Amnio test said my baby is positive for CF

Peanut2008 · Jan 21, 2008

I just found out 2 days ago that my Amnio test came back positive for CF, i am 18 weeks pregnant today and so scared that i dont know what to do. I have a beatiful 11 year old daughter that does nt have CF and this is my second pregnancy which is supposed to be a boy. Me and my fiancee were soooo happy even though for me having a baby is extrememly high risk due to mutliple medical conditions(Epilepsy,Kidney stone, a previous coma 4years ago and Pulmanery Edima 2 times) long list huh lol. Anyway when we found out we were pregnant we went to the specialists that saved my life ASAP to see if we should continue with the pregnancy. Everything was ok and they advised me that they were going to do everything in their power to keep me and the baby safe. Well after many test i got the thumbs up but a month after all the thumbs up they told me i was a cf carrier which i didnt know what that was so they asked to test my fiancee. A week after he got tested we got the results he was also a carrier. At this time i still didnt know what that was so they asked me to do an Amnio for more info and to make sure the baby was ok which they told me everthing should be ok, well i am here now and have been told that my child will be born with CF. We have been crying non-stop and they told me that I can terminate my pregnancy but how can i do such a thing when i feel my baby moving, saw the sonogram and love my baby!!! but i am terrified!!! i have read so much stuff and i am very very scared.... i dont think i am woman enough to care for a sick child...i think i may be selfish but i dont want to bring a child in to this world to suffer everyday of his life...I want my baby but my heart hurts and i feel that my beautiful daughter will miss out on her mom also. I really need to spk to children and parents on how they feel about their choices... I dont know what to do plsplsplspls help me!!!!

Peanut2008 · Jan 21, 2008

I just found out 2 days ago that my Amnio test came back positive for CF, i am 18 weeks pregnant today and so scared that i dont know what to do. I have a beatiful 11 year old daughter that does nt have CF and this is my second pregnancy which is supposed to be a boy. Me and my fiancee were soooo happy even though for me having a baby is extrememly high risk due to mutliple medical conditions(Epilepsy,Kidney stone, a previous coma 4years ago and Pulmanery Edima 2 times) long list huh lol. Anyway when we found out we were pregnant we went to the specialists that saved my life ASAP to see if we should continue with the pregnancy. Everything was ok and they advised me that they were going to do everything in their power to keep me and the baby safe. Well after many test i got the thumbs up but a month after all the thumbs up they told me i was a cf carrier which i didnt know what that was so they asked to test my fiancee. A week after he got tested we got the results he was also a carrier. At this time i still didnt know what that was so they asked me to do an Amnio for more info and to make sure the baby was ok which they told me everthing should be ok, well i am here now and have been told that my child will be born with CF. We have been crying non-stop and they told me that I can terminate my pregnancy but how can i do such a thing when i feel my baby moving, saw the sonogram and love my baby!!! but i am terrified!!! i have read so much stuff and i am very very scared.... i dont think i am woman enough to care for a sick child...i think i may be selfish but i dont want to bring a child in to this world to suffer everyday of his life...I want my baby but my heart hurts and i feel that my beautiful daughter will miss out on her mom also. I really need to spk to children and parents on how they feel about their choices... I dont know what to do plsplsplspls help me!!!!

