Stillgoing
New member
We switched clinics about a year ago and it was the best thing we ever did. At the new clinic they work very hard to make sure no one has to sit around forever. But I guess I am willing to put up with some waiting since my daughter's PFTs improved so dramatically after the switch. We just bring some activities and the expectation that we will be there for a couple of hours so we can see the usual crew - pulmonologist, pulmonology fellow, GI doc, dietician, social worker, respiratory therapist and, annually, the physical therapist.
I agree with marisalynn - you have to be your own (or your childrens) advocate. You know what is best for your children. You have to go get it for them.
One suggestion - I have heard that some clinics will do a one time consultation. You check out the other clinic that way. You'll find out if you like it better and if they would be treating your children any differently. Then you can make an informed decision about where to go on a regular basis.
I don't know where I heard about these consultations, but they seem to make sense. Does anyone know if I dreamt this up or can it be done?
Still going
Mom to 2 - DD, age 8 1/2 w/CF (DD508), DS, age 10 no CF
I agree with marisalynn - you have to be your own (or your childrens) advocate. You know what is best for your children. You have to go get it for them.
One suggestion - I have heard that some clinics will do a one time consultation. You check out the other clinic that way. You'll find out if you like it better and if they would be treating your children any differently. Then you can make an informed decision about where to go on a regular basis.
I don't know where I heard about these consultations, but they seem to make sense. Does anyone know if I dreamt this up or can it be done?
Still going
Mom to 2 - DD, age 8 1/2 w/CF (DD508), DS, age 10 no CF