5 out 8 children have now been tested

J

jdprecious

New member
Tina, I have just come across your post and I am absolutely amazed at how well your family has fared thus far with CF in the mix for 20+ years. This is no time to panic, actually the opposite. Now you have a name for all those annoying issues the kids had growing up (bad allergies, thinner, etc) but now there are great meds and tons of support at your disposal only increasing the chancens of each kids projected health!

That is how I felt at least when Jae was diagnosed. Finally, I figured out what it was and after so many years of pointing it out a Dr. finally said yes Ms. Day you are right!!! I felt so relieved. But I can see this is coming as a huge shock to your family, and I do not want to trivialize the disease in any way. I just meant to show you a way of looking at it from the opposite side of the coin. Heck, it may bring you all closer than ever if that is even possible!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Once you get the hang of the medicinal routine (nebs, vest,meds) learn a little lingo, I am sure your family will have this down pat like they do their sports!

Good luck to you all, I will be looking forward to all the updates!

Love, hugs, and prayers for the Holm Family!
Jess and fam
 
J

jdprecious

New member
Tina, I have just come across your post and I am absolutely amazed at how well your family has fared thus far with CF in the mix for 20+ years. This is no time to panic, actually the opposite. Now you have a name for all those annoying issues the kids had growing up (bad allergies, thinner, etc) but now there are great meds and tons of support at your disposal only increasing the chancens of each kids projected health!

That is how I felt at least when Jae was diagnosed. Finally, I figured out what it was and after so many years of pointing it out a Dr. finally said yes Ms. Day you are right!!! I felt so relieved. But I can see this is coming as a huge shock to your family, and I do not want to trivialize the disease in any way. I just meant to show you a way of looking at it from the opposite side of the coin. Heck, it may bring you all closer than ever if that is even possible!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Once you get the hang of the medicinal routine (nebs, vest,meds) learn a little lingo, I am sure your family will have this down pat like they do their sports!

Good luck to you all, I will be looking forward to all the updates!

Love, hugs, and prayers for the Holm Family!
Jess and fam
 
J

jdprecious

New member
Tina, I have just come across your post and I am absolutely amazed at how well your family has fared thus far with CF in the mix for 20+ years. This is no time to panic, actually the opposite. Now you have a name for all those annoying issues the kids had growing up (bad allergies, thinner, etc) but now there are great meds and tons of support at your disposal only increasing the chancens of each kids projected health!

That is how I felt at least when Jae was diagnosed. Finally, I figured out what it was and after so many years of pointing it out a Dr. finally said yes Ms. Day you are right!!! I felt so relieved. But I can see this is coming as a huge shock to your family, and I do not want to trivialize the disease in any way. I just meant to show you a way of looking at it from the opposite side of the coin. Heck, it may bring you all closer than ever if that is even possible!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Once you get the hang of the medicinal routine (nebs, vest,meds) learn a little lingo, I am sure your family will have this down pat like they do their sports!

Good luck to you all, I will be looking forward to all the updates!

Love, hugs, and prayers for the Holm Family!
Jess and fam
 
J

jdprecious

New member
Tina, I have just come across your post and I am absolutely amazed at how well your family has fared thus far with CF in the mix for 20+ years. This is no time to panic, actually the opposite. Now you have a name for all those annoying issues the kids had growing up (bad allergies, thinner, etc) but now there are great meds and tons of support at your disposal only increasing the chancens of each kids projected health!

That is how I felt at least when Jae was diagnosed. Finally, I figured out what it was and after so many years of pointing it out a Dr. finally said yes Ms. Day you are right!!! I felt so relieved. But I can see this is coming as a huge shock to your family, and I do not want to trivialize the disease in any way. I just meant to show you a way of looking at it from the opposite side of the coin. Heck, it may bring you all closer than ever if that is even possible!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Once you get the hang of the medicinal routine (nebs, vest,meds) learn a little lingo, I am sure your family will have this down pat like they do their sports!

Good luck to you all, I will be looking forward to all the updates!

Love, hugs, and prayers for the Holm Family!
Jess and fam
 
J

jdprecious

New member
Tina, I have just come across your post and I am absolutely amazed at how well your family has fared thus far with CF in the mix for 20+ years. This is no time to panic, actually the opposite. Now you have a name for all those annoying issues the kids had growing up (bad allergies, thinner, etc) but now there are great meds and tons of support at your disposal only increasing the chancens of each kids projected health!
<br />
<br />That is how I felt at least when Jae was diagnosed. Finally, I figured out what it was and after so many years of pointing it out a Dr. finally said yes Ms. Day you are right!!! I felt so relieved. But I can see this is coming as a huge shock to your family, and I do not want to trivialize the disease in any way. I just meant to show you a way of looking at it from the opposite side of the coin. Heck, it may bring you all closer than ever if that is even possible!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Once you get the hang of the medicinal routine (nebs, vest,meds) learn a little lingo, I am sure your family will have this down pat like they do their sports!
<br />
<br />Good luck to you all, I will be looking forward to all the updates!
<br />
<br />Love, hugs, and prayers for the Holm Family!
<br />Jess and fam
 
H

holmfamily1992

New member
You guys are completely right. I remember what it felt like when we received the news about Dylan. Everything was so new and overwhelming to say the least. But we found a way to make his treatments work for our family because it wasnt Dylan who only had to deal with it. If we couldnt be there when he got up (which was very rare) someone had to take our place. He knew what to do, they just had to make sure he did it.

