We have taken our son camping in a tent once. Everything went great except for the campfire smoke was terrible. It was on Memorial Day weekend though and the campgrounds were packed. If we did it again I would find a campground that did not allow campfires...and there are plenty around. We did recently buy a travel trailer though and our son with CF was one of the reasons we decided it would be worth the investment. So in my opinion take the extra precautions that are necessary but go tent camping and have a great time!!
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- Thread starter kaylasdad
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We have taken our son camping in a tent once. Everything went great except for the campfire smoke was terrible. It was on Memorial Day weekend though and the campgrounds were packed. If we did it again I would find a campground that did not allow campfires...and there are plenty around. We did recently buy a travel trailer though and our son with CF was one of the reasons we decided it would be worth the investment. So in my opinion take the extra precautions that are necessary but go tent camping and have a great time!!
We have taken our son camping in a tent once. Everything went great except for the campfire smoke was terrible. It was on Memorial Day weekend though and the campgrounds were packed. If we did it again I would find a campground that did not allow campfires...and there are plenty around. We did recently buy a travel trailer though and our son with CF was one of the reasons we decided it would be worth the investment. So in my opinion take the extra precautions that are necessary but go tent camping and have a great time!!
We have taken our son camping in a tent once. Everything went great except for the campfire smoke was terrible. It was on Memorial Day weekend though and the campgrounds were packed. If we did it again I would find a campground that did not allow campfires...and there are plenty around. We did recently buy a travel trailer though and our son with CF was one of the reasons we decided it would be worth the investment. So in my opinion take the extra precautions that are necessary but go tent camping and have a great time!!
We have taken our son camping in a tent once. Everything went great except for the campfire smoke was terrible. It was on Memorial Day weekend though and the campgrounds were packed. If we did it again I would find a campground that did not allow campfires...and there are plenty around. We did recently buy a travel trailer though and our son with CF was one of the reasons we decided it would be worth the investment. So in my opinion take the extra precautions that are necessary but go tent camping and have a great time!!
I used to go camping a lot when I was younger. My seasonal allergies didn't kick in until I was in college. Does your little one have seasonal allergies? If not, I don't think the greenery should be a problem. Also, I don't think sleeping in a tent would have any negative effect--as long as she was warm enough. Honestly, even with my seasonal allergies, I'd go camping. I'd just take Benadryl or something. I'd probably avoid the bathrooms other than for #2 and I'd bring antibacterial wipes/hand sanitizer.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I used to go camping a lot when I was younger. My seasonal allergies didn't kick in until I was in college. Does your little one have seasonal allergies? If not, I don't think the greenery should be a problem. Also, I don't think sleeping in a tent would have any negative effect--as long as she was warm enough. Honestly, even with my seasonal allergies, I'd go camping. I'd just take Benadryl or something. I'd probably avoid the bathrooms other than for #2 and I'd bring antibacterial wipes/hand sanitizer.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I used to go camping a lot when I was younger. My seasonal allergies didn't kick in until I was in college. Does your little one have seasonal allergies? If not, I don't think the greenery should be a problem. Also, I don't think sleeping in a tent would have any negative effect--as long as she was warm enough. Honestly, even with my seasonal allergies, I'd go camping. I'd just take Benadryl or something. I'd probably avoid the bathrooms other than for #2 and I'd bring antibacterial wipes/hand sanitizer.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I used to go camping a lot when I was younger. My seasonal allergies didn't kick in until I was in college. Does your little one have seasonal allergies? If not, I don't think the greenery should be a problem. Also, I don't think sleeping in a tent would have any negative effect--as long as she was warm enough. Honestly, even with my seasonal allergies, I'd go camping. I'd just take Benadryl or something. I'd probably avoid the bathrooms other than for #2 and I'd bring antibacterial wipes/hand sanitizer.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
I used to go camping a lot when I was younger. My seasonal allergies didn't kick in until I was in college. Does your little one have seasonal allergies? If not, I don't think the greenery should be a problem. Also, I don't think sleeping in a tent would have any negative effect--as long as she was warm enough. Honestly, even with my seasonal allergies, I'd go camping. I'd just take Benadryl or something. I'd probably avoid the bathrooms other than for #2 and I'd bring antibacterial wipes/hand sanitizer.
<br />
<br />I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
<br />
<br />I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
<br />
<br />I would have her avoid the campfire smoke as much as possible, too. I've noticed that I've become more sensitive to the smoke as I've gotten older. Although, honestly, as long as it's a rare instance, I still sometimes will go to someone's house where they have a fire going in their firepit and I hang out around it. I just try to stay pretty far back from it without completely being away from the rest of the group.
<br />
<br />I think I'd be really disappointed in the quality of my life if my parents had avoided everything because of my CF.
Nightwriter
New member
At the risk, of having you all hate me, I must try again to convince Joe and any others who are on the fence -- that the worst possible thing would be exposing his BABY, your child, or a CF person to smoke of ANY kind. To the people who want to camp no matter what the facts are, this post is NOT for you.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Nightwriter
New member
At the risk, of having you all hate me, I must try again to convince Joe and any others who are on the fence -- that the worst possible thing would be exposing his BABY, your child, or a CF person to smoke of ANY kind. To the people who want to camp no matter what the facts are, this post is NOT for you.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Nightwriter
New member
At the risk, of having you all hate me, I must try again to convince Joe and any others who are on the fence -- that the worst possible thing would be exposing his BABY, your child, or a CF person to smoke of ANY kind. To the people who want to camp no matter what the facts are, this post is NOT for you.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Nightwriter
New member
At the risk, of having you all hate me, I must try again to convince Joe and any others who are on the fence -- that the worst possible thing would be exposing his BABY, your child, or a CF person to smoke of ANY kind. To the people who want to camp no matter what the facts are, this post is NOT for you.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
Nightwriter
New member
At the risk, of having you all hate me, I must try again to convince Joe and any others who are on the fence -- that the worst possible thing would be exposing his BABY, your child, or a CF person to smoke of ANY kind. To the people who want to camp no matter what the facts are, this post is NOT for you.
