Nightwriter
New member
Hi Alexander,
It's funny that doctors say that CF patients don't have asthma when they give them asthma medicine like bronchidilators and prednisone. Both are for ASTHMA. Prednisone specifically reduces the inflammation, opening up airways which is due to an asthma component. I was also told I did not have asthma. And when my new doctor not only proved it to me, but treated it, my lung function went from a low of 32% with a baseline of 37% back up to 54% where it is now. Like I said I have extensive damage so there is a limit to high it can go.
Taking asthma medicine for 3 weeks will do nothing. There is no medicine that can block the over 300 hormones that contribute to inflammation and asthma. For instance Benadril only blocks three hormones. And medicine alone is currently very limited when you keep exposing yourself to the things that are causing the asthma.
In someone like me, I test pretty much negative to everything. But then again there aren't tests for everything. It's just that if you are allergic and the tests show this, you are lucky, because you can avoid certain triggers.
I am chemically sensitive. There are no tests for this, but the doctor, after certain blood tests like an IGE test plus others, allergy skin testing, plus my own observations once I knew what to look for --once dealt with -- stopped constant infections, annoying SOB symptoms and improved my FEV1.
The clue for you is it bouncing all around UP and down. You may have the bacterial or fungal infections other people are mentioning. But all these things are also correlated with inflammation which can be reduced. The fact that your FEV1 goes UP wildly then down is typical of asthma.
You are new here, and I have talked about different things that I have done in regards to improving lung function and reducing infection by reducing the allergy triggers, reducing post nasal drips, initiating lifestyle changes, the list goes on but it includes anything that will reduce inflammation. My doctor does this with her all respiratory patients with great success. You'd be surprised at how much IS in your control.
It's funny that doctors say that CF patients don't have asthma when they give them asthma medicine like bronchidilators and prednisone. Both are for ASTHMA. Prednisone specifically reduces the inflammation, opening up airways which is due to an asthma component. I was also told I did not have asthma. And when my new doctor not only proved it to me, but treated it, my lung function went from a low of 32% with a baseline of 37% back up to 54% where it is now. Like I said I have extensive damage so there is a limit to high it can go.
Taking asthma medicine for 3 weeks will do nothing. There is no medicine that can block the over 300 hormones that contribute to inflammation and asthma. For instance Benadril only blocks three hormones. And medicine alone is currently very limited when you keep exposing yourself to the things that are causing the asthma.
In someone like me, I test pretty much negative to everything. But then again there aren't tests for everything. It's just that if you are allergic and the tests show this, you are lucky, because you can avoid certain triggers.
I am chemically sensitive. There are no tests for this, but the doctor, after certain blood tests like an IGE test plus others, allergy skin testing, plus my own observations once I knew what to look for --once dealt with -- stopped constant infections, annoying SOB symptoms and improved my FEV1.
The clue for you is it bouncing all around UP and down. You may have the bacterial or fungal infections other people are mentioning. But all these things are also correlated with inflammation which can be reduced. The fact that your FEV1 goes UP wildly then down is typical of asthma.
You are new here, and I have talked about different things that I have done in regards to improving lung function and reducing infection by reducing the allergy triggers, reducing post nasal drips, initiating lifestyle changes, the list goes on but it includes anything that will reduce inflammation. My doctor does this with her all respiratory patients with great success. You'd be surprised at how much IS in your control.