Anyone out there having thoughts about dieing becase of CF

Jbenjamin152

New member
Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays longer and longer, harder recoveries.... No one with cf or ANY other disease that is chronic/terminal can say that they don't thnk about death. I believe that death will come to each of us, no one can avoid it. NONE OF US WILL MAKE IT OUT ALIVE Jim Morison from the doors said that and then within a few years he took his own life. To help with the thoughts I have surrounded myself with reasons to stay on this earth as long as humanly possible. Children, Wife, Dog, and a passion for collecting, buying and selling rare coins. It's hard not to think about death. My wife is more than understanding of this than most people. There have been times that I find myself awake at 3am, in bed trying to sleep and all I can do is think, think about how are my children going to grow up, are they going to be big, strong, honest. I also find myself afraid of death in these wee hours in the early morning. Afraid of wether if I fall asleep if I will be able to wake up or will this all turn out to be a crazy long dream. There were mornings that I use to, as a teen, not be able to sleep at all because the thoughts got worse. I sometimes found myself asleep and or warn out for days to because of these thoughts. I get them much less since I have reasons to be not depressed...or even worrying about death at times. There are times it's hard not to think about it...
 

Jbenjamin152

New member
Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays longer and longer, harder recoveries.... No one with cf or ANY other disease that is chronic/terminal can say that they don't thnk about death. I believe that death will come to each of us, no one can avoid it. NONE OF US WILL MAKE IT OUT ALIVE Jim Morison from the doors said that and then within a few years he took his own life. To help with the thoughts I have surrounded myself with reasons to stay on this earth as long as humanly possible. Children, Wife, Dog, and a passion for collecting, buying and selling rare coins. It's hard not to think about death. My wife is more than understanding of this than most people. There have been times that I find myself awake at 3am, in bed trying to sleep and all I can do is think, think about how are my children going to grow up, are they going to be big, strong, honest. I also find myself afraid of death in these wee hours in the early morning. Afraid of wether if I fall asleep if I will be able to wake up or will this all turn out to be a crazy long dream. There were mornings that I use to, as a teen, not be able to sleep at all because the thoughts got worse. I sometimes found myself asleep and or warn out for days to because of these thoughts. I get them much less since I have reasons to be not depressed...or even worrying about death at times. There are times it's hard not to think about it...
 

Jbenjamin152

New member
Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays longer and longer, harder recoveries.... No one with cf or ANY other disease that is chronic/terminal can say that they don't thnk about death. I believe that death will come to each of us, no one can avoid it. NONE OF US WILL MAKE IT OUT ALIVE Jim Morison from the doors said that and then within a few years he took his own life. To help with the thoughts I have surrounded myself with reasons to stay on this earth as long as humanly possible. Children, Wife, Dog, and a passion for collecting, buying and selling rare coins. It's hard not to think about death. My wife is more than understanding of this than most people. There have been times that I find myself awake at 3am, in bed trying to sleep and all I can do is think, think about how are my children going to grow up, are they going to be big, strong, honest. I also find myself afraid of death in these wee hours in the early morning. Afraid of wether if I fall asleep if I will be able to wake up or will this all turn out to be a crazy long dream. There were mornings that I use to, as a teen, not be able to sleep at all because the thoughts got worse. I sometimes found myself asleep and or warn out for days to because of these thoughts. I get them much less since I have reasons to be not depressed...or even worrying about death at times. There are times it's hard not to think about it...
 

Jbenjamin152

New member
Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays longer and longer, harder recoveries.... No one with cf or ANY other disease that is chronic/terminal can say that they don't thnk about death. I believe that death will come to each of us, no one can avoid it. NONE OF US WILL MAKE IT OUT ALIVE Jim Morison from the doors said that and then within a few years he took his own life. To help with the thoughts I have surrounded myself with reasons to stay on this earth as long as humanly possible. Children, Wife, Dog, and a passion for collecting, buying and selling rare coins. It's hard not to think about death. My wife is more than understanding of this than most people. There have been times that I find myself awake at 3am, in bed trying to sleep and all I can do is think, think about how are my children going to grow up, are they going to be big, strong, honest. I also find myself afraid of death in these wee hours in the early morning. Afraid of wether if I fall asleep if I will be able to wake up or will this all turn out to be a crazy long dream. There were mornings that I use to, as a teen, not be able to sleep at all because the thoughts got worse. I sometimes found myself asleep and or warn out for days to because of these thoughts. I get them much less since I have reasons to be not depressed...or even worrying about death at times. There are times it's hard not to think about it...
 

Jbenjamin152

New member
Being told that you are doomed from day number 1 has had a profound impact on the whole cystic fibrosis community. I started thinking, how am I going to die in my early teens, nothing that I could do can change my diagnosis EVER. Yes I have had the normal hard CF life, meds , hospital stays longer and longer, harder recoveries.... No one with cf or ANY other disease that is chronic/terminal can say that they don't thnk about death. I believe that death will come to each of us, no one can avoid it. NONE OF US WILL MAKE IT OUT ALIVE Jim Morison from the doors said that and then within a few years he took his own life. To help with the thoughts I have surrounded myself with reasons to stay on this earth as long as humanly possible. Children, Wife, Dog, and a passion for collecting, buying and selling rare coins. It's hard not to think about death. My wife is more than understanding of this than most people. There have been times that I find myself awake at 3am, in bed trying to sleep and all I can do is think, think about how are my children going to grow up, are they going to be big, strong, honest. I also find myself afraid of death in these wee hours in the early morning. Afraid of wether if I fall asleep if I will be able to wake up or will this all turn out to be a crazy long dream. There were mornings that I use to, as a teen, not be able to sleep at all because the thoughts got worse. I sometimes found myself asleep and or warn out for days to because of these thoughts. I get them much less since I have reasons to be not depressed...or even worrying about death at times. There are times it's hard not to think about it...
 

