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i'm glad I came on here and searched PA - my son is 2 and cultured PA last month. We just finished our 21 days of Cipro and month of Tobi - on top of our normal nebs - albuterol, pulmozyme and hypertonic saline (which we just happened to start the week before Tobi!). So, I was an emotional...

i'm glad I came on here and searched PA - my son is 2 and cultured PA last month. We just finished our 21 days of Cipro and month of Tobi - on top of our normal nebs - albuterol, pulmozyme and hypertonic saline (which we just happened to start the week before Tobi!). So, I was an emotional...

i'm glad I came on here and searched PA - my son is 2 and cultured PA last month. We just finished our 21 days of Cipro and month of Tobi - on top of our normal nebs - albuterol, pulmozyme and hypertonic saline (which we just happened to start the week before Tobi!). So, I was an emotional...

Funny - my 24 month old son has been on Cipro for almost 2 weeks and he never gives us trouble about medicine, but he HATES this one. I feel so dumb not realizing that it might taste like crap! We have one more week. This was the first time he cultured pa - so hopefully this and the new...

Funny - my 24 month old son has been on Cipro for almost 2 weeks and he never gives us trouble about medicine, but he HATES this one. I feel so dumb not realizing that it might taste like crap! We have one more week. This was the first time he cultured pa - so hopefully this and the new...

Funny - my 24 month old son has been on Cipro for almost 2 weeks and he never gives us trouble about medicine, but he HATES this one. I feel so dumb not realizing that it might taste like crap! We have one more week. This was the first time he cultured pa - so hopefully this and the new...

Just to chime in - my son is 2 and has been hospitalized twice already for 6-7 days at a time. My husband and I both work full-time, have 3 kids, live an hour from work/hospital and have limited vacation. I happen to work at the hospital where my son goes so I have the flexibility to run back...

Just to chime in - my son is 2 and has been hospitalized twice already for 6-7 days at a time. My husband and I both work full-time, have 3 kids, live an hour from work/hospital and have limited vacation. I happen to work at the hospital where my son goes so I have the flexibility to run back...

Just to chime in - my son is 2 and has been hospitalized twice already for 6-7 days at a time. My husband and I both work full-time, have 3 kids, live an hour from work/hospital and have limited vacation. I happen to work at the hospital where my son goes so I have the flexibility to run back...

We have 2 healthy daughters and with our second, we found out we were carriers - after newborn screening we found out she was not a carrier and decided no more kids. Well, a few years went by and I knew I was meant to have one more and prayed and prayed for a healthy baby. God gave me a...

We have 2 healthy daughters and with our second, we found out we were carriers - after newborn screening we found out she was not a carrier and decided no more kids. Well, a few years went by and I knew I was meant to have one more and prayed and prayed for a healthy baby. God gave me a...

We have 2 healthy daughters and with our second, we found out we were carriers - after newborn screening we found out she was not a carrier and decided no more kids. Well, a few years went by and I knew I was meant to have one more and prayed and prayed for a healthy baby. God gave me a...

That's it, we just need to move to FL - we love it there anyway!! Seriously, thanks for the responses. We did end up going to the St. Louis Salt Room on Monday and it was fine. We were in the room by ourselves - my son sat right in front of me and played with the beach toys. The owner was...

Wondering if anyone has any experience with Salt Rooms? A new one just opened up in the St. Louis, MO area and I send the info to our pulm to get his reaction. The owners opened because their 9 year old daughter had severa asthma and he told me that they have several individuals with CF who...

My son spent a month in the NICU too so I understand it is not a fun place to be, especially with other kids at home. The first year for us was really hard with the enzymes - we started with pancrease then ultrase and now he is on Creon. I wish we would have started with Creon because the...

My son spent a month in the NICU too so I understand it is not a fun place to be, especially with other kids at home. The first year for us was really hard with the enzymes - we started with pancrease then ultrase and now he is on Creon. I wish we would have started with Creon because the...

My son spent a month in the NICU too so I understand it is not a fun place to be, especially with other kids at home. The first year for us was really hard with the enzymes - we started with pancrease then ultrase and now he is on Creon. I wish we would have started with Creon because the...

I read your posts and since we started vest and nebulizer treatments last year, we have always done albuterol and then pulmozyme while we are doing vest. Is that not the right thing to do? He is too young to stop and cough or huff and we do not do HS. This is how our respiratory therapist...

I read your posts and since we started vest and nebulizer treatments last year, we have always done albuterol and then pulmozyme while we are doing vest. Is that not the right thing to do? He is too young to stop and cough or huff and we do not do HS. This is how our respiratory therapist...

I read your posts and since we started vest and nebulizer treatments last year, we have always done albuterol and then pulmozyme while we are doing vest. Is that not the right thing to do? He is too young to stop and cough or huff and we do not do HS. This is how our respiratory therapist...