<br />
<br />Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
<br />
<br />Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
<br />
<br />The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
<br />
<br />Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
<br />
<br />Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
<br />
<br />This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
<br />
<br />Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
<br />And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
<br />
<br />I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
<br />
<br />The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
<br />
<br />Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
<br />
<br />As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
<br />
<br />Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
<br />
<br />I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
<br />
<br />Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
<br />
<br />
<br />Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />Babies with CF are born with NORMAL LUNGS. But soon after birth, inflammation and infection damage them. There are lots of things that cause inflammation. You can protect the lungs. This is one of the KEY ways to stay well. Avoid inflammation which in turn can prevent and lessen the incidences of infection.
<br />
<br />Joe, since you asked: It may be true that people have different opinions on whether to expose someone with C.F., much less a BABY to camping, and particularly smoke from fires. But these are the FACTS:
<br />
<br />The facts: Smoke from theses fires produce fine particulate matter that penetrate deep into the lungs causing serious damage. And it is particularly dangerous for children because they have smaller lungs and their immune systems are less mature. Also, the lungs are the only organ in the body that has no protective covering. What you breathe goes directly to the lungs. And standing away from a campfire will make no difference. The particulates are in the air. You or your child are breathing them in - they are not diluted in any way.
<br />
<br />Did you know that a recent study showed a genetic connection between second hand smoke and people with CF?
<br />
<br />Researchers at Johns Hopkins have discovered the first genetic evidence that secondhand smoke can worsen lung disease. The report in a recent Journal of the American Medical Association describes one gene variation that can weaken lung function as well as SHORTEN THE LIFESPAN of those affected by cystic fibrosis and also are exposed to secondhand smoke. (Can you imagine what damage A CAMPFIRE would do?)
<br />
<br />This is the first of it's kind to even show there is DNA evidence that predisposes people with cystic fibrosis to smoke - shortening their lifespan, not to mention quality of life.
<br />
<br />Smoke permanently damages lungs. This is a disease with a median lifespan of 37. You must do everything possible to prevent decline to live a much longer, healthier life. Past 37!
<br />And by saying that it doesn't bother someone or that they cough slightly? Or that they have mild CF? Smoke exposure affects you in an irreversible way.
<br />
<br />I had NO C.F. symptoms at all until I was 21. And at one point my disease progressed to a stage of being transplantable with bronchiectasis and an FEV1 of 32%, coughing up CUPS of blood. This does not happen overnight! I have worked so hard to make it back from there. I have extensive lung damage that could have been been prevented. I know EVERY exposure is cumulative.
<br />
<br />The people who are severe didn't just wake up one morning and suddenly were extreme. I know someone on this site who was very mild and his CF was triggered after a campfire. (I can PM you his name). And he is not the only one I can cite you.
<br />
<br />Some things are not necessary or worth it. Camping is not worth it. There are things to make a childhood great without knowingly contributing to lung damage. Because once those exacerbations begin or a lifetime of IV meds begins, you will kick yourself. I have been on both ends of the spectrum. Being sick all the time sucks. Sorry for the bluntness.
<br />
<br />As a parent, you would put a helmet on your child if they were riding a bike. Why wouldn't you protect their lungs - which have a genetic predisposition for weakness.
<br />
<br />Barbecue/campfire smoke has NEVER made me cough. And I never noticed any connection between any campfire/barbeque and exacerbations in the past. But now I get sick soon after even the slightest exposure. That's what eventually happens. And if people are getting sick, they cannot say smoke is not a contributing factor.
<br />
<br />I love nature, but my doctor said it is imperative to be out enjoying nature where the air is clean -- places like Colorado, New Mexico, or near the beach. And getting away from City air? Smoke is NOT fresh air.
<br />
<br />Greenery and dampness, pollen, fungus, molds, not great for lungs. You will see that people on this site who move to damp climates with a lot of greenery around start getting sick.
<br />
<br />
<br />Remember, even if there is no immediate reaction, these kinds of exposures build, making the lungs more vulnerable to exacerbations. And when this happens, the real problems with CF kick in.
<br />
<br />
<br />
<br />
<br />
<br />
rubyroselee
New member
Hi Joe,
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
rubyroselee
New member
Hi Joe,
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
rubyroselee
New member
Hi Joe,
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
rubyroselee
New member
Hi Joe,
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
This is my perspective...
I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
So I say, have a great time camping and don't worry too much!
rubyroselee
New member
Hi Joe,
<br />
<br />This is my perspective...
<br />I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
<br />
<br />So I say, have a great time camping and don't worry too much!
<br />
<br />This is my perspective...
<br />I have gone camping since I was a little baby, every year in fact. It's one of those things that my family always did with us kids every summer. And I do think those were some of the best vacations ever. The relaxation, nature, being away from everyday life...and I would never trade that for anything! I always tried my best to stay away from the campfire smoke. I never had a problem with the outdoors bothering me, but it may be bothersome if your child has allergies. And my philosophy continues to revolve around doing everything I want to do and not limiting myself because of CF, as long as it's not going to be absolutely detrimental to my health. I think as long as you take proper precautions by not being directly in smoke's path and things like that, then she should be just fine.
<br />
<br />So I say, have a great time camping and don't worry too much!