Peanut2008 · Jan 21, 2008

I just found out 2 days ago that my Amnio test came back positive for CF, i am 18 weeks pregnant today and so scared that i dont know what to do. I have a beatiful 11 year old daughter that does nt have CF and this is my second pregnancy which is supposed to be a boy. Me and my fiancee were soooo happy even though for me having a baby is extrememly high risk due to mutliple medical conditions(Epilepsy,Kidney stone, a previous coma 4years ago and Pulmanery Edima 2 times) long list huh lol. Anyway when we found out we were pregnant we went to the specialists that saved my life ASAP to see if we should continue with the pregnancy. Everything was ok and they advised me that they were going to do everything in their power to keep me and the baby safe. Well after many test i got the thumbs up but a month after all the thumbs up they told me i was a cf carrier which i didnt know what that was so they asked to test my fiancee. A week after he got tested we got the results he was also a carrier. At this time i still didnt know what that was so they asked me to do an Amnio for more info and to make sure the baby was ok which they told me everthing should be ok, well i am here now and have been told that my child will be born with CF. We have been crying non-stop and they told me that I can terminate my pregnancy but how can i do such a thing when i feel my baby moving, saw the sonogram and love my baby!!! but i am terrified!!! i have read so much stuff and i am very very scared.... i dont think i am woman enough to care for a sick child...i think i may be selfish but i dont want to bring a child in to this world to suffer everyday of his life...I want my baby but my heart hurts and i feel that my beautiful daughter will miss out on her mom also. I really need to spk to children and parents on how they feel about their choices... I dont know what to do plsplsplspls help me!!!!

Peanut2008 · Jan 21, 2008

I just found out 2 days ago that my Amnio test came back positive for CF, i am 18 weeks pregnant today and so scared that i dont know what to do. I have a beatiful 11 year old daughter that does nt have CF and this is my second pregnancy which is supposed to be a boy. Me and my fiancee were soooo happy even though for me having a baby is extrememly high risk due to mutliple medical conditions(Epilepsy,Kidney stone, a previous coma 4years ago and Pulmanery Edima 2 times) long list huh lol. Anyway when we found out we were pregnant we went to the specialists that saved my life ASAP to see if we should continue with the pregnancy. Everything was ok and they advised me that they were going to do everything in their power to keep me and the baby safe. Well after many test i got the thumbs up but a month after all the thumbs up they told me i was a cf carrier which i didnt know what that was so they asked to test my fiancee. A week after he got tested we got the results he was also a carrier. At this time i still didnt know what that was so they asked me to do an Amnio for more info and to make sure the baby was ok which they told me everthing should be ok, well i am here now and have been told that my child will be born with CF. We have been crying non-stop and they told me that I can terminate my pregnancy but how can i do such a thing when i feel my baby moving, saw the sonogram and love my baby!!! but i am terrified!!! i have read so much stuff and i am very very scared.... i dont think i am woman enough to care for a sick child...i think i may be selfish but i dont want to bring a child in to this world to suffer everyday of his life...I want my baby but my heart hurts and i feel that my beautiful daughter will miss out on her mom also. I really need to spk to children and parents on how they feel about their choices... I dont know what to do plsplsplspls help me!!!!

Peanut2008 · Jan 21, 2008

I just found out 2 days ago that my Amnio test came back positive for CF, i am 18 weeks pregnant today and so scared that i dont know what to do. I have a beatiful 11 year old daughter that does nt have CF and this is my second pregnancy which is supposed to be a boy. Me and my fiancee were soooo happy even though for me having a baby is extrememly high risk due to mutliple medical conditions(Epilepsy,Kidney stone, a previous coma 4years ago and Pulmanery Edima 2 times) long list huh lol. Anyway when we found out we were pregnant we went to the specialists that saved my life ASAP to see if we should continue with the pregnancy. Everything was ok and they advised me that they were going to do everything in their power to keep me and the baby safe. Well after many test i got the thumbs up but a month after all the thumbs up they told me i was a cf carrier which i didnt know what that was so they asked to test my fiancee. A week after he got tested we got the results he was also a carrier. At this time i still didnt know what that was so they asked me to do an Amnio for more info and to make sure the baby was ok which they told me everthing should be ok, well i am here now and have been told that my child will be born with CF. We have been crying non-stop and they told me that I can terminate my pregnancy but how can i do such a thing when i feel my baby moving, saw the sonogram and love my baby!!! but i am terrified!!! i have read so much stuff and i am very very scared.... i dont think i am woman enough to care for a sick child...i think i may be selfish but i dont want to bring a child in to this world to suffer everyday of his life...I want my baby but my heart hurts and i feel that my beautiful daughter will miss out on her mom also. I really need to spk to children and parents on how they feel about their choices... I dont know what to do plsplsplspls help me!!!!

