anyone ever feel this way

leothelioness26

New member
When I'm at the store or resteraunt people will stare at me because of my coughing. They look at me like I have some sort of plague. I've even overheard people say that it is rude to go out with a cough. I have broken down and told some people that I have CF and they look at me like I'm an alien. It's not like they can catch anything from me but even people who know about my disease will react the same way sometimes. Right now I'm sick so my cough sounds pretty awful, but I love getting out and going places. I don't believe that someone with CF should have to stay home because some people are ignorant. How am I supposed to react. The one thing my doctors have always told me is to cough and don't hold it. I live in a small town and don't know many people. I can be kind of shy and it doesn't help when people act like I'm sickly. I love doing many things "normal" people do. The way people react to the coughing bothers my husband but he tells me to ignore it but sometimes it's very hard. Does anyone have any advice for me? I would truly appreciate it.
 

leothelioness26

New member
When I'm at the store or resteraunt people will stare at me because of my coughing. They look at me like I have some sort of plague. I've even overheard people say that it is rude to go out with a cough. I have broken down and told some people that I have CF and they look at me like I'm an alien. It's not like they can catch anything from me but even people who know about my disease will react the same way sometimes. Right now I'm sick so my cough sounds pretty awful, but I love getting out and going places. I don't believe that someone with CF should have to stay home because some people are ignorant. How am I supposed to react. The one thing my doctors have always told me is to cough and don't hold it. I live in a small town and don't know many people. I can be kind of shy and it doesn't help when people act like I'm sickly. I love doing many things "normal" people do. The way people react to the coughing bothers my husband but he tells me to ignore it but sometimes it's very hard. Does anyone have any advice for me? I would truly appreciate it.
 

leothelioness26

New member
When I'm at the store or resteraunt people will stare at me because of my coughing. They look at me like I have some sort of plague. I've even overheard people say that it is rude to go out with a cough. I have broken down and told some people that I have CF and they look at me like I'm an alien. It's not like they can catch anything from me but even people who know about my disease will react the same way sometimes. Right now I'm sick so my cough sounds pretty awful, but I love getting out and going places. I don't believe that someone with CF should have to stay home because some people are ignorant. How am I supposed to react. The one thing my doctors have always told me is to cough and don't hold it. I live in a small town and don't know many people. I can be kind of shy and it doesn't help when people act like I'm sickly. I love doing many things "normal" people do. The way people react to the coughing bothers my husband but he tells me to ignore it but sometimes it's very hard. Does anyone have any advice for me? I would truly appreciate it.
 

leothelioness26

New member
When I'm at the store or resteraunt people will stare at me because of my coughing. They look at me like I have some sort of plague. I've even overheard people say that it is rude to go out with a cough. I have broken down and told some people that I have CF and they look at me like I'm an alien. It's not like they can catch anything from me but even people who know about my disease will react the same way sometimes. Right now I'm sick so my cough sounds pretty awful, but I love getting out and going places. I don't believe that someone with CF should have to stay home because some people are ignorant. How am I supposed to react. The one thing my doctors have always told me is to cough and don't hold it. I live in a small town and don't know many people. I can be kind of shy and it doesn't help when people act like I'm sickly. I love doing many things "normal" people do. The way people react to the coughing bothers my husband but he tells me to ignore it but sometimes it's very hard. Does anyone have any advice for me? I would truly appreciate it.
 

leothelioness26

New member
When I'm at the store or resteraunt people will stare at me because of my coughing. They look at me like I have some sort of plague. I've even overheard people say that it is rude to go out with a cough. I have broken down and told some people that I have CF and they look at me like I'm an alien. It's not like they can catch anything from me but even people who know about my disease will react the same way sometimes. Right now I'm sick so my cough sounds pretty awful, but I love getting out and going places. I don't believe that someone with CF should have to stay home because some people are ignorant. How am I supposed to react. The one thing my doctors have always told me is to cough and don't hold it. I live in a small town and don't know many people. I can be kind of shy and it doesn't help when people act like I'm sickly. I love doing many things "normal" people do. The way people react to the coughing bothers my husband but he tells me to ignore it but sometimes it's very hard. Does anyone have any advice for me? I would truly appreciate it.
 

AnD

New member
I usually say something to the effect of "I'm not contagious- this is normal for me, I have CF" (if I think the person might have a clue what it is <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) or "I have lung/breathing problems, it's not contagious and I'm fine" or "It's not contagious,I was born with it; it's okay, but thanks for your concern" if they say something; it seems to make things a bit better.

