) on the heavy side, but now i don't.
  18. S

    Travel tips?

    I took Jordan to Chona when he was sick, we got a letter from our doctor confirming that Jordan had CF and listing every medication that we were taking even panadol adn over the counter stuff, we also got the pharmacy to label and plain non script medications with his name and directions. We...
  19. S

    Travel tips?

    I took Jordan to Chona when he was sick, we got a letter from our doctor confirming that Jordan had CF and listing every medication that we were taking even panadol adn over the counter stuff, we also got the pharmacy to label and plain non script medications with his name and directions. We...
  20. S

    Travel tips?

    I took Jordan to Chona when he was sick, we got a letter from our doctor confirming that Jordan had CF and listing every medication that we were taking even panadol adn over the counter stuff, we also got the pharmacy to label and plain non script medications with his name and directions. We...
Top