C
Cherylwithone
Guest
Julie, Heather is right. They do have a relationship with Beth Suffian and they pay for to speak at hospitals.
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<br />I heard her speak along with Joan Finnegan Brooks. Some of the info was off the mark. Like you can never meet someone with CF if you yourself has cf. My daughter has meet several people with cf and it was the best thing that ever happened. It gave her the fight to make plans etc.
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<br />You would think that the CFF would want the extra legal help for people. After all there is alot who need help. An you right we are all in the same fight.
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<br />Keep doing what your doing Julie. We would be lost with out here.
<br />
<br />I heard her speak along with Joan Finnegan Brooks. Some of the info was off the mark. Like you can never meet someone with CF if you yourself has cf. My daughter has meet several people with cf and it was the best thing that ever happened. It gave her the fight to make plans etc.
<br />
<br />You would think that the CFF would want the extra legal help for people. After all there is alot who need help. An you right we are all in the same fight.
<br />
<br />Keep doing what your doing Julie. We would be lost with out here.