Awaiting Tests

[SandyCheeks]

Wow! You really have been through alot! I hope you find something out with this round of tests. It is so exhausting to have a sick kid and not have any real reason they are sick. Of course at the same time I hope your son doesn't have CF. My daughter has had tubes, tonsils and adenoids out as well. Every time I think we are fixing things the infection finds somewhere else to pop up. Good luck and let me know how it goes. <img src="i/expressions/heart.gif" border="0">

 

[SandyCheeks]

Wow! You really have been through alot! I hope you find something out with this round of tests. It is so exhausting to have a sick kid and not have any real reason they are sick. Of course at the same time I hope your son doesn't have CF. My daughter has had tubes, tonsils and adenoids out as well. Every time I think we are fixing things the infection finds somewhere else to pop up. Good luck and let me know how it goes. <img src="i/expressions/heart.gif" border="0">

 

[SandyCheeks]

Wow! You really have been through alot! I hope you find something out with this round of tests. It is so exhausting to have a sick kid and not have any real reason they are sick. Of course at the same time I hope your son doesn't have CF. My daughter has had tubes, tonsils and adenoids out as well. Every time I think we are fixing things the infection finds somewhere else to pop up. Good luck and let me know how it goes. <img src="i/expressions/heart.gif" border="0">

 

[SandyCheeks]

Wow! You really have been through alot! I hope you find something out with this round of tests. It is so exhausting to have a sick kid and not have any real reason they are sick. Of course at the same time I hope your son doesn't have CF. My daughter has had tubes, tonsils and adenoids out as well. Every time I think we are fixing things the infection finds somewhere else to pop up. Good luck and let me know how it goes. <img src="i/expressions/heart.gif" border="0">

 

[SandyCheeks]

Wow! You really have been through alot! I hope you find something out with this round of tests. It is so exhausting to have a sick kid and not have any real reason they are sick. Of course at the same time I hope your son doesn't have CF. My daughter has had tubes, tonsils and adenoids out as well. Every time I think we are fixing things the infection finds somewhere else to pop up. Good luck and let me know how it goes. <img src="i/expressions/heart.gif" border="0">

 

[SandyCheeks]

Chrissy,
That is my fear, regret. I push for a while and then I start letting people influence my thinking and I start to think, maybe she is not sick after all. Then she gets sick again and we cycle through all of it again.
I went through this with my youngest one as well- only she had alot more trouble breathing, and belly pain (still has that).
I do need to be more proactive, that is why I am on this site. The more I read the more I think that I could be onto something with this whole CF thing... we will have to see.
How did you finally get diagnosed?

Thanks,
Sandy

 

[SandyCheeks]

Chrissy,
That is my fear, regret. I push for a while and then I start letting people influence my thinking and I start to think, maybe she is not sick after all. Then she gets sick again and we cycle through all of it again.
I went through this with my youngest one as well- only she had alot more trouble breathing, and belly pain (still has that).
I do need to be more proactive, that is why I am on this site. The more I read the more I think that I could be onto something with this whole CF thing... we will have to see.
How did you finally get diagnosed?

Thanks,
Sandy

 

[SandyCheeks]

Chrissy,
That is my fear, regret. I push for a while and then I start letting people influence my thinking and I start to think, maybe she is not sick after all. Then she gets sick again and we cycle through all of it again.
I went through this with my youngest one as well- only she had alot more trouble breathing, and belly pain (still has that).
I do need to be more proactive, that is why I am on this site. The more I read the more I think that I could be onto something with this whole CF thing... we will have to see.
How did you finally get diagnosed?

Thanks,
Sandy

 

[SandyCheeks]

Chrissy,
That is my fear, regret. I push for a while and then I start letting people influence my thinking and I start to think, maybe she is not sick after all. Then she gets sick again and we cycle through all of it again.
I went through this with my youngest one as well- only she had alot more trouble breathing, and belly pain (still has that).
I do need to be more proactive, that is why I am on this site. The more I read the more I think that I could be onto something with this whole CF thing... we will have to see.
How did you finally get diagnosed?

