theLostMiler
New member
I forgot how much I dread the scale too! And my cf clinic is 4+ hours away but normally only hit rush hour home but it's definitely a full 12h hour day or more if we stop to eat.
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theLostMiler
New member
I forgot how much I dread the scale too! And my cf clinic is 4+ hours away but normally only hit rush hour home but it's definitely a full 12h hour day or more if we stop to eat.
theLostMiler
New member
I forgot how much I dread the scale too! And my cf clinic is 4+ hours away but normally only hit rush hour home but it's definitely a full 12h hour day or more if we stop to eat.
theLostMiler
New member
I forgot how much I dread the scale too! And my cf clinic is 4+ hours away but normally only hit rush hour home but it's definitely a full 12h hour day or more if we stop to eat.
theLostMiler
New member
I forgot how much I dread the scale too! And my cf clinic is 4+ hours away but normally only hit rush hour home but it's definitely a full 12h hour day or more if we stop to eat.
We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting.
<br />
<br />We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
<br />
<br />So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
<br />
<br />We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been destroyed by the annual reminder of diagnosis.
<br />
<br />So this past summer I "changed" her anniversary/annual visit to early July and that has taken some of the stress off. We have been seeing our doc every two months for almost two years now because of participation in the Denufosol trial so weight and PFT's are never a surprise at the annual visit. It would be absolutely nerve-wracking otherwise.
Don't have much time for a story, but I just wanted to say YOU ARE NOT ALONE!!! I used to hate Ashlee's visits cuz they took so long, now with 2 of them...we do the visit together (well Jordin is every 3 months, so even worse) But lately with Ashlee sick, we have had them both at most of those appts as well. It makes for a VERY long day! Oh, and we haven't started PFT's yet either... Soon to come though.
Hang in there! Hope she can fight this cough away!
Hang in there! Hope she can fight this cough away!
Don't have much time for a story, but I just wanted to say YOU ARE NOT ALONE!!! I used to hate Ashlee's visits cuz they took so long, now with 2 of them...we do the visit together (well Jordin is every 3 months, so even worse) But lately with Ashlee sick, we have had them both at most of those appts as well. It makes for a VERY long day! Oh, and we haven't started PFT's yet either... Soon to come though.
Hang in there! Hope she can fight this cough away!
Hang in there! Hope she can fight this cough away!
Don't have much time for a story, but I just wanted to say YOU ARE NOT ALONE!!! I used to hate Ashlee's visits cuz they took so long, now with 2 of them...we do the visit together (well Jordin is every 3 months, so even worse) But lately with Ashlee sick, we have had them both at most of those appts as well. It makes for a VERY long day! Oh, and we haven't started PFT's yet either... Soon to come though.
Hang in there! Hope she can fight this cough away!
Hang in there! Hope she can fight this cough away!
Don't have much time for a story, but I just wanted to say YOU ARE NOT ALONE!!! I used to hate Ashlee's visits cuz they took so long, now with 2 of them...we do the visit together (well Jordin is every 3 months, so even worse) But lately with Ashlee sick, we have had them both at most of those appts as well. It makes for a VERY long day! Oh, and we haven't started PFT's yet either... Soon to come though.
Hang in there! Hope she can fight this cough away!
Hang in there! Hope she can fight this cough away!
Don't have much time for a story, but I just wanted to say YOU ARE NOT ALONE!!! I used to hate Ashlee's visits cuz they took so long, now with 2 of them...we do the visit together (well Jordin is every 3 months, so even worse) But lately with Ashlee sick, we have had them both at most of those appts as well. It makes for a VERY long day! Oh, and we haven't started PFT's yet either... Soon to come though.
<br />
<br />Hang in there! Hope she can fight this cough away!
<br />
<br />Hang in there! Hope she can fight this cough away!
I'm sure every hospital is different, so I encourage you to figure out ways of making the visit easier on you both. Growing up, we'd always go earlier than my appointment was scheduled for and they'd always squeeze me into the PFT lab (because someone else was always late). Or I'd go get lab work (blood/xray) before seeing the doc. We even used to "divide and conquer" with my Dad registering us for lab work downstairs while Mom would check me in at the clinic. By the time I was 18 we were a well oiled machine and could be out in under 2 hours for an annual! There's always a way to work with what you have, no matter what the hospital.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
I'm sure every hospital is different, so I encourage you to figure out ways of making the visit easier on you both. Growing up, we'd always go earlier than my appointment was scheduled for and they'd always squeeze me into the PFT lab (because someone else was always late). Or I'd go get lab work (blood/xray) before seeing the doc. We even used to "divide and conquer" with my Dad registering us for lab work downstairs while Mom would check me in at the clinic. By the time I was 18 we were a well oiled machine and could be out in under 2 hours for an annual! There's always a way to work with what you have, no matter what the hospital.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
I'm sure every hospital is different, so I encourage you to figure out ways of making the visit easier on you both. Growing up, we'd always go earlier than my appointment was scheduled for and they'd always squeeze me into the PFT lab (because someone else was always late). Or I'd go get lab work (blood/xray) before seeing the doc. We even used to "divide and conquer" with my Dad registering us for lab work downstairs while Mom would check me in at the clinic. By the time I was 18 we were a well oiled machine and could be out in under 2 hours for an annual! There's always a way to work with what you have, no matter what the hospital.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
I'm sure every hospital is different, so I encourage you to figure out ways of making the visit easier on you both. Growing up, we'd always go earlier than my appointment was scheduled for and they'd always squeeze me into the PFT lab (because someone else was always late). Or I'd go get lab work (blood/xray) before seeing the doc. We even used to "divide and conquer" with my Dad registering us for lab work downstairs while Mom would check me in at the clinic. By the time I was 18 we were a well oiled machine and could be out in under 2 hours for an annual! There's always a way to work with what you have, no matter what the hospital.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
I'm sure every hospital is different, so I encourage you to figure out ways of making the visit easier on you both. Growing up, we'd always go earlier than my appointment was scheduled for and they'd always squeeze me into the PFT lab (because someone else was always late). Or I'd go get lab work (blood/xray) before seeing the doc. We even used to "divide and conquer" with my Dad registering us for lab work downstairs while Mom would check me in at the clinic. By the time I was 18 we were a well oiled machine and could be out in under 2 hours for an annual! There's always a way to work with what you have, no matter what the hospital.
<br />
<br />The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.
<br />
<br />The most important thing for me growing up was that my parents always planned something fun afterward. The hospital I went to was in Philly, so we'd stop by King of Prussia mall for lunch and shopping (didn't always buy things). We all had something to look forward to during the clinic visits and it gave us some down time to regroup and process what we'd heard before going home.