randomgirl

New member
Heck yea, I have those thoughts too. Especially since, I also have cfrd, and liver disease, and some other medical stuff so I don't think I'll make it to even 27 or so. But whatever...now I don't have to worry about getting married and having kids. I'll just try to have a normal single life until I die...yay?<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
Heck yea, I have those thoughts too. Especially since, I also have cfrd, and liver disease, and some other medical stuff so I don't think I'll make it to even 27 or so. But whatever...now I don't have to worry about getting married and having kids. I'll just try to have a normal single life until I die...yay?<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
Heck yea, I have those thoughts too. Especially since, I also have cfrd, and liver disease, and some other medical stuff so I don't think I'll make it to even 27 or so. But whatever...now I don't have to worry about getting married and having kids. I'll just try to have a normal single life until I die...yay?<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
Heck yea, I have those thoughts too. Especially since, I also have cfrd, and liver disease, and some other medical stuff so I don't think I'll make it to even 27 or so. But whatever...now I don't have to worry about getting married and having kids. I'll just try to have a normal single life until I die...yay?<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
Heck yea, I have those thoughts too. Especially since, I also have cfrd, and liver disease, and some other medical stuff so I don't think I'll make it to even 27 or so. But whatever...now I don't have to worry about getting married and having kids. I'll just try to have a normal single life until I die...yay?<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Printer

Active member
Hi:

I'm Bill, I have CF too but im 69 and will be 70 in January. I understand your comments because my life expectiency is 30 also. I have already doubled that and I expect to triple it.

Its not that I am without CF problems. I am required take 10 Creon with EVERY meal and snack. I've had part of my stomach removed and my pancrease is shot (no diabetis yet though).

D1G1L10, you don't know what is in front of you and like me, you may live to 90 too. Start to prepare for a very long life.

Printer
 

Printer

Active member
Hi:

I'm Bill, I have CF too but im 69 and will be 70 in January. I understand your comments because my life expectiency is 30 also. I have already doubled that and I expect to triple it.

Its not that I am without CF problems. I am required take 10 Creon with EVERY meal and snack. I've had part of my stomach removed and my pancrease is shot (no diabetis yet though).

D1G1L10, you don't know what is in front of you and like me, you may live to 90 too. Start to prepare for a very long life.

Printer
 

Printer

Active member
Hi:

I'm Bill, I have CF too but im 69 and will be 70 in January. I understand your comments because my life expectiency is 30 also. I have already doubled that and I expect to triple it.

Its not that I am without CF problems. I am required take 10 Creon with EVERY meal and snack. I've had part of my stomach removed and my pancrease is shot (no diabetis yet though).

D1G1L10, you don't know what is in front of you and like me, you may live to 90 too. Start to prepare for a very long life.

Printer
 

Printer

Active member
Hi:

I'm Bill, I have CF too but im 69 and will be 70 in January. I understand your comments because my life expectiency is 30 also. I have already doubled that and I expect to triple it.

Its not that I am without CF problems. I am required take 10 Creon with EVERY meal and snack. I've had part of my stomach removed and my pancrease is shot (no diabetis yet though).

D1G1L10, you don't know what is in front of you and like me, you may live to 90 too. Start to prepare for a very long life.

Printer
 

Printer

Active member
Hi:
<br />
<br />I'm Bill, I have CF too but im 69 and will be 70 in January. I understand your comments because my life expectiency is 30 also. I have already doubled that and I expect to triple it.
<br />
<br />Its not that I am without CF problems. I am required take 10 Creon with EVERY meal and snack. I've had part of my stomach removed and my pancrease is shot (no diabetis yet though).
<br />
<br />D1G1L10, you don't know what is in front of you and like me, you may live to 90 too. Start to prepare for a very long life.
<br />
<br />Printer
 
M

Mandarix101

Guest
I think about it to often i turn 24 in a week and i think about death to much and about having kids and should i have kids and how long should i wait because what if i die at 40 or 50 that means im 1/2 way through my life. You are NORMAL in my opinion but i am also on a lot of medication to help me not have these types of thoughts. Just keep being strong and choosing life and god will guide you
 
M

Mandarix101

Guest
I think about it to often i turn 24 in a week and i think about death to much and about having kids and should i have kids and how long should i wait because what if i die at 40 or 50 that means im 1/2 way through my life. You are NORMAL in my opinion but i am also on a lot of medication to help me not have these types of thoughts. Just keep being strong and choosing life and god will guide you
 
M

Mandarix101

Guest
I think about it to often i turn 24 in a week and i think about death to much and about having kids and should i have kids and how long should i wait because what if i die at 40 or 50 that means im 1/2 way through my life. You are NORMAL in my opinion but i am also on a lot of medication to help me not have these types of thoughts. Just keep being strong and choosing life and god will guide you
 
M

Mandarix101

Guest
I think about it to often i turn 24 in a week and i think about death to much and about having kids and should i have kids and how long should i wait because what if i die at 40 or 50 that means im 1/2 way through my life. You are NORMAL in my opinion but i am also on a lot of medication to help me not have these types of thoughts. Just keep being strong and choosing life and god will guide you
 
M

Mandarix101

Guest
I think about it to often i turn 24 in a week and i think about death to much and about having kids and should i have kids and how long should i wait because what if i die at 40 or 50 that means im 1/2 way through my life. You are NORMAL in my opinion but i am also on a lot of medication to help me not have these types of thoughts. Just keep being strong and choosing life and god will guide you
 
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