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I just attempted to do my first dose of Colistin. I received my order from Foundation Care and assumed they sent me everything I needed. Admittedly, I didn't pay too much attention to what I was doing because it seemed pretty self-explanatory. I figured it was similar to the old days of...

I'd like to hear from anyone who has used an at-home spirometer. Are they pretty accurate? I'm looking specifically at this one (http://www.medrise.com/spirometer/piko-6-electronic-fev1-fev6-meter.html#.USpIpVcsAXY) because I don't want to spend thousands of dollars. I've started exercising...

My employer is currently in open enrollment for new insurance. My options are Anthem Blue Cross HMO, PPO, and PPO/HSA. I am looking at the PPO/HSA, but it almost sounds too good to be true for me and I'd like to hear from anyone who uses the HSA to see if there are any hidden costs or fine...

And so it begins.... I have my first appointment to start the evaluation process in about a month. Up until this point, I have always known that transplant was something I would definitely want if the time came. I am now starting to wonder if in fact it is something I want. I feel like I am...

I had a scary episode today that I think was related to the AquADEKs. I ate my breakfast of Kashi cereal with milk at about 10 am. With that I took my zithromax, enzymes and the two AquADEK. I just recieved a bottle of it yesterday as a free sample so it was my second time taking it (first...

Myself and a friend of mine are working on this project together in order to raise funds for CF. Check out the website: <a target=_blank class=ftalternatingbarlinklarge href="http://www.painttheroses.com">www.painttheroses.com</a>

In the past year and a half, I have developed 4 kidney stones. Two of which I passed on my own while laying on my bathroom floor, and two which had to be surgically lasered to break them up. NOT FUN, by the way!! Everything I've read and what my doctors say is that they are caused by not...

When you colonize pseudomonas, does your phlegm ever get clear or does it always stay yellowish to green? I've colonized it for a few years now. I've been on IV meds now for 3 weeks and my color sort of hit a plateau. It was green and started getting lighter right when I started meds, but now...

There is no easy way to say it, but the my biggest fear came true. I went to the doctor on Friday and the ultrasound this time didn't even show a fetus (the last one did) just a sac and the placenta. So they prescribed me some pills that would "clean out" my uterus in 4-6 hours. I decided to...

I'm now in my 6th week. For the last 3 days I have had light spotting, but it isn't bright red blood, its just pink discharge. It's there on the TP after I go to the bathroom and I've started to wear a pantyliner (so I don't pee my pants) and there is a little bit on there as well. Also...

I just found out on Friday! I tested positive with 2 home prenancy tests (just to be sure, you know). I am a little hesitant about telling everyone yet, since this is my first and it's still so early (I'm about 4 weeks) but I'm just so excited. I haven't been on birth control in probably 4...

This is Oscar!

A friend of mine with CF was just in the hospital in August. He didn't have insurance for a few months because he wasn't in school full time. He registered for school in July, was told any claim from Aug. 1 through Dec. 31 would be covered, went in the hospital on August 3, and now the...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ocregister.com/ocregister/homepage/abox/article_1294743.php">http://www.ocregister.com/ocre...ox/article_1294743.php</a>

...and I start tomorrow! I posted a few weeks ago saying I was having trouble passing my physical because of my PFTs. Well, I improved to a 70%, but was still short of a passing score of 75%. The next day I went to my own doctor and they did another test and I got a 79%! So I gave those...

I'm in the process of trying to get a job with the city. I've passed everything I need to except for the friggin' spyrometry test for my physical!! I went in last Friday and did it, results were 44% and they had to be at least 75%. They are going to let me go back in today and do it again...

I'm currently on both Tobramycin and Cefepime IV meds. They are stored in the fridge, and the instructions say to take it out and let it warm to room temp prior to infusion. Do I have to let it get warm just so it's more comfortable going in, or is there something about the chemistry of the...

What's the longest you've ever gone without accessing your port to flush it when it isn't being used for meds? One month, two months...?

Here's my situation: I got married in May and my husbands insurance (HMO) isn't really that good. Not bad, but not good. The social worker at the CF center I go to told me to apply to GHPP because everything that my HMO won't pay for GHPP will. When I called and spoke to the lady at GHPP she...

I just bought this product (similar to Lysol) and on the back it says that it kills Pseudomonas Aeruginosa. Does anyone use this in their house regularly, and if so, has it helped prevent you from getting sick as often? I'm having my doubts, because it almost seems too easy...