Crossfit is awesome. I lived about 8 miles from a Crossfit gym for awhile, sadly, there isn't one near me now. P90X and Insanity are both good programs. Insanity is mostly cardio. Crossfit also posts their daily routines online, if you're that motivated and have the necessary equipment.
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Amazing PFTs
- Thread starter Havoc
- Start date
Crossfit is awesome. I lived about 8 miles from a Crossfit gym for awhile, sadly, there isn't one near me now. P90X and Insanity are both good programs. Insanity is mostly cardio. Crossfit also posts their daily routines online, if you're that motivated and have the necessary equipment.
Crossfit is awesome. I lived about 8 miles from a Crossfit gym for awhile, sadly, there isn't one near me now. P90X and Insanity are both good programs. Insanity is mostly cardio. Crossfit also posts their daily routines online, if you're that motivated and have the necessary equipment.
mikorankin
New member
Kudos to everyone who is engaging in exercise as an augment therapy to Tobi, Pulmozyne, HyperSal, etc... It's awesome that so many CF'ers have realized the lasting benefits of vigorous exercise. Now it's important to maintain both- never think that one can replace the other. If you stick with it, you will live a longer and more fruitful life.
I have been running since I could walk. My parents had me doing it when I was very young; my friends had me doing it everytime I went outside; my coach had me doing it for track; Clearwater Beach and Pensacola Beach Civil Service Boards had me doing it when I was a beach lifeguard; and my little girls have me doing it as a father who wants to be there to monitor their dating down the road.
I was fortunate enough to stay one step ahead of CF while waiting for newer therapies to come to market. As fast as I was on land and sea, when I was younger, I am aware that I know longer run to decrease my times....I run to increase my time- on Earth.
CF will always try to catch up with you. It's gonna have to pick up its pace to catch me.
P.S. My FEV was 102 when I was 19; moved to a low of 72 in the 23 years since then, but stabilized now at 80 with the addition of pulmozyme therapy, and obvious continued exercise.
I have been running since I could walk. My parents had me doing it when I was very young; my friends had me doing it everytime I went outside; my coach had me doing it for track; Clearwater Beach and Pensacola Beach Civil Service Boards had me doing it when I was a beach lifeguard; and my little girls have me doing it as a father who wants to be there to monitor their dating down the road.
I was fortunate enough to stay one step ahead of CF while waiting for newer therapies to come to market. As fast as I was on land and sea, when I was younger, I am aware that I know longer run to decrease my times....I run to increase my time- on Earth.
CF will always try to catch up with you. It's gonna have to pick up its pace to catch me.
P.S. My FEV was 102 when I was 19; moved to a low of 72 in the 23 years since then, but stabilized now at 80 with the addition of pulmozyme therapy, and obvious continued exercise.
mikorankin
New member
Kudos to everyone who is engaging in exercise as an augment therapy to Tobi, Pulmozyne, HyperSal, etc... It's awesome that so many CF'ers have realized the lasting benefits of vigorous exercise. Now it's important to maintain both- never think that one can replace the other. If you stick with it, you will live a longer and more fruitful life.
I have been running since I could walk. My parents had me doing it when I was very young; my friends had me doing it everytime I went outside; my coach had me doing it for track; Clearwater Beach and Pensacola Beach Civil Service Boards had me doing it when I was a beach lifeguard; and my little girls have me doing it as a father who wants to be there to monitor their dating down the road.
I was fortunate enough to stay one step ahead of CF while waiting for newer therapies to come to market. As fast as I was on land and sea, when I was younger, I am aware that I know longer run to decrease my times....I run to increase my time- on Earth.
CF will always try to catch up with you. It's gonna have to pick up its pace to catch me.
P.S. My FEV was 102 when I was 19; moved to a low of 72 in the 23 years since then, but stabilized now at 80 with the addition of pulmozyme therapy, and obvious continued exercise.
I have been running since I could walk. My parents had me doing it when I was very young; my friends had me doing it everytime I went outside; my coach had me doing it for track; Clearwater Beach and Pensacola Beach Civil Service Boards had me doing it when I was a beach lifeguard; and my little girls have me doing it as a father who wants to be there to monitor their dating down the road.