Asexyblond23 · Jan 21, 2008

First I want you and your husband to take a deep breath, and KNOW that we are here for you 24 hours a day, anytime day or night. I will give you my phone number and I am postive that a whole list of other are right with me in saying that you never have to feel alone, because we are here for you. I know that right now everything is hiiting you at once and you are trying to take it all in and you are trying to solve and plan out your whole life. Thinking to much and stressing over the childs whole life will only stress you more. You said that you dont think you are woman enough to care for a sick child. Hunny inside you are stronger then you know, look at you and your life and where you are now. If someone told you everything you would go thru in life you would look at them and say I cant handle that I bet. Now being the person with CF and not the parent I cant tell you what it is like to raise a child with CF but I can tell you as a person that honeslty I would not want to change my life. Yes CF is hard, it can be tough, and rough and a down right pain in the ass but you know what its part of me. I dont know what your beliefs are on terminating but if my parents knew about it and did that then I wouldnt be here and I can tell you that I have had an awesome life even with cf. I know for a fact that God does not give us more then we can handle no matter how rough it seems. There is so much more I can say I could go on and on. I want you to message me if you ever want to talk, I am here 24/7 and know that you have a ton of people here to support you and talk thru things with you!

Asexyblond23 · Jan 21, 2008

First I want you and your husband to take a deep breath, and KNOW that we are here for you 24 hours a day, anytime day or night. I will give you my phone number and I am postive that a whole list of other are right with me in saying that you never have to feel alone, because we are here for you. I know that right now everything is hiiting you at once and you are trying to take it all in and you are trying to solve and plan out your whole life. Thinking to much and stressing over the childs whole life will only stress you more. You said that you dont think you are woman enough to care for a sick child. Hunny inside you are stronger then you know, look at you and your life and where you are now. If someone told you everything you would go thru in life you would look at them and say I cant handle that I bet. Now being the person with CF and not the parent I cant tell you what it is like to raise a child with CF but I can tell you as a person that honeslty I would not want to change my life. Yes CF is hard, it can be tough, and rough and a down right pain in the ass but you know what its part of me. I dont know what your beliefs are on terminating but if my parents knew about it and did that then I wouldnt be here and I can tell you that I have had an awesome life even with cf. I know for a fact that God does not give us more then we can handle no matter how rough it seems. There is so much more I can say I could go on and on. I want you to message me if you ever want to talk, I am here 24/7 and know that you have a ton of people here to support you and talk thru things with you!

Asexyblond23 · Jan 21, 2008

First I want you and your husband to take a deep breath, and KNOW that we are here for you 24 hours a day, anytime day or night. I will give you my phone number and I am postive that a whole list of other are right with me in saying that you never have to feel alone, because we are here for you. I know that right now everything is hiiting you at once and you are trying to take it all in and you are trying to solve and plan out your whole life. Thinking to much and stressing over the childs whole life will only stress you more. You said that you dont think you are woman enough to care for a sick child. Hunny inside you are stronger then you know, look at you and your life and where you are now. If someone told you everything you would go thru in life you would look at them and say I cant handle that I bet. Now being the person with CF and not the parent I cant tell you what it is like to raise a child with CF but I can tell you as a person that honeslty I would not want to change my life. Yes CF is hard, it can be tough, and rough and a down right pain in the ass but you know what its part of me. I dont know what your beliefs are on terminating but if my parents knew about it and did that then I wouldnt be here and I can tell you that I have had an awesome life even with cf. I know for a fact that God does not give us more then we can handle no matter how rough it seems. There is so much more I can say I could go on and on. I want you to message me if you ever want to talk, I am here 24/7 and know that you have a ton of people here to support you and talk thru things with you!

