?? about GI probs as symptom

[NFitzgerald]

?? about GI probs as symptoms

Your story sounds very familiar to me... not the rectal prolapse portion, but the rest is very familiar. The interesting thing is it is familiar in my daughter, my child that does NOT have CF. She had severe GI issues for 2 years before she was diagnosed with GERD and a milk (casein/whey protein) and soy protein allergy. Almost immediately after stopping these foods and starting prevacid and zantac she was a whole new child.
Our son with CF has also been diagnosed with a milk allergy, however, he had already been diagnosed with CF by that time, and the symptoms were the same as his sisters had been.

 

[NFitzgerald]

?? about GI probs as symptoms

Your story sounds very familiar to me... not the rectal prolapse portion, but the rest is very familiar. The interesting thing is it is familiar in my daughter, my child that does NOT have CF. She had severe GI issues for 2 years before she was diagnosed with GERD and a milk (casein/whey protein) and soy protein allergy. Almost immediately after stopping these foods and starting prevacid and zantac she was a whole new child.
Our son with CF has also been diagnosed with a milk allergy, however, he had already been diagnosed with CF by that time, and the symptoms were the same as his sisters had been.

 

[NFitzgerald]

?? about GI probs as symptoms

Your story sounds very familiar to me... not the rectal prolapse portion, but the rest is very familiar. The interesting thing is it is familiar in my daughter, my child that does NOT have CF. She had severe GI issues for 2 years before she was diagnosed with GERD and a milk (casein/whey protein) and soy protein allergy. Almost immediately after stopping these foods and starting prevacid and zantac she was a whole new child.
Our son with CF has also been diagnosed with a milk allergy, however, he had already been diagnosed with CF by that time, and the symptoms were the same as his sisters had been.

 

[NFitzgerald]

?? about GI probs as symptoms

Your story sounds very familiar to me... not the rectal prolapse portion, but the rest is very familiar. The interesting thing is it is familiar in my daughter, my child that does NOT have CF. She had severe GI issues for 2 years before she was diagnosed with GERD and a milk (casein/whey protein) and soy protein allergy. Almost immediately after stopping these foods and starting prevacid and zantac she was a whole new child.
Our son with CF has also been diagnosed with a milk allergy, however, he had already been diagnosed with CF by that time, and the symptoms were the same as his sisters had been.

 

[NFitzgerald]

?? about GI probs as symptoms

Your story sounds very familiar to me... not the rectal prolapse portion, but the rest is very familiar. The interesting thing is it is familiar in my daughter, my child that does NOT have CF. She had severe GI issues for 2 years before she was diagnosed with GERD and a milk (casein/whey protein) and soy protein allergy. Almost immediately after stopping these foods and starting prevacid and zantac she was a whole new child.
Our son with CF has also been diagnosed with a milk allergy, however, he had already been diagnosed with CF by that time, and the symptoms were the same as his sisters had been.

 

[BrsMiney]

?? about GI probs as symptoms

Well our surgeon's office called back and scheduled us for a sweat test (Friday 10:00 am cst). I am not sure if that is based on him thinking we are at a higher risk than originally thought, or if he is just responding to my concerns. We haven't had a prolapse since Thursday so that had me feeling better, but I ran across a blurb on an opthamalogy site that amblyopia is a common problem in CF, and my son has that... so that was a bit of another concern.

We were told to make sure he is well hydrated for the test, but what (if anything) else should I be aware of? It is my understanding that he might be hooked up to the electrodes for 1-1/2 hrs. DS has never stayed still for 5 minutes, let alone 1-1/2 hrs. Will they put him under?? Otherwise I picture this crazed little toddler in glasses and a hospital gown running through the children's hospital trailing the wires from his electrodes behind him as he terrorizes the place!

Please share your sweat test stories...

Thanks,
-J

 

[BrsMiney]

?? about GI probs as symptoms

Well our surgeon's office called back and scheduled us for a sweat test (Friday 10:00 am cst). I am not sure if that is based on him thinking we are at a higher risk than originally thought, or if he is just responding to my concerns. We haven't had a prolapse since Thursday so that had me feeling better, but I ran across a blurb on an opthamalogy site that amblyopia is a common problem in CF, and my son has that... so that was a bit of another concern.

