Are we doing enough CPT?

[hmw]

Our center recommends CPT twice a day for 20 minutes when Emily is healthy, and more whenever she gets sick- up to 4x a day. Preventative care is the cornerstone to treating CF!

Emily started with manual CPT (which she didn't like either) until we were able to get her switched over to the vest, which for the most part she does fine with.

I find it really surprising that a center located at such a reputable hospital would recommend that protocol.

eta: if you've never tried the little rubbery 'cup' to do CPT, it's worth asking about. Not only does it save your hands, it might make a big difference on how it feels to your dd, especially if under her arms or chest is more sensitive to how it feels when she gets CPT. It also makes it easier to target specific areas more accurately since it fits their smaller body area easier (the RT had them in several sizes when she gave us ours.)

 

[hmw]

Our center recommends CPT twice a day for 20 minutes when Emily is healthy, and more whenever she gets sick- up to 4x a day. Preventative care is the cornerstone to treating CF!

Emily started with manual CPT (which she didn't like either) until we were able to get her switched over to the vest, which for the most part she does fine with.

I find it really surprising that a center located at such a reputable hospital would recommend that protocol.

eta: if you've never tried the little rubbery 'cup' to do CPT, it's worth asking about. Not only does it save your hands, it might make a big difference on how it feels to your dd, especially if under her arms or chest is more sensitive to how it feels when she gets CPT. It also makes it easier to target specific areas more accurately since it fits their smaller body area easier (the RT had them in several sizes when she gave us ours.)

 

[hmw]

Our center recommends CPT twice a day for 20 minutes when Emily is healthy, and more whenever she gets sick- up to 4x a day. Preventative care is the cornerstone to treating CF!

Emily started with manual CPT (which she didn't like either) until we were able to get her switched over to the vest, which for the most part she does fine with.

I find it really surprising that a center located at such a reputable hospital would recommend that protocol.

eta: if you've never tried the little rubbery 'cup' to do CPT, it's worth asking about. Not only does it save your hands, it might make a big difference on how it feels to your dd, especially if under her arms or chest is more sensitive to how it feels when she gets CPT. It also makes it easier to target specific areas more accurately since it fits their smaller body area easier (the RT had them in several sizes when she gave us ours.)

 

[hmw]

Our center recommends CPT twice a day for 20 minutes when Emily is healthy, and more whenever she gets sick- up to 4x a day. Preventative care is the cornerstone to treating CF!

Emily started with manual CPT (which she didn't like either) until we were able to get her switched over to the vest, which for the most part she does fine with.

I find it really surprising that a center located at such a reputable hospital would recommend that protocol.

eta: if you've never tried the little rubbery 'cup' to do CPT, it's worth asking about. Not only does it save your hands, it might make a big difference on how it feels to your dd, especially if under her arms or chest is more sensitive to how it feels when she gets CPT. It also makes it easier to target specific areas more accurately since it fits their smaller body area easier (the RT had them in several sizes when she gave us ours.)

 

[hmw]

Our center recommends CPT twice a day for 20 minutes when Emily is healthy, and more whenever she gets sick- up to 4x a day. Preventative care is the cornerstone to treating CF!
<br />
<br />Emily started with manual CPT (which she didn't like either) until we were able to get her switched over to the vest, which for the most part she does fine with.
<br />
<br />I find it really surprising that a center located at such a reputable hospital would recommend that protocol.
<br />
<br />eta: if you've never tried the little rubbery 'cup' to do CPT, it's worth asking about. Not only does it save your hands, it might make a big difference on how it feels to your dd, especially if under her arms or chest is more sensitive to how it feels when she gets CPT. It also makes it easier to target specific areas more accurately since it fits their smaller body area easier (the RT had them in several sizes when she gave us ours.)

 

[Ratatosk]

Even our local accreditted CF clinic isn't very consistent with CPT. There are teens I know of that have never done CPT, some who've just gotten the vest. Then there are newer parents whose children get vests right away, others who don't. I know when we first went to the local clinic, they tried to talk us out of doing CPT and other parents were told when they asked to be taught, that it wasn't necesasary unless the lungs become affected.

And when DS was coughing at 2 months, they told me it was normal, that's what "they" (people wcf) do. Found out a few weeks later he had bronchitis.