Asexyblond23 · Jan 21, 2008

First I want you and your husband to take a deep breath, and KNOW that we are here for you 24 hours a day, anytime day or night. I will give you my phone number and I am postive that a whole list of other are right with me in saying that you never have to feel alone, because we are here for you. I know that right now everything is hiiting you at once and you are trying to take it all in and you are trying to solve and plan out your whole life. Thinking to much and stressing over the childs whole life will only stress you more. You said that you dont think you are woman enough to care for a sick child. Hunny inside you are stronger then you know, look at you and your life and where you are now. If someone told you everything you would go thru in life you would look at them and say I cant handle that I bet. Now being the person with CF and not the parent I cant tell you what it is like to raise a child with CF but I can tell you as a person that honeslty I would not want to change my life. Yes CF is hard, it can be tough, and rough and a down right pain in the ass but you know what its part of me. I dont know what your beliefs are on terminating but if my parents knew about it and did that then I wouldnt be here and I can tell you that I have had an awesome life even with cf. I know for a fact that God does not give us more then we can handle no matter how rough it seems. There is so much more I can say I could go on and on. I want you to message me if you ever want to talk, I am here 24/7 and know that you have a ton of people here to support you and talk thru things with you!

Asexyblond23 · Jan 21, 2008

First I want you and your husband to take a deep breath, and KNOW that we are here for you 24 hours a day, anytime day or night. I will give you my phone number and I am postive that a whole list of other are right with me in saying that you never have to feel alone, because we are here for you. I know that right now everything is hiiting you at once and you are trying to take it all in and you are trying to solve and plan out your whole life. Thinking to much and stressing over the childs whole life will only stress you more. You said that you dont think you are woman enough to care for a sick child. Hunny inside you are stronger then you know, look at you and your life and where you are now. If someone told you everything you would go thru in life you would look at them and say I cant handle that I bet. Now being the person with CF and not the parent I cant tell you what it is like to raise a child with CF but I can tell you as a person that honeslty I would not want to change my life. Yes CF is hard, it can be tough, and rough and a down right pain in the ass but you know what its part of me. I dont know what your beliefs are on terminating but if my parents knew about it and did that then I wouldnt be here and I can tell you that I have had an awesome life even with cf. I know for a fact that God does not give us more then we can handle no matter how rough it seems. There is so much more I can say I could go on and on. I want you to message me if you ever want to talk, I am here 24/7 and know that you have a ton of people here to support you and talk thru things with you!

vinsmom · Jan 21, 2008

Yes it's scary, yes it's a lot of work, yes, it really STINKS at times. Would I ever give up my son just because he has a disease?? Never in a zillion years. No one can tell you what to do...we all have our opinions I'm sure. God has a plan for everyone and ifyou have any faith in Him whatsoever, you won't question his plan for you and your family. God has given me the biggest blessing in my life with my son and He is an awesome God for it!

It's a true blessing that doctors now test for CF before the babies are actually born. Now you'll have time to educate and get the proper medical treatment from the start. Many families weren't afforded that luxury.

I'm sure it's terrifying but I do hope you really think long and hard before you make any decisions about terminating your pregnancy.

vinsmom · Jan 21, 2008

Yes it's scary, yes it's a lot of work, yes, it really STINKS at times. Would I ever give up my son just because he has a disease?? Never in a zillion years. No one can tell you what to do...we all have our opinions I'm sure. God has a plan for everyone and ifyou have any faith in Him whatsoever, you won't question his plan for you and your family. God has given me the biggest blessing in my life with my son and He is an awesome God for it!

It's a true blessing that doctors now test for CF before the babies are actually born. Now you'll have time to educate and get the proper medical treatment from the start. Many families weren't afforded that luxury.