I was fortunate enough to stay one step ahead of CF while waiting for newer therapies to come to market. As fast as I was on land and sea, when I was younger, I am aware that I know longer run to decrease my times....I run to increase my time- on Earth.
CF will always try to catch up with you. It's gonna have to pick up its pace to catch me.
P.S. My FEV was 102 when I was 19; moved to a low of 72 in the 23 years since then, but stabilized now at 80 with the addition of pulmozyme therapy, and obvious continued exercise.
mikorankin
New member
Kudos to everyone who is engaging in exercise as an augment therapy to Tobi, Pulmozyne, HyperSal, etc... It's awesome that so many CF'ers have realized the lasting benefits of vigorous exercise. Now it's important to maintain both- never think that one can replace the other. If you stick with it, you will live a longer and more fruitful life.
<br />I have been running since I could walk. My parents had me doing it when I was very young; my friends had me doing it everytime I went outside; my coach had me doing it for track; Clearwater Beach and Pensacola Beach Civil Service Boards had me doing it when I was a beach lifeguard; and my little girls have me doing it as a father who wants to be there to monitor their dating down the road.
<br />I was fortunate enough to stay one step ahead of CF while waiting for newer therapies to come to market. As fast as I was on land and sea, when I was younger, I am aware that I know longer run to decrease my times....I run to increase my time- on Earth.
<br />CF will always try to catch up with you. It's gonna have to pick up its pace to catch me.
<br />
<br />P.S. My FEV was 102 when I was 19; moved to a low of 72 in the 23 years since then, but stabilized now at 80 with the addition of pulmozyme therapy, and obvious continued exercise.
<br />I have been running since I could walk. My parents had me doing it when I was very young; my friends had me doing it everytime I went outside; my coach had me doing it for track; Clearwater Beach and Pensacola Beach Civil Service Boards had me doing it when I was a beach lifeguard; and my little girls have me doing it as a father who wants to be there to monitor their dating down the road.
<br />I was fortunate enough to stay one step ahead of CF while waiting for newer therapies to come to market. As fast as I was on land and sea, when I was younger, I am aware that I know longer run to decrease my times....I run to increase my time- on Earth.
<br />CF will always try to catch up with you. It's gonna have to pick up its pace to catch me.
<br />
<br />P.S. My FEV was 102 when I was 19; moved to a low of 72 in the 23 years since then, but stabilized now at 80 with the addition of pulmozyme therapy, and obvious continued exercise.
L
lizlas
Guest
<P>duplicate post </P>
L
lizlas
Guest
<P>duplicate post</P>
L
lizlas
Guest
<P><BR>duplicate post</P>
L
lizlas
Guest
<P>Congratulations:</P>
<P> </P>
<P>I have to ask you do you have BXTS? (BRONCHIECTASIS)?</P>
<P>thats what is giving me so much trouble these last few years. (if so have they classed as mild moderate severe)</P>
<P> </P>
<P>I know you had mentioned it on another post ...what were your PFTs before the additional 40%</P>
<P> </P>
<P>do you take any oral antibiotics or inhaled ones for prevention/maintenance? </P>
<P> </P>
<P>what bacteria do you normally culture?</P>
<P> </P>
<P>and do you have to do any Ivs and how often?</P>
<P>and if so, have you seen an improvement in that area too with the excercise?</P>
<P> </P>
<P>thanx</P>
<P> </P>
<P> </P>
<P>I have to ask you do you have BXTS? (BRONCHIECTASIS)?</P>
<P>thats what is giving me so much trouble these last few years. (if so have they classed as mild moderate severe)</P>
<P> </P>
<P>I know you had mentioned it on another post ...what were your PFTs before the additional 40%</P>
<P> </P>
<P>do you take any oral antibiotics or inhaled ones for prevention/maintenance? </P>
<P> </P>
<P>what bacteria do you normally culture?</P>
<P> </P>
<P>and do you have to do any Ivs and how often?</P>
<P>and if so, have you seen an improvement in that area too with the excercise?</P>
<P> </P>
