A few questions about sudden FEV1 drop

A

Alexander

New member
Hi Nightwriter,
my last reply was for Landy, but you were faster than me.

Here is yours:
As far as I know im only a little allergic to dogs. I did use anti-allergy tablets for as long as 3 weeks, but nothing changed. So it cant be any allergy.
My doctor said it wouldnt be asthma causing it.

My guess is it could be one of the minor bacteria i have, such as aspergilles.
Although both my doctors (german and american) say it cant be only coming from aspergilles.

I sure would like to know though how far I can get my FEV1 back up. I'm sure my lungs still have alot of potential FEV1.
 
A

Alexander

New member
Hi Nightwriter,
my last reply was for Landy, but you were faster than me.

Here is yours:
As far as I know im only a little allergic to dogs. I did use anti-allergy tablets for as long as 3 weeks, but nothing changed. So it cant be any allergy.
My doctor said it wouldnt be asthma causing it.

My guess is it could be one of the minor bacteria i have, such as aspergilles.
Although both my doctors (german and american) say it cant be only coming from aspergilles.

I sure would like to know though how far I can get my FEV1 back up. I'm sure my lungs still have alot of potential FEV1.
 
A

Alexander

New member
Hi Nightwriter,
my last reply was for Landy, but you were faster than me.

Here is yours:
As far as I know im only a little allergic to dogs. I did use anti-allergy tablets for as long as 3 weeks, but nothing changed. So it cant be any allergy.
My doctor said it wouldnt be asthma causing it.

My guess is it could be one of the minor bacteria i have, such as aspergilles.
Although both my doctors (german and american) say it cant be only coming from aspergilles.

I sure would like to know though how far I can get my FEV1 back up. I'm sure my lungs still have alot of potential FEV1.
 
A

Alexander

New member
Hi Nightwriter,
my last reply was for Landy, but you were faster than me.

Here is yours:
As far as I know im only a little allergic to dogs. I did use anti-allergy tablets for as long as 3 weeks, but nothing changed. So it cant be any allergy.
My doctor said it wouldnt be asthma causing it.

My guess is it could be one of the minor bacteria i have, such as aspergilles.
Although both my doctors (german and american) say it cant be only coming from aspergilles.

I sure would like to know though how far I can get my FEV1 back up. I'm sure my lungs still have alot of potential FEV1.
 
A

Alexander

New member
Hi Nightwriter,
<br />my last reply was for Landy, but you were faster than me.
<br />
<br />Here is yours:
<br />As far as I know im only a little allergic to dogs. I did use anti-allergy tablets for as long as 3 weeks, but nothing changed. So it cant be any allergy.
<br />My doctor said it wouldnt be asthma causing it.
<br />
<br />My guess is it could be one of the minor bacteria i have, such as aspergilles.
<br />Although both my doctors (german and american) say it cant be only coming from aspergilles.
<br />
<br />I sure would like to know though how far I can get my FEV1 back up. I'm sure my lungs still have alot of potential FEV1.
<br />
<br />
<br />
<br />
 
L

lilywing

New member
Hi Alexander
Have your doctors ruled out ABPA? I believe it stands for Allergic BronchoPulmonary Aspergillosis, and it is an allergic response to aspergillus. The diagnosis is usually reached after specific allergy tests, measures of your IgE, and aspergillus cultures.
I'm just wondering, because I, too, have experienced a significant drop in my lung function over the last year. My FEV1 went from 85% to 40% in the space of about 6 months. After repeated hospitalizations and rounds of home IV drugs during the first half of '08, I was seen by a new doctor in July, who confirmed that aspergillus was present in my lungs, and later, that I have ABPA. I had a CT scan as well, which showed that I have sustained relatively normal (for CF) damage to my lungs over my 30 years, (so nothing alarming that would cause such a drastic drop in my FEV1).
Maybe you have been tested and confirmed negative for ABPA, but if not... I just thought the description of your disease was quite similar to my own. Maybe this helps.
 
L

lilywing

New member
Hi Alexander
Have your doctors ruled out ABPA? I believe it stands for Allergic BronchoPulmonary Aspergillosis, and it is an allergic response to aspergillus. The diagnosis is usually reached after specific allergy tests, measures of your IgE, and aspergillus cultures.
I'm just wondering, because I, too, have experienced a significant drop in my lung function over the last year. My FEV1 went from 85% to 40% in the space of about 6 months. After repeated hospitalizations and rounds of home IV drugs during the first half of '08, I was seen by a new doctor in July, who confirmed that aspergillus was present in my lungs, and later, that I have ABPA. I had a CT scan as well, which showed that I have sustained relatively normal (for CF) damage to my lungs over my 30 years, (so nothing alarming that would cause such a drastic drop in my FEV1).
Maybe you have been tested and confirmed negative for ABPA, but if not... I just thought the description of your disease was quite similar to my own. Maybe this helps.
 
