It's definitely hard. We usually have an appt at 10 or 11. Sometimes we don't get home until after 5pm. We usually are just doing a lot of waiting. My son is a baby, so we always have to see the nutritionist and there is usually a long wait between nurse, psychologist, intern, doctor, nutritionist. We definitely just make it a day!
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It's definitely hard. We usually have an appt at 10 or 11. Sometimes we don't get home until after 5pm. We usually are just doing a lot of waiting. My son is a baby, so we always have to see the nutritionist and there is usually a long wait between nurse, psychologist, intern, doctor, nutritionist. We definitely just make it a day!
It's definitely hard. We usually have an appt at 10 or 11. Sometimes we don't get home until after 5pm. We usually are just doing a lot of waiting. My son is a baby, so we always have to see the nutritionist and there is usually a long wait between nurse, psychologist, intern, doctor, nutritionist. We definitely just make it a day!
It's definitely hard. We usually have an appt at 10 or 11. Sometimes we don't get home until after 5pm. We usually are just doing a lot of waiting. My son is a baby, so we always have to see the nutritionist and there is usually a long wait between nurse, psychologist, intern, doctor, nutritionist. We definitely just make it a day!
It's definitely hard. We usually have an appt at 10 or 11. Sometimes we don't get home until after 5pm. We usually are just doing a lot of waiting. My son is a baby, so we always have to see the nutritionist and there is usually a long wait between nurse, psychologist, intern, doctor, nutritionist. We definitely just make it a day!
theLostMiler
New member
I am like you, always late, or if one part of the appointment goes late then youre late to the next so you are running and huffing and coughing and puffing to try to make it across campus or whatever to see the next part.... it is very very tiring!
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
theLostMiler
New member
I am like you, always late, or if one part of the appointment goes late then youre late to the next so you are running and huffing and coughing and puffing to try to make it across campus or whatever to see the next part.... it is very very tiring!
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
theLostMiler
New member
I am like you, always late, or if one part of the appointment goes late then youre late to the next so you are running and huffing and coughing and puffing to try to make it across campus or whatever to see the next part.... it is very very tiring!
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
theLostMiler
New member
I am like you, always late, or if one part of the appointment goes late then youre late to the next so you are running and huffing and coughing and puffing to try to make it across campus or whatever to see the next part.... it is very very tiring!
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
theLostMiler
New member
I am like you, always late, or if one part of the appointment goes late then youre late to the next so you are running and huffing and coughing and puffing to try to make it across campus or whatever to see the next part.... it is very very tiring!
<br />
<br />When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
<br />
<br />When i was little at my annuals I hated doing the "full" spirametry's (pfts) luckily those I seem to only about once every year and a half or more now.
Fortunately, the pft lab is right in the pulmonary / cardiology unit, where the CF clinic is. So we don't have to run all over the hospital when Emily has clinic appts! They do pft's first, and Emily thinks it's a big game and likes the RT, so this part is generally not a big deal. It only takes a few minutes. (The scale lurking right in the hall outside the door is what gives me ulcers.)
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Fortunately, the pft lab is right in the pulmonary / cardiology unit, where the CF clinic is. So we don't have to run all over the hospital when Emily has clinic appts! They do pft's first, and Emily thinks it's a big game and likes the RT, so this part is generally not a big deal. It only takes a few minutes. (The scale lurking right in the hall outside the door is what gives me ulcers.)
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Fortunately, the pft lab is right in the pulmonary / cardiology unit, where the CF clinic is. So we don't have to run all over the hospital when Emily has clinic appts! They do pft's first, and Emily thinks it's a big game and likes the RT, so this part is generally not a big deal. It only takes a few minutes. (The scale lurking right in the hall outside the door is what gives me ulcers.)
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Fortunately, the pft lab is right in the pulmonary / cardiology unit, where the CF clinic is. So we don't have to run all over the hospital when Emily has clinic appts! They do pft's first, and Emily thinks it's a big game and likes the RT, so this part is generally not a big deal. It only takes a few minutes. (The scale lurking right in the hall outside the door is what gives me ulcers.)
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
Fortunately, the pft lab is right in the pulmonary / cardiology unit, where the CF clinic is. So we don't have to run all over the hospital when Emily has clinic appts! They do pft's first, and Emily thinks it's a big game and likes the RT, so this part is generally not a big deal. It only takes a few minutes. (The scale lurking right in the hall outside the door is what gives me ulcers.)
<br />
<br />Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
<br />
<br />However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.
<br />
<br />Emily is due for her annual labs next visit and that will make our day take anywhere from 15min to over an hour longer, depending on how busy the lab is. She would have been due for her annual xray (which can also be in-and-out or can take forever!) but they switched to every-other-year chest ct's so she's off the hook for the moment. After pft's she she sees dr, nurse, social worker, nutritionist at every visit and assorted people at random visits (last time it was medical students & a resident, another time the research coordinator, maybe the pt to discuss the vest, etc) so we are never out of there quickly. Fortunately, we never have to go out into the waiting room: we are put into our room and everyone comes to us. Emily, however, is generally inviting people to leave the second they walk through our door by the last hour (since she knows SHE can't leave!) I make sure we bring her backpack stuffed with toys, gameboy, notebook, some snacks...
<br />
<br />However, I am generally beyond exhausted by the time I get home too. It's a long drive, generally rush hour is involved at least one way, and you are on information overload by the end of it all (not to mention an overtired kid.) I'm glad today's visit was helpful... hope the abx help and that her weight is up for next time.