<P>thanx</P>
<P> </P>
L
lizlas
Guest
<P>Congratulations:</P>
<P></P>
<P>I have to ask you do you have BXTS? (BRONCHIECTASIS)?</P>
<P>thats what is giving me so much trouble these last few years. (if so have they classed as mild moderate severe)</P>
<P></P>
<P>I know you had mentioned it on another post ...what were your PFTs before the additional 40%</P>
<P></P>
<P>do you take any oral antibiotics or inhaled ones for prevention/maintenance? </P>
<P></P>
<P>what bacteria do you normally culture?</P>
<P></P>
<P>and do you have to do any Ivs and how often?</P>
<P>and if so, have you seen an improvement in that area too with the excercise?</P>
<P></P>
<P>thanx</P>
<P></P>
<P></P>
<P>I have to ask you do you have BXTS? (BRONCHIECTASIS)?</P>
<P>thats what is giving me so much trouble these last few years. (if so have they classed as mild moderate severe)</P>
<P></P>
<P>I know you had mentioned it on another post ...what were your PFTs before the additional 40%</P>
<P></P>
<P>do you take any oral antibiotics or inhaled ones for prevention/maintenance? </P>
<P></P>
<P>what bacteria do you normally culture?</P>
<P></P>
<P>and do you have to do any Ivs and how often?</P>
<P>and if so, have you seen an improvement in that area too with the excercise?</P>
<P></P>
<P>thanx</P>
<P></P>
L
lizlas
Guest
<P><BR>Congratulations:</P>
<P></P>
<P>I have to ask you do you have BXTS? (BRONCHIECTASIS)?</P>
<P>thats what is giving me so much trouble these last few years. (if so have they classed as mild moderate severe)</P>
<P></P>
<P>I know you had mentioned it on another post ...what were your PFTs before the additional 40%</P>
<P></P>
<P>do you take any oral antibiotics or inhaled ones for prevention/maintenance? </P>
<P></P>
<P>what bacteria do you normally culture?</P>
<P></P>
<P>and do you have to do any Ivs and how often?</P>
<P>and if so, have you seen an improvement in that area too with the excercise?</P>
<P></P>
<P>thanx</P>
<P></P>
<P></P>
<P>I have to ask you do you have BXTS? (BRONCHIECTASIS)?</P>
<P>thats what is giving me so much trouble these last few years. (if so have they classed as mild moderate severe)</P>
<P></P>
<P>I know you had mentioned it on another post ...what were your PFTs before the additional 40%</P>
<P></P>
<P>do you take any oral antibiotics or inhaled ones for prevention/maintenance? </P>
<P></P>
<P>what bacteria do you normally culture?</P>
<P></P>
<P>and do you have to do any Ivs and how often?</P>
<P>and if so, have you seen an improvement in that area too with the excercise?</P>
<P></P>
<P>thanx</P>
<P></P>
I am still here at age 65 because I have been swimming laps 3x a week (about 40 min.) for 35 years. I was only officially diagnosed with CF last year. Amazing what exercise can do along with a good pulmonologist and what genetic testing can determine.
My sister died at age 21 from CF 40 years ago. I have always had CF symptoms - bronchitis, pneumonia, bronchiectasis but I was borderline on sweat tests - so assumed I was carrier with symptoms and just went on living and swimming. As I got older my lungs were deteriorating and oral antibiotics were not enough for the PA. I had gotten down to 30% lung capacity now after IV antibiotics I am at about 60% and that seems to be holding with the typical drug regimen for CF.
For those who need help with costs that might be associated with exercise programs, gym memberships, etc. the Cystic Fibrosis Lifestyle Foundation www.cflf.org. has a recreation grant program that can provide some assistance. I joined the Board this year committed to helping CF adults and children stay active. Living Stonger! Living Longer!
Whatever mode of exercise works just keep doing it.
BMH
My sister died at age 21 from CF 40 years ago. I have always had CF symptoms - bronchitis, pneumonia, bronchiectasis but I was borderline on sweat tests - so assumed I was carrier with symptoms and just went on living and swimming. As I got older my lungs were deteriorating and oral antibiotics were not enough for the PA. I had gotten down to 30% lung capacity now after IV antibiotics I am at about 60% and that seems to be holding with the typical drug regimen for CF.