Fortunately, our clnic in the city was much more proactive instead of reactive. We learned using both the percussion cups and our hands. And it was a bit overwhelming at first. DS was less than a week old when we began CPT and it bothered me at first to think that we'd be doing this 3-4 times a day forever. It just didn't seem fair. But we got into a routine and adjusted to our new schedule.

 

[Ratatosk]

Even our local accreditted CF clinic isn't very consistent with CPT. There are teens I know of that have never done CPT, some who've just gotten the vest. Then there are newer parents whose children get vests right away, others who don't. I know when we first went to the local clinic, they tried to talk us out of doing CPT and other parents were told when they asked to be taught, that it wasn't necesasary unless the lungs become affected.

And when DS was coughing at 2 months, they told me it was normal, that's what "they" (people wcf) do. Found out a few weeks later he had bronchitis.

Fortunately, our clnic in the city was much more proactive instead of reactive. We learned using both the percussion cups and our hands. And it was a bit overwhelming at first. DS was less than a week old when we began CPT and it bothered me at first to think that we'd be doing this 3-4 times a day forever. It just didn't seem fair. But we got into a routine and adjusted to our new schedule.

 

[Ratatosk]

Even our local accreditted CF clinic isn't very consistent with CPT. There are teens I know of that have never done CPT, some who've just gotten the vest. Then there are newer parents whose children get vests right away, others who don't. I know when we first went to the local clinic, they tried to talk us out of doing CPT and other parents were told when they asked to be taught, that it wasn't necesasary unless the lungs become affected.

And when DS was coughing at 2 months, they told me it was normal, that's what "they" (people wcf) do. Found out a few weeks later he had bronchitis.

Fortunately, our clnic in the city was much more proactive instead of reactive. We learned using both the percussion cups and our hands. And it was a bit overwhelming at first. DS was less than a week old when we began CPT and it bothered me at first to think that we'd be doing this 3-4 times a day forever. It just didn't seem fair. But we got into a routine and adjusted to our new schedule.

 

[Ratatosk]

Even our local accreditted CF clinic isn't very consistent with CPT. There are teens I know of that have never done CPT, some who've just gotten the vest. Then there are newer parents whose children get vests right away, others who don't. I know when we first went to the local clinic, they tried to talk us out of doing CPT and other parents were told when they asked to be taught, that it wasn't necesasary unless the lungs become affected.

And when DS was coughing at 2 months, they told me it was normal, that's what "they" (people wcf) do. Found out a few weeks later he had bronchitis.

Fortunately, our clnic in the city was much more proactive instead of reactive. We learned using both the percussion cups and our hands. And it was a bit overwhelming at first. DS was less than a week old when we began CPT and it bothered me at first to think that we'd be doing this 3-4 times a day forever. It just didn't seem fair. But we got into a routine and adjusted to our new schedule.

 

[Ratatosk]

Even our local accreditted CF clinic isn't very consistent with CPT. There are teens I know of that have never done CPT, some who've just gotten the vest. Then there are newer parents whose children get vests right away, others who don't. I know when we first went to the local clinic, they tried to talk us out of doing CPT and other parents were told when they asked to be taught, that it wasn't necesasary unless the lungs become affected.
<br />
<br />And when DS was coughing at 2 months, they told me it was normal, that's what "they" (people wcf) do. Found out a few weeks later he had bronchitis.
<br />
<br />Fortunately, our clnic in the city was much more proactive instead of reactive. We learned using both the percussion cups and our hands. And it was a bit overwhelming at first. DS was less than a week old when we began CPT and it bothered me at first to think that we'd be doing this 3-4 times a day forever. It just didn't seem fair. But we got into a routine and adjusted to our new schedule.

 

[Buckeye]

I second the cup thing. We were taught to do CPT both with and without the cup, but I prefer the cup thing (I'm sure there's a more accurate term for it). But if she's fighting the CPT just in certain areas maybe the hands feel too rough in those areas?? It's worth a try. Maybe try it out on yourself - have your husband do CPT on you with the cup and then with hands and see if you notice a difference.

 

[Buckeye]

I second the cup thing. We were taught to do CPT both with and without the cup, but I prefer the cup thing (I'm sure there's a more accurate term for it). But if she's fighting the CPT just in certain areas maybe the hands feel too rough in those areas?? It's worth a try. Maybe try it out on yourself - have your husband do CPT on you with the cup and then with hands and see if you notice a difference.

