Amnio test said my baby is positive for CF

NoExcuses

New member
I have CF. And it stinks.

But I'm sure glad my mom didn't abort me.

And I think that the many people in my life are grateful that I wasn't aborted either.
 

NoExcuses

New member
I have CF. And it stinks.

But I'm sure glad my mom didn't abort me.

And I think that the many people in my life are grateful that I wasn't aborted either.
 

NoExcuses

New member
I have CF. And it stinks.

But I'm sure glad my mom didn't abort me.

And I think that the many people in my life are grateful that I wasn't aborted either.
 

NoExcuses

New member
I have CF. And it stinks.

But I'm sure glad my mom didn't abort me.

And I think that the many people in my life are grateful that I wasn't aborted either.
 

NoExcuses

New member
I have CF. And it stinks.

But I'm sure glad my mom didn't abort me.

And I think that the many people in my life are grateful that I wasn't aborted either.
 

Peanut2008

New member
Thank you,thank you,thank you,thank you all so much!!!! I have read so much stuff on line and my biggest fear is holding my son in my arms and him passing away!!! i am suffering now and i cant even imagine how losing an innocent child that has no fault in this world because of something i cant control....i would love to talk to Asexyblond23. I honestly think that this is my fault that some how me not passing away 4 years ago when i was in the coma has some how now affected the future of this child....I sit here and read everything everyone writes and i can honestly say that you are the strongest people i have come across.

I used to consider myself pretty strong but this has changed me somehow...i swear if it were nt for the fact that i have my little girl which means everything to me and i think is really the reason why i didnt die 4 years ago, i would nt be here right now...I feel that i dont want to take another breath knowing that my choice is going to affect a child forever...whether i keep this child and give this child a sentence to suffer or if i decide to terminate this pregnancy and give myself a sentence to hate myself and live with my decision...I dont know how to feel and my heart is hurting so much!!! i want to hold my baby in my arms and tell him i love him but i know i cant take away the pain when he is hurt or nt feeling well and from what i have read this will be a constant thing. I am trying not to think too much and i really wish that the Doctors had not told me anything because up until this point i was extremelly happy and now i am sooo sad!!! i know me being sad is affecting my little baby but i am soo scared.
 

Peanut2008

New member
Thank you,thank you,thank you,thank you all so much!!!! I have read so much stuff on line and my biggest fear is holding my son in my arms and him passing away!!! i am suffering now and i cant even imagine how losing an innocent child that has no fault in this world because of something i cant control....i would love to talk to Asexyblond23. I honestly think that this is my fault that some how me not passing away 4 years ago when i was in the coma has some how now affected the future of this child....I sit here and read everything everyone writes and i can honestly say that you are the strongest people i have come across.

I used to consider myself pretty strong but this has changed me somehow...i swear if it were nt for the fact that i have my little girl which means everything to me and i think is really the reason why i didnt die 4 years ago, i would nt be here right now...I feel that i dont want to take another breath knowing that my choice is going to affect a child forever...whether i keep this child and give this child a sentence to suffer or if i decide to terminate this pregnancy and give myself a sentence to hate myself and live with my decision...I dont know how to feel and my heart is hurting so much!!! i want to hold my baby in my arms and tell him i love him but i know i cant take away the pain when he is hurt or nt feeling well and from what i have read this will be a constant thing. I am trying not to think too much and i really wish that the Doctors had not told me anything because up until this point i was extremelly happy and now i am sooo sad!!! i know me being sad is affecting my little baby but i am soo scared.
 

Peanut2008

New member
Thank you,thank you,thank you,thank you all so much!!!! I have read so much stuff on line and my biggest fear is holding my son in my arms and him passing away!!! i am suffering now and i cant even imagine how losing an innocent child that has no fault in this world because of something i cant control....i would love to talk to Asexyblond23. I honestly think that this is my fault that some how me not passing away 4 years ago when i was in the coma has some how now affected the future of this child....I sit here and read everything everyone writes and i can honestly say that you are the strongest people i have come across.