For those who need help with costs that might be associated with exercise programs, gym memberships, etc. the Cystic Fibrosis Lifestyle Foundation www.cflf.org. has a recreation grant program that can provide some assistance. I joined the Board this year committed to helping CF adults and children stay active. Living Stonger! Living Longer!
Whatever mode of exercise works just keep doing it.
BMH
I am still here at age 65 because I have been swimming laps 3x a week (about 40 min.) for 35 years. I was only officially diagnosed with CF last year. Amazing what exercise can do along with a good pulmonologist and what genetic testing can determine.
My sister died at age 21 from CF 40 years ago. I have always had CF symptoms - bronchitis, pneumonia, bronchiectasis but I was borderline on sweat tests - so assumed I was carrier with symptoms and just went on living and swimming. As I got older my lungs were deteriorating and oral antibiotics were not enough for the PA. I had gotten down to 30% lung capacity now after IV antibiotics I am at about 60% and that seems to be holding with the typical drug regimen for CF.
For those who need help with costs that might be associated with exercise programs, gym memberships, etc. the Cystic Fibrosis Lifestyle Foundation www.cflf.org. has a recreation grant program that can provide some assistance. I joined the Board this year committed to helping CF adults and children stay active. Living Stonger! Living Longer!
Whatever mode of exercise works just keep doing it.
BMH
My sister died at age 21 from CF 40 years ago. I have always had CF symptoms - bronchitis, pneumonia, bronchiectasis but I was borderline on sweat tests - so assumed I was carrier with symptoms and just went on living and swimming. As I got older my lungs were deteriorating and oral antibiotics were not enough for the PA. I had gotten down to 30% lung capacity now after IV antibiotics I am at about 60% and that seems to be holding with the typical drug regimen for CF.
For those who need help with costs that might be associated with exercise programs, gym memberships, etc. the Cystic Fibrosis Lifestyle Foundation www.cflf.org. has a recreation grant program that can provide some assistance. I joined the Board this year committed to helping CF adults and children stay active. Living Stonger! Living Longer!
Whatever mode of exercise works just keep doing it.
BMH
I am still here at age 65 because I have been swimming laps 3x a week (about 40 min.) for 35 years. I was only officially diagnosed with CF last year. Amazing what exercise can do along with a good pulmonologist and what genetic testing can determine.
<br />My sister died at age 21 from CF 40 years ago. I have always had CF symptoms - bronchitis, pneumonia, bronchiectasis but I was borderline on sweat tests - so assumed I was carrier with symptoms and just went on living and swimming. As I got older my lungs were deteriorating and oral antibiotics were not enough for the PA. I had gotten down to 30% lung capacity now after IV antibiotics I am at about 60% and that seems to be holding with the typical drug regimen for CF.
<br />For those who need help with costs that might be associated with exercise programs, gym memberships, etc. the Cystic Fibrosis Lifestyle Foundation www.cflf.org. has a recreation grant program that can provide some assistance. I joined the Board this year committed to helping CF adults and children stay active. Living Stonger! Living Longer!
<br />Whatever mode of exercise works just keep doing it.
<br />BMH
<br />My sister died at age 21 from CF 40 years ago. I have always had CF symptoms - bronchitis, pneumonia, bronchiectasis but I was borderline on sweat tests - so assumed I was carrier with symptoms and just went on living and swimming. As I got older my lungs were deteriorating and oral antibiotics were not enough for the PA. I had gotten down to 30% lung capacity now after IV antibiotics I am at about 60% and that seems to be holding with the typical drug regimen for CF.
<br />For those who need help with costs that might be associated with exercise programs, gym memberships, etc. the Cystic Fibrosis Lifestyle Foundation www.cflf.org. has a recreation grant program that can provide some assistance. I joined the Board this year committed to helping CF adults and children stay active. Living Stonger! Living Longer!
<br />Whatever mode of exercise works just keep doing it.
