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Has anyone had experience with mucoid pseudomonas and been able to treat it? It seems like nothing is working- hospital stay for two weeks, Tobi, extra treatments...is there light at the end of the tunnel? Or is this a new base level?

you may want to think about going to a mayo clinic where teams of doctors work together to figure out explanations for strange things. they run every test possible and have extensive experience with many patients. it may be worth a trip- is it worth waiting and seeing when scar tissue is being...

you may want to think about going to a mayo clinic where teams of doctors work together to figure out explanations for strange things. they run every test possible and have extensive experience with many patients. it may be worth a trip- is it worth waiting and seeing when scar tissue is being...

you may want to think about going to a mayo clinic where teams of doctors work together to figure out explanations for strange things. they run every test possible and have extensive experience with many patients. it may be worth a trip- is it worth waiting and seeing when scar tissue is being...

I use an insulated bag with a built in thermostat. It's great because you can keep an eye on the temperature inside the bag during the whole trip. I've used it for pulmozyme and tobi. you can find it at this website: <a target=_blank class=ftalternatingbarlinklarge...

I use an insulated bag with a built in thermostat. It's great because you can keep an eye on the temperature inside the bag during the whole trip. I've used it for pulmozyme and tobi. you can find it at this website: <a target=_blank class=ftalternatingbarlinklarge...

I use an insulated bag with a built in thermostat. It's great because you can keep an eye on the temperature inside the bag during the whole trip. I've used it for pulmozyme and tobi. you can find it at this website: <br /><a target=_blank class=ftalternatingbarlinklarge...

it is possible that each bead does not have the same amount and they evaluate it differently. i can say that may daughter has gained better on zenpep than with creon, but i don't open the beads anymore.

it is possible that each bead does not have the same amount and they evaluate it differently. i can say that may daughter has gained better on zenpep than with creon, but i don't open the beads anymore.

it is possible that each bead does not have the same amount and they evaluate it differently. i can say that may daughter has gained better on zenpep than with creon, but i don't open the beads anymore.

kts mom- i'm with you on that sigh! as far as doc vs nutritionist- both the regular doc that we go to and the second opinion that we went to are a team. the doc and nutritionist converse with each other and back each other on their opinions so asking one is like asking both, but the...

kts mom- i'm with you on that sigh! as far as doc vs nutritionist- both the regular doc that we go to and the second opinion that we went to are a team. the doc and nutritionist converse with each other and back each other on their opinions so asking one is like asking both, but the...

kts mom- i'm with you on that sigh! <br /> <br />as far as doc vs nutritionist- both the regular doc that we go to and the second opinion that we went to are a team. the doc and nutritionist converse with each other and back each other on their opinions so asking one is like asking both, but...

I would like to know any information on mucomyst. Do you like it, not like it, love it....Do you find it may help lessen infections such as Pseudomonas? Does it have any connection to weight gain? I am looking into it and would like to know as much feedback as possible- any type. Thanks.

I would like to know any information on mucomyst. Do you like it, not like it, love it....Do you find it may help lessen infections such as Pseudomonas? Does it have any connection to weight gain? I am looking into it and would like to know as much feedback as possible- any type. Thanks.

I would like to know any information on mucomyst. Do you like it, not like it, love it....Do you find it may help lessen infections such as Pseudomonas? Does it have any connection to weight gain? I am looking into it and would like to know as much feedback as possible- any type. Thanks.

will the chronic lung disease go away as he matures? will he grow out of that or is that always going to be an issue as he gets bigger?

will the chronic lung disease go away as he matures? will he grow out of that or is that always going to be an issue as he gets bigger?

will the chronic lung disease go away as he matures? will he grow out of that or is that always going to be an issue as he gets bigger?

It has been an ongoing discussion with our team. I also went for a second opinion because I was not comfortable with the direction they were taking. The other nutritionist suggested we use only as necessary and give a smaller dose just to make sure things are moving. My daughter had meconium...