I'm sure it's terrifying but I do hope you really think long and hard before you make any decisions about terminating your pregnancy.

vinsmom · Jan 21, 2008

Yes it's scary, yes it's a lot of work, yes, it really STINKS at times. Would I ever give up my son just because he has a disease?? Never in a zillion years. No one can tell you what to do...we all have our opinions I'm sure. God has a plan for everyone and ifyou have any faith in Him whatsoever, you won't question his plan for you and your family. God has given me the biggest blessing in my life with my son and He is an awesome God for it!

It's a true blessing that doctors now test for CF before the babies are actually born. Now you'll have time to educate and get the proper medical treatment from the start. Many families weren't afforded that luxury.

I'm sure it's terrifying but I do hope you really think long and hard before you make any decisions about terminating your pregnancy.

vinsmom · Jan 21, 2008

Yes it's scary, yes it's a lot of work, yes, it really STINKS at times. Would I ever give up my son just because he has a disease?? Never in a zillion years. No one can tell you what to do...we all have our opinions I'm sure. God has a plan for everyone and ifyou have any faith in Him whatsoever, you won't question his plan for you and your family. God has given me the biggest blessing in my life with my son and He is an awesome God for it!

It's a true blessing that doctors now test for CF before the babies are actually born. Now you'll have time to educate and get the proper medical treatment from the start. Many families weren't afforded that luxury.

I'm sure it's terrifying but I do hope you really think long and hard before you make any decisions about terminating your pregnancy.

vinsmom · Jan 21, 2008

Yes it's scary, yes it's a lot of work, yes, it really STINKS at times. Would I ever give up my son just because he has a disease?? Never in a zillion years. No one can tell you what to do...we all have our opinions I'm sure. God has a plan for everyone and ifyou have any faith in Him whatsoever, you won't question his plan for you and your family. God has given me the biggest blessing in my life with my son and He is an awesome God for it!

It's a true blessing that doctors now test for CF before the babies are actually born. Now you'll have time to educate and get the proper medical treatment from the start. Many families weren't afforded that luxury.

I'm sure it's terrifying but I do hope you really think long and hard before you make any decisions about terminating your pregnancy.

semperfiohana · Jan 21, 2008

i'm so sorry to hear that your baby has tested postive. yes there are ups and downs with cf, but it is really up to you and your fiance. my mom and dad had no idea they were carriers of the cf gene until i was two when i was diagnoised. it hasn't always been an easy life, my mom went through many struggles with insurance to make sure that i had the right type of care and medicine to keep me alive and healthy. all my life i can remember having cf doctor appts every 3 months, but that is just to make sure that i stay healthy. i am 17 weeks and 1 day pregnant now, i of course know i'm a carrier, we had my husband tested about 2 years ago and he is not a carrier. the doctors have asked me to do the cvs test to check for downs (my regular ob has, my specialist said it's not nessary if i don't want it) but to me i don't want to have the test done, i know it's just a simple blood test, but it can come back as a false positive, but to me it's my baby it doesn't matter if it has anything. it's still my baby and i'm going to have it. it all is just a personal thing. i am 21 now, i will be 22 in april. and there are so many treatments that they are coming out with. if you have any specific questions you would like to ask me just go ahead and ask. i know i was kinda broad in this, but feel free to ask away! and good luck!

semperfiohana · Jan 21, 2008

i'm so sorry to hear that your baby has tested postive. yes there are ups and downs with cf, but it is really up to you and your fiance. my mom and dad had no idea they were carriers of the cf gene until i was two when i was diagnoised. it hasn't always been an easy life, my mom went through many struggles with insurance to make sure that i had the right type of care and medicine to keep me alive and healthy. all my life i can remember having cf doctor appts every 3 months, but that is just to make sure that i stay healthy. i am 17 weeks and 1 day pregnant now, i of course know i'm a carrier, we had my husband tested about 2 years ago and he is not a carrier. the doctors have asked me to do the cvs test to check for downs (my regular ob has, my specialist said it's not nessary if i don't want it) but to me i don't want to have the test done, i know it's just a simple blood test, but it can come back as a false positive, but to me it's my baby it doesn't matter if it has anything. it's still my baby and i'm going to have it. it all is just a personal thing. i am 21 now, i will be 22 in april. and there are so many treatments that they are coming out with. if you have any specific questions you would like to ask me just go ahead and ask. i know i was kinda broad in this, but feel free to ask away! and good luck!