I used to consider myself pretty strong but this has changed me somehow...i swear if it were nt for the fact that i have my little girl which means everything to me and i think is really the reason why i didnt die 4 years ago, i would nt be here right now...I feel that i dont want to take another breath knowing that my choice is going to affect a child forever...whether i keep this child and give this child a sentence to suffer or if i decide to terminate this pregnancy and give myself a sentence to hate myself and live with my decision...I dont know how to feel and my heart is hurting so much!!! i want to hold my baby in my arms and tell him i love him but i know i cant take away the pain when he is hurt or nt feeling well and from what i have read this will be a constant thing. I am trying not to think too much and i really wish that the Doctors had not told me anything because up until this point i was extremelly happy and now i am sooo sad!!! i know me being sad is affecting my little baby but i am soo scared.
 

Peanut2008

New member
Thank you,thank you,thank you,thank you all so much!!!! I have read so much stuff on line and my biggest fear is holding my son in my arms and him passing away!!! i am suffering now and i cant even imagine how losing an innocent child that has no fault in this world because of something i cant control....i would love to talk to Asexyblond23. I honestly think that this is my fault that some how me not passing away 4 years ago when i was in the coma has some how now affected the future of this child....I sit here and read everything everyone writes and i can honestly say that you are the strongest people i have come across.

I used to consider myself pretty strong but this has changed me somehow...i swear if it were nt for the fact that i have my little girl which means everything to me and i think is really the reason why i didnt die 4 years ago, i would nt be here right now...I feel that i dont want to take another breath knowing that my choice is going to affect a child forever...whether i keep this child and give this child a sentence to suffer or if i decide to terminate this pregnancy and give myself a sentence to hate myself and live with my decision...I dont know how to feel and my heart is hurting so much!!! i want to hold my baby in my arms and tell him i love him but i know i cant take away the pain when he is hurt or nt feeling well and from what i have read this will be a constant thing. I am trying not to think too much and i really wish that the Doctors had not told me anything because up until this point i was extremelly happy and now i am sooo sad!!! i know me being sad is affecting my little baby but i am soo scared.
 

Peanut2008

New member
Thank you,thank you,thank you,thank you all so much!!!! I have read so much stuff on line and my biggest fear is holding my son in my arms and him passing away!!! i am suffering now and i cant even imagine how losing an innocent child that has no fault in this world because of something i cant control....i would love to talk to Asexyblond23. I honestly think that this is my fault that some how me not passing away 4 years ago when i was in the coma has some how now affected the future of this child....I sit here and read everything everyone writes and i can honestly say that you are the strongest people i have come across.

I used to consider myself pretty strong but this has changed me somehow...i swear if it were nt for the fact that i have my little girl which means everything to me and i think is really the reason why i didnt die 4 years ago, i would nt be here right now...I feel that i dont want to take another breath knowing that my choice is going to affect a child forever...whether i keep this child and give this child a sentence to suffer or if i decide to terminate this pregnancy and give myself a sentence to hate myself and live with my decision...I dont know how to feel and my heart is hurting so much!!! i want to hold my baby in my arms and tell him i love him but i know i cant take away the pain when he is hurt or nt feeling well and from what i have read this will be a constant thing. I am trying not to think too much and i really wish that the Doctors had not told me anything because up until this point i was extremelly happy and now i am sooo sad!!! i know me being sad is affecting my little baby but i am soo scared.
 

AnD

New member
I agree with Alisha- a deep breath would be good right now. I know it's a shock.

When I was born, they told my parents that they would be lucky to have me to age 3. Well, I am now 37 years old (which is about the median life expectance now, and going up!), married for 15 years, with a 4 year old daughter.

All the new treatments that have come out in just the last several years are amazing, and have made a wonderful difference in my life, even though I didn't get to have them until my 20's and 30's. I have great hope for this upcoming generation, with the drugs and treatments that are coming down the line, and the information that new parents of cf patients have, that my parents didn't have.

Try not to let all the info out on the internet scare you too much-some of it is outdated (this is a good place to find out the latest info), and not everyone comes down with every symptom, at the same time.

Yes, having to do treatments is a royal pain sometimes, having to go in the hospital for the periodic IV medicines is a royal pain a lot of the time, sometimes it's downright scary if I'm really sick, but I can honestly say that I am happy with my life and I wouldn't trade what I have now for anything. I have a full life; Cf is just one aspect of it that I have to make accomedations for.