<br />BMH
imported_Momto2
New member
I love to run and stair climb. Every day. I've been struggling a bit this summer, various nagging health ailments like allergies, gout, pulled muscles-- still working out every day, but it was WORK and I never really hit the groove. Today I whipped through my 5K and kept going with another half hour of running on hills/combined with speed walking up 15% inclines. I feel better today than I have all summer. Weird, I wish I knew what clicked in. I wasnt even winded even though I finished up the last mile with increasing velocity. I almost felt.....free....
Can you tell I'm excited?
As a blatent CF brag, I have to tell you guys I led the pack (hike) to the top of a couple of mountains up by Lake Placid this summer. I have to admit, I was amused when my husband had to tell me to slow the hell down or I was going to end up collecting on his life insurance. *grin* Two years ago, I couldnt have climbed even the smaller of the two mountains given all the time in the world. EXERCISE!!!!!!!!!!!!!!!!!!!!!! Does a body good.
Can you tell I'm excited?
As a blatent CF brag, I have to tell you guys I led the pack (hike) to the top of a couple of mountains up by Lake Placid this summer. I have to admit, I was amused when my husband had to tell me to slow the hell down or I was going to end up collecting on his life insurance. *grin* Two years ago, I couldnt have climbed even the smaller of the two mountains given all the time in the world. EXERCISE!!!!!!!!!!!!!!!!!!!!!! Does a body good.
imported_Momto2
New member
I love to run and stair climb. Every day. I've been struggling a bit this summer, various nagging health ailments like allergies, gout, pulled muscles-- still working out every day, but it was WORK and I never really hit the groove. Today I whipped through my 5K and kept going with another half hour of running on hills/combined with speed walking up 15% inclines. I feel better today than I have all summer. Weird, I wish I knew what clicked in. I wasnt even winded even though I finished up the last mile with increasing velocity. I almost felt.....free....
Can you tell I'm excited?
As a blatent CF brag, I have to tell you guys I led the pack (hike) to the top of a couple of mountains up by Lake Placid this summer. I have to admit, I was amused when my husband had to tell me to slow the hell down or I was going to end up collecting on his life insurance. *grin* Two years ago, I couldnt have climbed even the smaller of the two mountains given all the time in the world. EXERCISE!!!!!!!!!!!!!!!!!!!!!! Does a body good.
Can you tell I'm excited?
As a blatent CF brag, I have to tell you guys I led the pack (hike) to the top of a couple of mountains up by Lake Placid this summer. I have to admit, I was amused when my husband had to tell me to slow the hell down or I was going to end up collecting on his life insurance. *grin* Two years ago, I couldnt have climbed even the smaller of the two mountains given all the time in the world. EXERCISE!!!!!!!!!!!!!!!!!!!!!! Does a body good.
imported_Momto2
New member
I love to run and stair climb. Every day. I've been struggling a bit this summer, various nagging health ailments like allergies, gout, pulled muscles-- still working out every day, but it was WORK and I never really hit the groove. Today I whipped through my 5K and kept going with another half hour of running on hills/combined with speed walking up 15% inclines. I feel better today than I have all summer. Weird, I wish I knew what clicked in. I wasnt even winded even though I finished up the last mile with increasing velocity. I almost felt.....free....
<br />Can you tell I'm excited?
<br />
<br />As a blatent CF brag, I have to tell you guys I led the pack (hike) to the top of a couple of mountains up by Lake Placid this summer. I have to admit, I was amused when my husband had to tell me to slow the hell down or I was going to end up collecting on his life insurance. *grin* Two years ago, I couldnt have climbed even the smaller of the two mountains given all the time in the world. EXERCISE!!!!!!!!!!!!!!!!!!!!!! Does a body good.
<br />Can you tell I'm excited?
<br />
<br />As a blatent CF brag, I have to tell you guys I led the pack (hike) to the top of a couple of mountains up by Lake Placid this summer. I have to admit, I was amused when my husband had to tell me to slow the hell down or I was going to end up collecting on his life insurance. *grin* Two years ago, I couldnt have climbed even the smaller of the two mountains given all the time in the world. EXERCISE!!!!!!!!!!!!!!!!!!!!!! Does a body good.