semperfiohana · Jan 21, 2008

i'm so sorry to hear that your baby has tested postive. yes there are ups and downs with cf, but it is really up to you and your fiance. my mom and dad had no idea they were carriers of the cf gene until i was two when i was diagnoised. it hasn't always been an easy life, my mom went through many struggles with insurance to make sure that i had the right type of care and medicine to keep me alive and healthy. all my life i can remember having cf doctor appts every 3 months, but that is just to make sure that i stay healthy. i am 17 weeks and 1 day pregnant now, i of course know i'm a carrier, we had my husband tested about 2 years ago and he is not a carrier. the doctors have asked me to do the cvs test to check for downs (my regular ob has, my specialist said it's not nessary if i don't want it) but to me i don't want to have the test done, i know it's just a simple blood test, but it can come back as a false positive, but to me it's my baby it doesn't matter if it has anything. it's still my baby and i'm going to have it. it all is just a personal thing. i am 21 now, i will be 22 in april. and there are so many treatments that they are coming out with. if you have any specific questions you would like to ask me just go ahead and ask. i know i was kinda broad in this, but feel free to ask away! and good luck!

semperfiohana · Jan 21, 2008

i'm so sorry to hear that your baby has tested postive. yes there are ups and downs with cf, but it is really up to you and your fiance. my mom and dad had no idea they were carriers of the cf gene until i was two when i was diagnoised. it hasn't always been an easy life, my mom went through many struggles with insurance to make sure that i had the right type of care and medicine to keep me alive and healthy. all my life i can remember having cf doctor appts every 3 months, but that is just to make sure that i stay healthy. i am 17 weeks and 1 day pregnant now, i of course know i'm a carrier, we had my husband tested about 2 years ago and he is not a carrier. the doctors have asked me to do the cvs test to check for downs (my regular ob has, my specialist said it's not nessary if i don't want it) but to me i don't want to have the test done, i know it's just a simple blood test, but it can come back as a false positive, but to me it's my baby it doesn't matter if it has anything. it's still my baby and i'm going to have it. it all is just a personal thing. i am 21 now, i will be 22 in april. and there are so many treatments that they are coming out with. if you have any specific questions you would like to ask me just go ahead and ask. i know i was kinda broad in this, but feel free to ask away! and good luck!

semperfiohana · Jan 21, 2008

i'm so sorry to hear that your baby has tested postive. yes there are ups and downs with cf, but it is really up to you and your fiance. my mom and dad had no idea they were carriers of the cf gene until i was two when i was diagnoised. it hasn't always been an easy life, my mom went through many struggles with insurance to make sure that i had the right type of care and medicine to keep me alive and healthy. all my life i can remember having cf doctor appts every 3 months, but that is just to make sure that i stay healthy. i am 17 weeks and 1 day pregnant now, i of course know i'm a carrier, we had my husband tested about 2 years ago and he is not a carrier. the doctors have asked me to do the cvs test to check for downs (my regular ob has, my specialist said it's not nessary if i don't want it) but to me i don't want to have the test done, i know it's just a simple blood test, but it can come back as a false positive, but to me it's my baby it doesn't matter if it has anything. it's still my baby and i'm going to have it. it all is just a personal thing. i am 21 now, i will be 22 in april. and there are so many treatments that they are coming out with. if you have any specific questions you would like to ask me just go ahead and ask. i know i was kinda broad in this, but feel free to ask away! and good luck!

Amnio test said my baby is positive for CF

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