We were told to make sure he is well hydrated for the test, but what (if anything) else should I be aware of? It is my understanding that he might be hooked up to the electrodes for 1-1/2 hrs. DS has never stayed still for 5 minutes, let alone 1-1/2 hrs. Will they put him under?? Otherwise I picture this crazed little toddler in glasses and a hospital gown running through the children's hospital trailing the wires from his electrodes behind him as he terrorizes the place!

Please share your sweat test stories...

Thanks,
-J

 

[BrsMiney]

?? about GI probs as symptoms

Well our surgeon's office called back and scheduled us for a sweat test (Friday 10:00 am cst). I am not sure if that is based on him thinking we are at a higher risk than originally thought, or if he is just responding to my concerns. We haven't had a prolapse since Thursday so that had me feeling better, but I ran across a blurb on an opthamalogy site that amblyopia is a common problem in CF, and my son has that... so that was a bit of another concern.

We were told to make sure he is well hydrated for the test, but what (if anything) else should I be aware of? It is my understanding that he might be hooked up to the electrodes for 1-1/2 hrs. DS has never stayed still for 5 minutes, let alone 1-1/2 hrs. Will they put him under?? Otherwise I picture this crazed little toddler in glasses and a hospital gown running through the children's hospital trailing the wires from his electrodes behind him as he terrorizes the place!

Please share your sweat test stories...

Thanks,
-J

 

[BrsMiney]

?? about GI probs as symptoms

Well our surgeon's office called back and scheduled us for a sweat test (Friday 10:00 am cst). I am not sure if that is based on him thinking we are at a higher risk than originally thought, or if he is just responding to my concerns. We haven't had a prolapse since Thursday so that had me feeling better, but I ran across a blurb on an opthamalogy site that amblyopia is a common problem in CF, and my son has that... so that was a bit of another concern.

We were told to make sure he is well hydrated for the test, but what (if anything) else should I be aware of? It is my understanding that he might be hooked up to the electrodes for 1-1/2 hrs. DS has never stayed still for 5 minutes, let alone 1-1/2 hrs. Will they put him under?? Otherwise I picture this crazed little toddler in glasses and a hospital gown running through the children's hospital trailing the wires from his electrodes behind him as he terrorizes the place!

Please share your sweat test stories...

Thanks,
-J

 

[BrsMiney]

?? about GI probs as symptoms

Well our surgeon's office called back and scheduled us for a sweat test (Friday 10:00 am cst). I am not sure if that is based on him thinking we are at a higher risk than originally thought, or if he is just responding to my concerns. We haven't had a prolapse since Thursday so that had me feeling better, but I ran across a blurb on an opthamalogy site that amblyopia is a common problem in CF, and my son has that... so that was a bit of another concern.

We were told to make sure he is well hydrated for the test, but what (if anything) else should I be aware of? It is my understanding that he might be hooked up to the electrodes for 1-1/2 hrs. DS has never stayed still for 5 minutes, let alone 1-1/2 hrs. Will they put him under?? Otherwise I picture this crazed little toddler in glasses and a hospital gown running through the children's hospital trailing the wires from his electrodes behind him as he terrorizes the place!

Please share your sweat test stories...

Thanks,
-J

 

[Ratatosk]

?? about GI probs as symptoms

Suppose they want to make sure he sweats -- that they get a good enough sample. DS's test wasn't electrodes -- it was a patch they put on his arm, covered with gauze or a bandage. Left it on for a certain amount of time... His was a normal 32 <img src="i/expressions/face-icon-small-confused.gif" border="0">

I did read on another site about the sweat chloride test with the electrodes. Maybe someone else here has some insight.

 

[Ratatosk]

?? about GI probs as symptoms

Suppose they want to make sure he sweats -- that they get a good enough sample. DS's test wasn't electrodes -- it was a patch they put on his arm, covered with gauze or a bandage. Left it on for a certain amount of time... His was a normal 32 <img src="i/expressions/face-icon-small-confused.gif" border="0">

I did read on another site about the sweat chloride test with the electrodes. Maybe someone else here has some insight.

 

[Ratatosk]

?? about GI probs as symptoms

Suppose they want to make sure he sweats -- that they get a good enough sample. DS's test wasn't electrodes -- it was a patch they put on his arm, covered with gauze or a bandage. Left it on for a certain amount of time... His was a normal 32 <img src="i/expressions/face-icon-small-confused.gif" border="0">

I did read on another site about the sweat chloride test with the electrodes. Maybe someone else here has some insight.