And now knowing what has been going on with our childens health is a great relief. And just as you said Jess it a great relief just to know. Im scared to say the least but everyday its getting a little better.

We are putting together a team to walk in the Great Strides walk set for Sept 21st. Our goal here is to raise $5000 from area businesses, freinds and family. I think I mentioned it in another post but we are going to try and host a 3 on 3 basketball tournement to be held on Labor day weekend. That should bring in major funds. Im very excited about this. I should here from the foundation today.

Thank you and pray that I can remain strong no matter what happens.

Team EJ
Ps. To all of you who post your childrens pictures, They are beautiful!!

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
You guys are completely right. I remember what it felt like when we received the news about Dylan. Everything was so new and overwhelming to say the least. But we found a way to make his treatments work for our family because it wasnt Dylan who only had to deal with it. If we couldnt be there when he got up (which was very rare) someone had to take our place. He knew what to do, they just had to make sure he did it.

And now knowing what has been going on with our childens health is a great relief. And just as you said Jess it a great relief just to know. Im scared to say the least but everyday its getting a little better.

We are putting together a team to walk in the Great Strides walk set for Sept 21st. Our goal here is to raise $5000 from area businesses, freinds and family. I think I mentioned it in another post but we are going to try and host a 3 on 3 basketball tournement to be held on Labor day weekend. That should bring in major funds. Im very excited about this. I should here from the foundation today.

Thank you and pray that I can remain strong no matter what happens.

Team EJ
Ps. To all of you who post your childrens pictures, They are beautiful!!

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
You guys are completely right. I remember what it felt like when we received the news about Dylan. Everything was so new and overwhelming to say the least. But we found a way to make his treatments work for our family because it wasnt Dylan who only had to deal with it. If we couldnt be there when he got up (which was very rare) someone had to take our place. He knew what to do, they just had to make sure he did it.

And now knowing what has been going on with our childens health is a great relief. And just as you said Jess it a great relief just to know. Im scared to say the least but everyday its getting a little better.

We are putting together a team to walk in the Great Strides walk set for Sept 21st. Our goal here is to raise $5000 from area businesses, freinds and family. I think I mentioned it in another post but we are going to try and host a 3 on 3 basketball tournement to be held on Labor day weekend. That should bring in major funds. Im very excited about this. I should here from the foundation today.

Thank you and pray that I can remain strong no matter what happens.

Team EJ
Ps. To all of you who post your childrens pictures, They are beautiful!!

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
You guys are completely right. I remember what it felt like when we received the news about Dylan. Everything was so new and overwhelming to say the least. But we found a way to make his treatments work for our family because it wasnt Dylan who only had to deal with it. If we couldnt be there when he got up (which was very rare) someone had to take our place. He knew what to do, they just had to make sure he did it.

And now knowing what has been going on with our childens health is a great relief. And just as you said Jess it a great relief just to know. Im scared to say the least but everyday its getting a little better.

We are putting together a team to walk in the Great Strides walk set for Sept 21st. Our goal here is to raise $5000 from area businesses, freinds and family. I think I mentioned it in another post but we are going to try and host a 3 on 3 basketball tournement to be held on Labor day weekend. That should bring in major funds. Im very excited about this. I should here from the foundation today.

Thank you and pray that I can remain strong no matter what happens.

Team EJ
Ps. To all of you who post your childrens pictures, They are beautiful!!

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
H

holmfamily1992

New member
You guys are completely right. I remember what it felt like when we received the news about Dylan. Everything was so new and overwhelming to say the least. But we found a way to make his treatments work for our family because it wasnt Dylan who only had to deal with it. If we couldnt be there when he got up (which was very rare) someone had to take our place. He knew what to do, they just had to make sure he did it.
<br />
<br />And now knowing what has been going on with our childens health is a great relief. And just as you said Jess it a great relief just to know. Im scared to say the least but everyday its getting a little better.
<br />
<br />We are putting together a team to walk in the Great Strides walk set for Sept 21st. Our goal here is to raise $5000 from area businesses, freinds and family. I think I mentioned it in another post but we are going to try and host a 3 on 3 basketball tournement to be held on Labor day weekend. That should bring in major funds. Im very excited about this. I should here from the foundation today.
<br />
<br />Thank you and pray that I can remain strong no matter what happens.
<br />
<br />Team EJ
<br />Ps. To all of you who post your childrens pictures, They are beautiful!!
<br />
<br /><img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
C

Chilemom

New member
Tina
how is everything going? We havent heard any news from you and I am wondering how is the Holm Family?.
the rest of your kids are going to be test?. You and your husband?
hugs hugs for all of you
Fran and family
 
C

Chilemom

New member
Tina
how is everything going? We havent heard any news from you and I am wondering how is the Holm Family?.
the rest of your kids are going to be test?. You and your husband?
hugs hugs for all of you
Fran and family
 
C

Chilemom

New member
Tina
how is everything going? We havent heard any news from you and I am wondering how is the Holm Family?.
the rest of your kids are going to be test?. You and your husband?
hugs hugs for all of you
Fran and family
 
C

Chilemom

New member
Tina
how is everything going? We havent heard any news from you and I am wondering how is the Holm Family?.
the rest of your kids are going to be test?. You and your husband?
hugs hugs for all of you
Fran and family
 
C

Chilemom

New member
Tina
<br />how is everything going? We havent heard any news from you and I am wondering how is the Holm Family?.
<br />the rest of your kids are going to be test?. You and your husband?
<br />hugs hugs for all of you
<br />Fran and family
 
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