And I also believe that it has helped me be a more forgiving, compassionate and less self centered person than I would have been, and therefore added more life to my years. For that I am thankful. Go figure <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Life is still made up of the mountains and the valleys, no matter what hand you are dealt. Just sometimes they are different hills and valleys than we expected.

I am glad to have been given this chance at life, and am making the most of it <img src="i/expressions/face-icon-small-smile.gif" border="0"> . My parents, my sister and my husband seem to like having me around, too <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

This is a wonderful place for information and support. I will be praying for you and your family.
 

AnD

New member
I agree with Alisha- a deep breath would be good right now. I know it's a shock.

When I was born, they told my parents that they would be lucky to have me to age 3. Well, I am now 37 years old (which is about the median life expectance now, and going up!), married for 15 years, with a 4 year old daughter.

All the new treatments that have come out in just the last several years are amazing, and have made a wonderful difference in my life, even though I didn't get to have them until my 20's and 30's. I have great hope for this upcoming generation, with the drugs and treatments that are coming down the line, and the information that new parents of cf patients have, that my parents didn't have.

Try not to let all the info out on the internet scare you too much-some of it is outdated (this is a good place to find out the latest info), and not everyone comes down with every symptom, at the same time.

Yes, having to do treatments is a royal pain sometimes, having to go in the hospital for the periodic IV medicines is a royal pain a lot of the time, sometimes it's downright scary if I'm really sick, but I can honestly say that I am happy with my life and I wouldn't trade what I have now for anything. I have a full life; Cf is just one aspect of it that I have to make accomedations for.

And I also believe that it has helped me be a more forgiving, compassionate and less self centered person than I would have been, and therefore added more life to my years. For that I am thankful. Go figure <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Life is still made up of the mountains and the valleys, no matter what hand you are dealt. Just sometimes they are different hills and valleys than we expected.

I am glad to have been given this chance at life, and am making the most of it <img src="i/expressions/face-icon-small-smile.gif" border="0"> . My parents, my sister and my husband seem to like having me around, too <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

This is a wonderful place for information and support. I will be praying for you and your family.
 

AnD

New member
I agree with Alisha- a deep breath would be good right now. I know it's a shock.

When I was born, they told my parents that they would be lucky to have me to age 3. Well, I am now 37 years old (which is about the median life expectance now, and going up!), married for 15 years, with a 4 year old daughter.

All the new treatments that have come out in just the last several years are amazing, and have made a wonderful difference in my life, even though I didn't get to have them until my 20's and 30's. I have great hope for this upcoming generation, with the drugs and treatments that are coming down the line, and the information that new parents of cf patients have, that my parents didn't have.

Try not to let all the info out on the internet scare you too much-some of it is outdated (this is a good place to find out the latest info), and not everyone comes down with every symptom, at the same time.

Yes, having to do treatments is a royal pain sometimes, having to go in the hospital for the periodic IV medicines is a royal pain a lot of the time, sometimes it's downright scary if I'm really sick, but I can honestly say that I am happy with my life and I wouldn't trade what I have now for anything. I have a full life; Cf is just one aspect of it that I have to make accomedations for.

And I also believe that it has helped me be a more forgiving, compassionate and less self centered person than I would have been, and therefore added more life to my years. For that I am thankful. Go figure <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Life is still made up of the mountains and the valleys, no matter what hand you are dealt. Just sometimes they are different hills and valleys than we expected.

I am glad to have been given this chance at life, and am making the most of it <img src="i/expressions/face-icon-small-smile.gif" border="0"> . My parents, my sister and my husband seem to like having me around, too <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

This is a wonderful place for information and support. I will be praying for you and your family.
 

AnD

New member
I agree with Alisha- a deep breath would be good right now. I know it's a shock.

When I was born, they told my parents that they would be lucky to have me to age 3. Well, I am now 37 years old (which is about the median life expectance now, and going up!), married for 15 years, with a 4 year old daughter.

