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  1. A

    Those who fake having CF :(

    Unfortunately your cousin is not alone in a long list of people who fake having CF. It's a pretty well known thing (of CF fakers) in the CF world, especially on Facebook. I highly doubt your dealing with an internet troll. Internet trolls are people who just rile up other people for fun...
  2. A

    Those who fake having CF :(

    Unfortunately your cousin is not alone in a long list of people who fake having CF. It's a pretty well known thing (of CF fakers) in the CF world, especially on Facebook. I highly doubt your dealing with an internet troll. Internet trolls are people who just rile up other people for fun...
  3. A

    Those who fake having CF :(

    Unfortunately your cousin is not alone in a long list of people who fake having CF. It's a pretty well known thing (of CF fakers) in the CF world, especially on Facebook. <br /> <br />I highly doubt your dealing with an internet troll. Internet trolls are people who just rile up other people...
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    Inhaled Cipro

    I just signed up for this at my hospital. I have to be clean of TOBI for 30 days. I stopped it at the end of May so I was perfect timing. I take TOBI every other month. I already had my first visit. I had to get blood drawn and get a chest x-ray. In 2 weeks I have to go back. It's like...
  5. A

    Inhaled Cipro

    I just signed up for this at my hospital. I have to be clean of TOBI for 30 days. I stopped it at the end of May so I was perfect timing. I take TOBI every other month. I already had my first visit. I had to get blood drawn and get a chest x-ray. In 2 weeks I have to go back. It's like...
  6. A

    Inhaled Cipro

    I just signed up for this at my hospital. I have to be clean of TOBI for 30 days. I stopped it at the end of May so I was perfect timing. I take TOBI every other month. I already had my first visit. I had to get blood drawn and get a chest x-ray. In 2 weeks I have to go back. It's like...
  7. A

    Inhaled Cipro

    I just signed up for this at my hospital. I have to be clean of TOBI for 30 days. I stopped it at the end of May so I was perfect timing. I take TOBI every other month. I already had my first visit. I had to get blood drawn and get a chest x-ray. In 2 weeks I have to go back. It's like...
  8. A

    Inhaled Cipro

    I just signed up for this at my hospital. I have to be clean of TOBI for 30 days. I stopped it at the end of May so I was perfect timing. I take TOBI every other month. I already had my first visit. I had to get blood drawn and get a chest x-ray. In 2 weeks I have to go back. It's like...
  9. A

    Frustrated with "adult" transitions?

    Frustrated with I switched to the adult team last year. It was hell. I got really depressed when I was admitted. My Dr. wasn't a kids Dr. and he doesn't have a great bedside manner haha, but he's still a great Dr. I slept the whole time I was there pretty much, lost even more weight when I...
  10. A

    Frustrated with "adult" transitions?

    Frustrated with I switched to the adult team last year. It was hell. I got really depressed when I was admitted. My Dr. wasn't a kids Dr. and he doesn't have a great bedside manner haha, but he's still a great Dr. I slept the whole time I was there pretty much, lost even more weight when I...
  11. A

    Frustrated with "adult" transitions?

    Frustrated with I switched to the adult team last year. It was hell. I got really depressed when I was admitted. My Dr. wasn't a kids Dr. and he doesn't have a great bedside manner haha, but he's still a great Dr. I slept the whole time I was there pretty much, lost even more weight when I...
  12. A

    Frustrated with "adult" transitions?

    Frustrated with I switched to the adult team last year. It was hell. I got really depressed when I was admitted. My Dr. wasn't a kids Dr. and he doesn't have a great bedside manner haha, but he's still a great Dr. I slept the whole time I was there pretty much, lost even more weight when I...
  13. A

    Frustrated with "adult" transitions?

    Frustrated with I switched to the adult team last year. It was hell. I got really depressed when I was admitted. My Dr. wasn't a kids Dr. and he doesn't have a great bedside manner haha, but he's still a great Dr. I slept the whole time I was there pretty much, lost even more weight when I...
  14. A

    What causes PFT's to be low..

    My Dr's tell me to get plenty of sleep because if you're tired that effects it. Being in the middle of or getting an infection, an asthama flare up. I also read an article about patients ages 8-20 with CF who also had MRSA and they had a more rapid rate of delcine in their PFTS then CF...
  15. A

    What causes PFT's to be low..

    My Dr's tell me to get plenty of sleep because if you're tired that effects it. Being in the middle of or getting an infection, an asthama flare up. I also read an article about patients ages 8-20 with CF who also had MRSA and they had a more rapid rate of delcine in their PFTS then CF...
  16. A

    What causes PFT's to be low..

    My Dr's tell me to get plenty of sleep because if you're tired that effects it. Being in the middle of or getting an infection, an asthama flare up. I also read an article about patients ages 8-20 with CF who also had MRSA and they had a more rapid rate of delcine in their PFTS then CF...
  17. A

    What causes PFT's to be low..

    My Dr's tell me to get plenty of sleep because if you're tired that effects it. Being in the middle of or getting an infection, an asthama flare up. I also read an article about patients ages 8-20 with CF who also had MRSA and they had a more rapid rate of delcine in their PFTS then CF...
  18. A

    What causes PFT's to be low..

    My Dr's tell me to get plenty of sleep because if you're tired that effects it. Being in the middle of or getting an infection, an asthama flare up. I also read an article about patients ages 8-20 with CF who also had MRSA and they had a more rapid rate of delcine in their PFTS then CF...
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    Anyone know?

    Yeah I think all the mucus we cough up are called plugs. Except for the little stringy light green stuff. Nasty chunks of mucus plugs. Haha Tumbleweed I show my family and boyfriend my muscus to haha. I've coughed up what my dr calls very old mucus. It's tiny little actual chucks, no liquid...
  20. A

    Anyone know?

    Yeah I think all the mucus we cough up are called plugs. Except for the little stringy light green stuff. Nasty chunks of mucus plugs. Haha Tumbleweed I show my family and boyfriend my muscus to haha. I've coughed up what my dr calls very old mucus. It's tiny little actual chucks, no liquid...
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