Ok, so this weekend was the Great Strides in my area. I volunteered last year to be on the committee. As bad as this may sounds i am so glad it's over!!! It has been so stressful. I have had very little help. My mom and husband have been amazing support. But here's my problem......
I found out my daughter Alayna had CF during my pregnancy. She will be 2 on June 15. Basically my entire family as well as my husbands have know about this now since I was 5 months pregnant so it's no shocker that she has it. This year I did my first letter writing campaign. I contacted my aunt to get addresses of famiy members that live in other states that I've never met. I sent them all letters (over 100) letting them know the disease runs in the family and that Alayna has it. Out of those 100 I might have received 5 back. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">How sad is that???? <img src="i/expressions/face-icon-small-sad.gif" border="0"> Some of these people are my godparents and Alayna's godparents. I mean come on they honestly can't donate $5 or $10....UGH!!!!!!!!!
I was lucky enough to have made more then my goal thanks to my co-workers and few family members that I could count on. My dad's uncle is like 90 years old on a fixed income and still sent me a $100 <img src="i/expressions/face-icon-small-smile.gif" border="0">
Does anyone have advice on the best way to address this issue?? It's about time they know the pain and sadness they are causing my family.
I found out my daughter Alayna had CF during my pregnancy. She will be 2 on June 15. Basically my entire family as well as my husbands have know about this now since I was 5 months pregnant so it's no shocker that she has it. This year I did my first letter writing campaign. I contacted my aunt to get addresses of famiy members that live in other states that I've never met. I sent them all letters (over 100) letting them know the disease runs in the family and that Alayna has it. Out of those 100 I might have received 5 back. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">How sad is that???? <img src="i/expressions/face-icon-small-sad.gif" border="0"> Some of these people are my godparents and Alayna's godparents. I mean come on they honestly can't donate $5 or $10....UGH!!!!!!!!!
I was lucky enough to have made more then my goal thanks to my co-workers and few family members that I could count on. My dad's uncle is like 90 years old on a fixed income and still sent me a $100 <img src="i/expressions/face-icon-small-smile.gif" border="0">
Does anyone have advice on the best way to address this issue?? It's about time they know the pain and sadness they are causing my family.