It is aggravating, but, I admit, when I hear someone nearby coughing like I cough, I am thinking- "Get away from me!" and "Why are you out sounding like that?" too, so....aheh. <img src="i/expressions/face-icon-small-blush.gif" border="0">
 

AnD

New member
I usually say something to the effect of "I'm not contagious- this is normal for me, I have CF" (if I think the person might have a clue what it is <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) or "I have lung/breathing problems, it's not contagious and I'm fine" or "It's not contagious,I was born with it; it's okay, but thanks for your concern" if they say something; it seems to make things a bit better.

It is aggravating, but, I admit, when I hear someone nearby coughing like I cough, I am thinking- "Get away from me!" and "Why are you out sounding like that?" too, so....aheh. <img src="i/expressions/face-icon-small-blush.gif" border="0">
 

AnD

New member
I usually say something to the effect of "I'm not contagious- this is normal for me, I have CF" (if I think the person might have a clue what it is <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) or "I have lung/breathing problems, it's not contagious and I'm fine" or "It's not contagious,I was born with it; it's okay, but thanks for your concern" if they say something; it seems to make things a bit better.

It is aggravating, but, I admit, when I hear someone nearby coughing like I cough, I am thinking- "Get away from me!" and "Why are you out sounding like that?" too, so....aheh. <img src="i/expressions/face-icon-small-blush.gif" border="0">
 

AnD

New member
I usually say something to the effect of "I'm not contagious- this is normal for me, I have CF" (if I think the person might have a clue what it is <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) or "I have lung/breathing problems, it's not contagious and I'm fine" or "It's not contagious,I was born with it; it's okay, but thanks for your concern" if they say something; it seems to make things a bit better.

It is aggravating, but, I admit, when I hear someone nearby coughing like I cough, I am thinking- "Get away from me!" and "Why are you out sounding like that?" too, so....aheh. <img src="i/expressions/face-icon-small-blush.gif" border="0">
 

AnD

New member
I usually say something to the effect of "I'm not contagious- this is normal for me, I have CF" (if I think the person might have a clue what it is <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) or "I have lung/breathing problems, it's not contagious and I'm fine" or "It's not contagious,I was born with it; it's okay, but thanks for your concern" if they say something; it seems to make things a bit better.

It is aggravating, but, I admit, when I hear someone nearby coughing like I cough, I am thinking- "Get away from me!" and "Why are you out sounding like that?" too, so....aheh. <img src="i/expressions/face-icon-small-blush.gif" border="0">
 

tanyasmyangel

New member
unfortunately, people are quick to judge others. when Tanya starts coughing in public, i have this feeling like i need to protect her from other people's judgements and do the stare fighting for her. i'll look at people with a "what're you lookin at" attitude, unless i feel some amount of concern in their face, which is rare. the bottom line is that you are not responsible for the way people think and if they don't like it, they can deal with it or remove themselves from the situation. let it out, don't keep it in on the behalf of others' "comfort".
 

tanyasmyangel

New member
unfortunately, people are quick to judge others. when Tanya starts coughing in public, i have this feeling like i need to protect her from other people's judgements and do the stare fighting for her. i'll look at people with a "what're you lookin at" attitude, unless i feel some amount of concern in their face, which is rare. the bottom line is that you are not responsible for the way people think and if they don't like it, they can deal with it or remove themselves from the situation. let it out, don't keep it in on the behalf of others' "comfort".
 

tanyasmyangel

New member
unfortunately, people are quick to judge others. when Tanya starts coughing in public, i have this feeling like i need to protect her from other people's judgements and do the stare fighting for her. i'll look at people with a "what're you lookin at" attitude, unless i feel some amount of concern in their face, which is rare. the bottom line is that you are not responsible for the way people think and if they don't like it, they can deal with it or remove themselves from the situation. let it out, don't keep it in on the behalf of others' "comfort".
 

tanyasmyangel

New member
unfortunately, people are quick to judge others. when Tanya starts coughing in public, i have this feeling like i need to protect her from other people's judgements and do the stare fighting for her. i'll look at people with a "what're you lookin at" attitude, unless i feel some amount of concern in their face, which is rare. the bottom line is that you are not responsible for the way people think and if they don't like it, they can deal with it or remove themselves from the situation. let it out, don't keep it in on the behalf of others' "comfort".
 

tanyasmyangel

New member
unfortunately, people are quick to judge others. when Tanya starts coughing in public, i have this feeling like i need to protect her from other people's judgements and do the stare fighting for her. i'll look at people with a "what're you lookin at" attitude, unless i feel some amount of concern in their face, which is rare. the bottom line is that you are not responsible for the way people think and if they don't like it, they can deal with it or remove themselves from the situation. let it out, don't keep it in on the behalf of others' "comfort".
 