 

[Buckeye]

I second the cup thing. We were taught to do CPT both with and without the cup, but I prefer the cup thing (I'm sure there's a more accurate term for it). But if she's fighting the CPT just in certain areas maybe the hands feel too rough in those areas?? It's worth a try. Maybe try it out on yourself - have your husband do CPT on you with the cup and then with hands and see if you notice a difference.

 

[Buckeye]

I second the cup thing. We were taught to do CPT both with and without the cup, but I prefer the cup thing (I'm sure there's a more accurate term for it). But if she's fighting the CPT just in certain areas maybe the hands feel too rough in those areas?? It's worth a try. Maybe try it out on yourself - have your husband do CPT on you with the cup and then with hands and see if you notice a difference.

 

[Buckeye]

I second the cup thing. We were taught to do CPT both with and without the cup, but I prefer the cup thing (I'm sure there's a more accurate term for it). But if she's fighting the CPT just in certain areas maybe the hands feel too rough in those areas?? It's worth a try. Maybe try it out on yourself - have your husband do CPT on you with the cup and then with hands and see if you notice a difference.

 

[hmw]

I agree that various RT's have various preferences on methods even within the same clinic. The first one we saw taught us CPT, then we were given the Acapella and one RT liked that more than CPT (that went over with Emily like a lead balloon; she had NO endurance for it); then another was surprised that we were doing manual CPT with Emily and recommended the vest the first time she met us. But the clinic doctors all believe it vital that parents are taught the correct way to perform manual CPT, because what if the vest breaks or you go on vacation and don't want to lug it, or the child is too sick to do the Acapella or other similar devices? Then it's up to you to do it and be able to do it right. And even the RT's with different methods at our center agree that SOMETHING has to be done twice a day for an adequate amount of time.

 

[hmw]

I agree that various RT's have various preferences on methods even within the same clinic. The first one we saw taught us CPT, then we were given the Acapella and one RT liked that more than CPT (that went over with Emily like a lead balloon; she had NO endurance for it); then another was surprised that we were doing manual CPT with Emily and recommended the vest the first time she met us. But the clinic doctors all believe it vital that parents are taught the correct way to perform manual CPT, because what if the vest breaks or you go on vacation and don't want to lug it, or the child is too sick to do the Acapella or other similar devices? Then it's up to you to do it and be able to do it right. And even the RT's with different methods at our center agree that SOMETHING has to be done twice a day for an adequate amount of time.

 

[hmw]

I agree that various RT's have various preferences on methods even within the same clinic. The first one we saw taught us CPT, then we were given the Acapella and one RT liked that more than CPT (that went over with Emily like a lead balloon; she had NO endurance for it); then another was surprised that we were doing manual CPT with Emily and recommended the vest the first time she met us. But the clinic doctors all believe it vital that parents are taught the correct way to perform manual CPT, because what if the vest breaks or you go on vacation and don't want to lug it, or the child is too sick to do the Acapella or other similar devices? Then it's up to you to do it and be able to do it right. And even the RT's with different methods at our center agree that SOMETHING has to be done twice a day for an adequate amount of time.

 

[hmw]

I agree that various RT's have various preferences on methods even within the same clinic. The first one we saw taught us CPT, then we were given the Acapella and one RT liked that more than CPT (that went over with Emily like a lead balloon; she had NO endurance for it); then another was surprised that we were doing manual CPT with Emily and recommended the vest the first time she met us. But the clinic doctors all believe it vital that parents are taught the correct way to perform manual CPT, because what if the vest breaks or you go on vacation and don't want to lug it, or the child is too sick to do the Acapella or other similar devices? Then it's up to you to do it and be able to do it right. And even the RT's with different methods at our center agree that SOMETHING has to be done twice a day for an adequate amount of time.

 

[hmw]

I agree that various RT's have various preferences on methods even within the same clinic. The first one we saw taught us CPT, then we were given the Acapella and one RT liked that more than CPT (that went over with Emily like a lead balloon; she had NO endurance for it); then another was surprised that we were doing manual CPT with Emily and recommended the vest the first time she met us. But the clinic doctors all believe it vital that parents are taught the correct way to perform manual CPT, because what if the vest breaks or you go on vacation and don't want to lug it, or the child is too sick to do the Acapella or other similar devices? Then it's up to you to do it and be able to do it right. And even the RT's with different methods at our center agree that SOMETHING has to be done twice a day for an adequate amount of time.
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