All the new treatments that have come out in just the last several years are amazing, and have made a wonderful difference in my life, even though I didn't get to have them until my 20's and 30's. I have great hope for this upcoming generation, with the drugs and treatments that are coming down the line, and the information that new parents of cf patients have, that my parents didn't have.

Try not to let all the info out on the internet scare you too much-some of it is outdated (this is a good place to find out the latest info), and not everyone comes down with every symptom, at the same time.

Yes, having to do treatments is a royal pain sometimes, having to go in the hospital for the periodic IV medicines is a royal pain a lot of the time, sometimes it's downright scary if I'm really sick, but I can honestly say that I am happy with my life and I wouldn't trade what I have now for anything. I have a full life; Cf is just one aspect of it that I have to make accomedations for.

And I also believe that it has helped me be a more forgiving, compassionate and less self centered person than I would have been, and therefore added more life to my years. For that I am thankful. Go figure <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Life is still made up of the mountains and the valleys, no matter what hand you are dealt. Just sometimes they are different hills and valleys than we expected.

I am glad to have been given this chance at life, and am making the most of it <img src="i/expressions/face-icon-small-smile.gif" border="0"> . My parents, my sister and my husband seem to like having me around, too <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

This is a wonderful place for information and support. I will be praying for you and your family.
 

AnD

New member
I agree with Alisha- a deep breath would be good right now. I know it's a shock.

When I was born, they told my parents that they would be lucky to have me to age 3. Well, I am now 37 years old (which is about the median life expectance now, and going up!), married for 15 years, with a 4 year old daughter.

All the new treatments that have come out in just the last several years are amazing, and have made a wonderful difference in my life, even though I didn't get to have them until my 20's and 30's. I have great hope for this upcoming generation, with the drugs and treatments that are coming down the line, and the information that new parents of cf patients have, that my parents didn't have.

Try not to let all the info out on the internet scare you too much-some of it is outdated (this is a good place to find out the latest info), and not everyone comes down with every symptom, at the same time.

Yes, having to do treatments is a royal pain sometimes, having to go in the hospital for the periodic IV medicines is a royal pain a lot of the time, sometimes it's downright scary if I'm really sick, but I can honestly say that I am happy with my life and I wouldn't trade what I have now for anything. I have a full life; Cf is just one aspect of it that I have to make accomedations for.

And I also believe that it has helped me be a more forgiving, compassionate and less self centered person than I would have been, and therefore added more life to my years. For that I am thankful. Go figure <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Life is still made up of the mountains and the valleys, no matter what hand you are dealt. Just sometimes they are different hills and valleys than we expected.

I am glad to have been given this chance at life, and am making the most of it <img src="i/expressions/face-icon-small-smile.gif" border="0"> . My parents, my sister and my husband seem to like having me around, too <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

This is a wonderful place for information and support. I will be praying for you and your family.
 
S

sdelorenzo

Guest
Please send me an e-mail to sdelorenzo@sbcglobal.net
I want to share with you a little about my two kids who happen to have cf. CF is not by an means who they are and they definitely do not suffer. Treatments each day are a pain, but we are so blessed with the respiratory vest that honestly we live a normal life.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
Please send me an e-mail to sdelorenzo@sbcglobal.net
I want to share with you a little about my two kids who happen to have cf. CF is not by an means who they are and they definitely do not suffer. Treatments each day are a pain, but we are so blessed with the respiratory vest that honestly we live a normal life.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
Please send me an e-mail to sdelorenzo@sbcglobal.net
I want to share with you a little about my two kids who happen to have cf. CF is not by an means who they are and they definitely do not suffer. Treatments each day are a pain, but we are so blessed with the respiratory vest that honestly we live a normal life.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
Please send me an e-mail to sdelorenzo@sbcglobal.net
I want to share with you a little about my two kids who happen to have cf. CF is not by an means who they are and they definitely do not suffer. Treatments each day are a pain, but we are so blessed with the respiratory vest that honestly we live a normal life.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
Please send me an e-mail to sdelorenzo@sbcglobal.net
I want to share with you a little about my two kids who happen to have cf. CF is not by an means who they are and they definitely do not suffer. Treatments each day are a pain, but we are so blessed with the respiratory vest that honestly we live a normal life.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
Top