L

lilywing

New member
Hi Alexander
Have your doctors ruled out ABPA? I believe it stands for Allergic BronchoPulmonary Aspergillosis, and it is an allergic response to aspergillus. The diagnosis is usually reached after specific allergy tests, measures of your IgE, and aspergillus cultures.
I'm just wondering, because I, too, have experienced a significant drop in my lung function over the last year. My FEV1 went from 85% to 40% in the space of about 6 months. After repeated hospitalizations and rounds of home IV drugs during the first half of '08, I was seen by a new doctor in July, who confirmed that aspergillus was present in my lungs, and later, that I have ABPA. I had a CT scan as well, which showed that I have sustained relatively normal (for CF) damage to my lungs over my 30 years, (so nothing alarming that would cause such a drastic drop in my FEV1).
Maybe you have been tested and confirmed negative for ABPA, but if not... I just thought the description of your disease was quite similar to my own. Maybe this helps.
 
L

lilywing

New member
Hi Alexander
Have your doctors ruled out ABPA? I believe it stands for Allergic BronchoPulmonary Aspergillosis, and it is an allergic response to aspergillus. The diagnosis is usually reached after specific allergy tests, measures of your IgE, and aspergillus cultures.
I'm just wondering, because I, too, have experienced a significant drop in my lung function over the last year. My FEV1 went from 85% to 40% in the space of about 6 months. After repeated hospitalizations and rounds of home IV drugs during the first half of '08, I was seen by a new doctor in July, who confirmed that aspergillus was present in my lungs, and later, that I have ABPA. I had a CT scan as well, which showed that I have sustained relatively normal (for CF) damage to my lungs over my 30 years, (so nothing alarming that would cause such a drastic drop in my FEV1).
Maybe you have been tested and confirmed negative for ABPA, but if not... I just thought the description of your disease was quite similar to my own. Maybe this helps.
 
L

lilywing

New member
Hi Alexander
<br />Have your doctors ruled out ABPA? I believe it stands for Allergic BronchoPulmonary Aspergillosis, and it is an allergic response to aspergillus. The diagnosis is usually reached after specific allergy tests, measures of your IgE, and aspergillus cultures.
<br />I'm just wondering, because I, too, have experienced a significant drop in my lung function over the last year. My FEV1 went from 85% to 40% in the space of about 6 months. After repeated hospitalizations and rounds of home IV drugs during the first half of '08, I was seen by a new doctor in July, who confirmed that aspergillus was present in my lungs, and later, that I have ABPA. I had a CT scan as well, which showed that I have sustained relatively normal (for CF) damage to my lungs over my 30 years, (so nothing alarming that would cause such a drastic drop in my FEV1).
<br />Maybe you have been tested and confirmed negative for ABPA, but if not... I just thought the description of your disease was quite similar to my own. Maybe this helps.
 
A

Alexander

New member
Hi Lilywing,
well, I would have to ask my doctor about ABPA. But as I have mentioned before, those anti-allergy tablets did not work for me, unless you need specific meds for ABPA.
I see I'm not alone with this sudden FEV1-drop-phenomenon.
Thanks for your suggestion.

I must say that going from 85% to 40% within 6 months is also a very large jump. I hope you will be able to regain your FEV1 level soon!
 
A

Alexander

New member
Hi Lilywing,
well, I would have to ask my doctor about ABPA. But as I have mentioned before, those anti-allergy tablets did not work for me, unless you need specific meds for ABPA.
I see I'm not alone with this sudden FEV1-drop-phenomenon.
Thanks for your suggestion.

I must say that going from 85% to 40% within 6 months is also a very large jump. I hope you will be able to regain your FEV1 level soon!
 
A

Alexander

New member
Hi Lilywing,
well, I would have to ask my doctor about ABPA. But as I have mentioned before, those anti-allergy tablets did not work for me, unless you need specific meds for ABPA.
I see I'm not alone with this sudden FEV1-drop-phenomenon.
Thanks for your suggestion.

I must say that going from 85% to 40% within 6 months is also a very large jump. I hope you will be able to regain your FEV1 level soon!
 
A

Alexander

New member
Hi Lilywing,
well, I would have to ask my doctor about ABPA. But as I have mentioned before, those anti-allergy tablets did not work for me, unless you need specific meds for ABPA.
I see I'm not alone with this sudden FEV1-drop-phenomenon.
Thanks for your suggestion.

I must say that going from 85% to 40% within 6 months is also a very large jump. I hope you will be able to regain your FEV1 level soon!
 
A

Alexander

New member
Hi Lilywing,
<br />well, I would have to ask my doctor about ABPA. But as I have mentioned before, those anti-allergy tablets did not work for me, unless you need specific meds for ABPA.
<br />I see I'm not alone with this sudden FEV1-drop-phenomenon.
<br />Thanks for your suggestion.
<br />
<br />I must say that going from 85% to 40% within 6 months is also a very large jump. I hope you will be able to regain your FEV1 level soon!
 
L

lilywing

New member
Thanks, Alexander
<br />ABPA is usually treated with prednisone. It's worth ruling out (hopefully!).
<br />Take care
 
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