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anyone ever been on the IV azactam? this is my new drug they have started me on. never been on it or even heard of it before. just curious

Yes I know another o2 question....sorry. I've tried looking up old threads but didnt really find anything. For those of you that use o2 at night, what where your symptoms that made you think you need o2. During the day I have been running a little low around 93. I've heard you drop at while...

So apparently my magnesium (sp?) levels are low and I am getting really bad muscle type spasms like in my hands, feet, and sides. I am in the hospital right now so they are giving me magnesium pills. But I guess until my levels I guess go up I have these spasms. Anyone else? If so what do...

So me and my sister were in the car the other day and we thought up some cute T shirt ideas. 1. I'm to cute to smoke 2. No, I'm not contagious 3. FAQ or Top Questions asked to CF'ers 1. Are you pregnant? 2. Do you smoke? 3. Need a cough drop? 4. You have a cold? etc...

Just wondering how often do you do nightly feedings for those that have the feedin tube?

Ok I have had my port since feb. 06. I have had it accessed once, which was just last month. The scar looks infected, its really sore to touch and red, and looks rather nasty. Have any of you had infected ports, what should i do? Go to ER? I have called my clinic but they haven't callled...

Ok, so I am suppose to go to Denver on friday with my aunt. My aunt told me to call my doctor to make sure I would be ok with altitude and what not. So today I call my doctor and ask him if he thinks that I would be ok. I am not on oxygen, the only time I go on oxygen is normally when I am in...

So tonight I finially enrolled into a PDP. I enrolled w/AdvantraRx Premier. So just out of curosity I was wondering who everyone else signed up with or if they decided not to enroll. This PDP is supposedly covers 8 of my 13 prescriptions. $33.72 monthly premium, $5 co pay for...

I have the sweetest family. Tuesday the 2nd was my birthday well for my birthday I was stuck in the hospital. The hospital did send flowers, balloons and candy to me. But let me tell you what my family did for me. I was kinda bummed b/c no one had called me all day to wish me a happy...

Ok, I am sure this has been brought up before but, oh well. So I have been having these stabbing pains on my right side, then it kinda moves down towards my pelvic area. The pain comes and goes. Anyone have any idea what this could be? I have to call the clinic tomorrow anyway so I will...

Well guys, I leave for Europe in about 2 hours!!! woooohooo I am soo anxious, nervous, excited. I will be returning March 28th. Maybe when I get back I'll learn how to post pics. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> I know I will have soo much to share when I get...

Ok as many of you know I was in the hospital and while I was there I had swelling really bad. At first we thought it was do to the prednisone, well the swelling in my stomach and back went down, then it was just the swelling in my leg and foot. They have done all types of tests on me to figure...

Ok, this may be a silly question but, thought I would ask anyways. When you have a port the port is metal right? Well if its metal do any of you get "harrassed" sort to say like when you go through metal detectors, like say at an airport? I am getting a port placed tomorrow, and am flying in...

My favorite SB commercial so far is the Budweiser commercial. Where the baby clydstale pulls the carriage, but really the bigger clydstale is pushing the carriage. Aww I just that it was so cute!!

Have you seen Crash? What did you think? Very good movie! Anyways Just curious

Did anyone watch tonights episode? They had a CF patient on it, I didnt get to watch the whole show so I don't really know how they took it on. Just curious if anyone else watched.

Ok, my sister is pregnant and so she was tested to see if she is a carrier, in which she is. So they tested her boyfriend which thankfully came back negative. But I was wondering if they do the short version of carrier test or do they automatically send it to Ambry since CF is know in the...

Ok, lately I have been having "episodes" of aching bones. It effects everything hands, legs and arms or sometimes just hands or whatever. Its a weird achy, kinda like a charlie horse feeling. Like for instance, right now i have achyness in my hands and it worsens when I make a fist I dont...

A friend sent me this website asking if I have ever heard of this or tried it, it says you can get medicine for FREE. I have CSHCN so I dont pay anything right now for medicine anyways but you never know if they will all of a sudden kick you off, so I was wondering if anyone else has tried...

Its 3:51am on my 22nd birthday and I have woken up to low blood sugars (43) so I have ate a bowl of cereal. Now I am waiting for my surgars to come back up and but I can't sleep. To make things just a bit better, I have to babysit at 7am.<img src="i/expressions/face-icon-small-confused.gif"...