Skye

New member
I usually say my asthma or allergies are bothering me or flaring up. Everyone knows what asthma and allergies are, there is usually an asthma component to CF, everyone knows asthma is not contagious, and it usually makes people feel more comfortable to know that they aren't being exposed to anything that their self-centered little bodies can't handle. You don't have to reveal your most personal medical record, CF, to a perfect stranger just to ease their nerves. If you aren't self-concious about revealing CF, carry some brochures for CF fundraisers with you. Anytime someone makes a rude comment or asks a stupid question. Give em one of those and ask em to make a donation. That'll shut em up. That is what I did when I was on O2 and people would cheese me off and ask me if I had emphysema. I know they didn't mean anything by it; but, if only they knew the hours of work that we spend taking care of our lungs and the hours we would never spend smoking cigarettes.
 

Skye

New member
I usually say my asthma or allergies are bothering me or flaring up. Everyone knows what asthma and allergies are, there is usually an asthma component to CF, everyone knows asthma is not contagious, and it usually makes people feel more comfortable to know that they aren't being exposed to anything that their self-centered little bodies can't handle. You don't have to reveal your most personal medical record, CF, to a perfect stranger just to ease their nerves. If you aren't self-concious about revealing CF, carry some brochures for CF fundraisers with you. Anytime someone makes a rude comment or asks a stupid question. Give em one of those and ask em to make a donation. That'll shut em up. That is what I did when I was on O2 and people would cheese me off and ask me if I had emphysema. I know they didn't mean anything by it; but, if only they knew the hours of work that we spend taking care of our lungs and the hours we would never spend smoking cigarettes.
 

Skye

New member
I usually say my asthma or allergies are bothering me or flaring up. Everyone knows what asthma and allergies are, there is usually an asthma component to CF, everyone knows asthma is not contagious, and it usually makes people feel more comfortable to know that they aren't being exposed to anything that their self-centered little bodies can't handle. You don't have to reveal your most personal medical record, CF, to a perfect stranger just to ease their nerves. If you aren't self-concious about revealing CF, carry some brochures for CF fundraisers with you. Anytime someone makes a rude comment or asks a stupid question. Give em one of those and ask em to make a donation. That'll shut em up. That is what I did when I was on O2 and people would cheese me off and ask me if I had emphysema. I know they didn't mean anything by it; but, if only they knew the hours of work that we spend taking care of our lungs and the hours we would never spend smoking cigarettes.
 

Skye

New member
I usually say my asthma or allergies are bothering me or flaring up. Everyone knows what asthma and allergies are, there is usually an asthma component to CF, everyone knows asthma is not contagious, and it usually makes people feel more comfortable to know that they aren't being exposed to anything that their self-centered little bodies can't handle. You don't have to reveal your most personal medical record, CF, to a perfect stranger just to ease their nerves. If you aren't self-concious about revealing CF, carry some brochures for CF fundraisers with you. Anytime someone makes a rude comment or asks a stupid question. Give em one of those and ask em to make a donation. That'll shut em up. That is what I did when I was on O2 and people would cheese me off and ask me if I had emphysema. I know they didn't mean anything by it; but, if only they knew the hours of work that we spend taking care of our lungs and the hours we would never spend smoking cigarettes.
 

Skye

New member
I usually say my asthma or allergies are bothering me or flaring up. Everyone knows what asthma and allergies are, there is usually an asthma component to CF, everyone knows asthma is not contagious, and it usually makes people feel more comfortable to know that they aren't being exposed to anything that their self-centered little bodies can't handle. You don't have to reveal your most personal medical record, CF, to a perfect stranger just to ease their nerves. If you aren't self-concious about revealing CF, carry some brochures for CF fundraisers with you. Anytime someone makes a rude comment or asks a stupid question. Give em one of those and ask em to make a donation. That'll shut em up. That is what I did when I was on O2 and people would cheese me off and ask me if I had emphysema. I know they didn't mean anything by it; but, if only they knew the hours of work that we spend taking care of our lungs and the hours we would never spend smoking cigarettes.
 
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