 

[Ratatosk]

?? about GI probs as symptoms

Suppose they want to make sure he sweats -- that they get a good enough sample. DS's test wasn't electrodes -- it was a patch they put on his arm, covered with gauze or a bandage. Left it on for a certain amount of time... His was a normal 32 <img src="i/expressions/face-icon-small-confused.gif" border="0">

I did read on another site about the sweat chloride test with the electrodes. Maybe someone else here has some insight.

 

[Ratatosk]

?? about GI probs as symptoms

Suppose they want to make sure he sweats -- that they get a good enough sample. DS's test wasn't electrodes -- it was a patch they put on his arm, covered with gauze or a bandage. Left it on for a certain amount of time... His was a normal 32 <img src="i/expressions/face-icon-small-confused.gif" border="0">

I did read on another site about the sweat chloride test with the electrodes. Maybe someone else here has some insight.

 

[Buckeye]

?? about GI probs as symptoms

I had never heard of the Amblyopia link to CF before, but my son has Strabismus which I guess must be the same thing or similar (his eyes don't look in the same direction all the time). As for the sweat test he will only be hooked up to the electrodes for five minutes. They put a chemical on his skin, put this pad on it with an electrode and they leave that on for 5 minutes (he does need to sit there for the five minutes though - there isn't really long wires on the electrodes and you want to have good contact for the entire 5 minutes). Then they put either a collection pad or coil on that spot. I can't remember if it's 1/2 hour or a full hour that you leave that on, but we just walked around the hospital until it was time to go back and have it taken off. Fairly simple and non-invasive test.

 

[Buckeye]

?? about GI probs as symptoms

I had never heard of the Amblyopia link to CF before, but my son has Strabismus which I guess must be the same thing or similar (his eyes don't look in the same direction all the time). As for the sweat test he will only be hooked up to the electrodes for five minutes. They put a chemical on his skin, put this pad on it with an electrode and they leave that on for 5 minutes (he does need to sit there for the five minutes though - there isn't really long wires on the electrodes and you want to have good contact for the entire 5 minutes). Then they put either a collection pad or coil on that spot. I can't remember if it's 1/2 hour or a full hour that you leave that on, but we just walked around the hospital until it was time to go back and have it taken off. Fairly simple and non-invasive test.

 

[Buckeye]

?? about GI probs as symptoms

I had never heard of the Amblyopia link to CF before, but my son has Strabismus which I guess must be the same thing or similar (his eyes don't look in the same direction all the time). As for the sweat test he will only be hooked up to the electrodes for five minutes. They put a chemical on his skin, put this pad on it with an electrode and they leave that on for 5 minutes (he does need to sit there for the five minutes though - there isn't really long wires on the electrodes and you want to have good contact for the entire 5 minutes). Then they put either a collection pad or coil on that spot. I can't remember if it's 1/2 hour or a full hour that you leave that on, but we just walked around the hospital until it was time to go back and have it taken off. Fairly simple and non-invasive test.

 

[Buckeye]

?? about GI probs as symptoms

I had never heard of the Amblyopia link to CF before, but my son has Strabismus which I guess must be the same thing or similar (his eyes don't look in the same direction all the time). As for the sweat test he will only be hooked up to the electrodes for five minutes. They put a chemical on his skin, put this pad on it with an electrode and they leave that on for 5 minutes (he does need to sit there for the five minutes though - there isn't really long wires on the electrodes and you want to have good contact for the entire 5 minutes). Then they put either a collection pad or coil on that spot. I can't remember if it's 1/2 hour or a full hour that you leave that on, but we just walked around the hospital until it was time to go back and have it taken off. Fairly simple and non-invasive test.

 

[Buckeye]

?? about GI probs as symptoms

I had never heard of the Amblyopia link to CF before, but my son has Strabismus which I guess must be the same thing or similar (his eyes don't look in the same direction all the time). As for the sweat test he will only be hooked up to the electrodes for five minutes. They put a chemical on his skin, put this pad on it with an electrode and they leave that on for 5 minutes (he does need to sit there for the five minutes though - there isn't really long wires on the electrodes and you want to have good contact for the entire 5 minutes). Then they put either a collection pad or coil on that spot. I can't remember if it's 1/2 hour or a full hour that you leave that on, but we just walked around the hospital until it was time to go back and have it taken off. Fairly simple and non-invasive test.