Thanks,
Sandy

 

[SandyCheeks]

Chrissy,
<br />That is my fear, regret. I push for a while and then I start letting people influence my thinking and I start to think, maybe she is not sick after all. Then she gets sick again and we cycle through all of it again.
<br />I went through this with my youngest one as well- only she had alot more trouble breathing, and belly pain (still has that).
<br />I do need to be more proactive, that is why I am on this site. The more I read the more I think that I could be onto something with this whole CF thing... we will have to see.
<br />How did you finally get diagnosed?
<br />
<br />Thanks,
<br />Sandy

 

[chrissyd]

There is a new section, it was put up maybe a week ago. Its full of diagnosis stories. You should check it out not only is mine there, but others are as well. Its my hope that parents like yourself, CF patients and CF partners will see them and get something out of them; hope, understanding, and comfort.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/categories.cfm?catid=2964&entercat=y">Diagnosis</a>

<img src="i/expressions/rose.gif" border="0">
Chrissy
30 W/CF

 

[chrissyd]

There is a new section, it was put up maybe a week ago. Its full of diagnosis stories. You should check it out not only is mine there, but others are as well. Its my hope that parents like yourself, CF patients and CF partners will see them and get something out of them; hope, understanding, and comfort.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/categories.cfm?catid=2964&entercat=y">Diagnosis</a>

<img src="i/expressions/rose.gif" border="0">
Chrissy
30 W/CF

 

[chrissyd]

There is a new section, it was put up maybe a week ago. Its full of diagnosis stories. You should check it out not only is mine there, but others are as well. Its my hope that parents like yourself, CF patients and CF partners will see them and get something out of them; hope, understanding, and comfort.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/categories.cfm?catid=2964&entercat=y">Diagnosis</a>

<img src="i/expressions/rose.gif" border="0">
Chrissy
30 W/CF

 

[chrissyd]

There is a new section, it was put up maybe a week ago. Its full of diagnosis stories. You should check it out not only is mine there, but others are as well. Its my hope that parents like yourself, CF patients and CF partners will see them and get something out of them; hope, understanding, and comfort.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/categories.cfm?catid=2964&entercat=y">Diagnosis</a>

<img src="i/expressions/rose.gif" border="0">
Chrissy
30 W/CF

 

[chrissyd]

There is a new section, it was put up maybe a week ago. Its full of diagnosis stories. You should check it out not only is mine there, but others are as well. Its my hope that parents like yourself, CF patients and CF partners will see them and get something out of them; hope, understanding, and comfort.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/categories.cfm?catid=2964&entercat=y">Diagnosis</a>
<br />
<br /><img src="i/expressions/rose.gif" border="0">
<br />Chrissy
<br />30 W/CF

 

[MeganMartinez]

Sandy,
I read your story and agree with everyone that you need to keep pushing. My 3rd child, Gracie was born in Aug '07, within 2 weeks she was diagnosed with cf. We had my other 2 kids tested at Childrens Hospital of Philadelphia, which I love. To our shock my oldest daughter Caitlin was positive for cf. She had been undiagnosed for 9 yrs! When her pulmonologist saw her x-ray at CHOP and she had a partial collapse of her left lung. She has also tested positive for MRSA. She always had a cough, since she was little. I took her to allergist and specialist and everyone told me that she had allergies, asthma, sinus infections and bronchitis. She was highly allergic to dust, so I thought that I could only protect her from so much dust in the world that is why she had a cough all the time. I knew something was wrong but I was made to feel like I was being over protective. I hope that it is not cf but whatever it is you want to know as much as you can about it, so you can help her. Remember there are some cases where a child may have cf but they have only found one mutated gene. I will keep you in my prayers, but keep us posted.
Megan- Mom to
Caity- 10 yrs- with cf
Mike 8 yrs- with no cf
Gracie- 8 months with cf DF508 & R117H

 

[MeganMartinez]

Sandy,
I read your story and agree with everyone that you need to keep pushing. My 3rd child, Gracie was born in Aug '07, within 2 weeks she was diagnosed with cf. We had my other 2 kids tested at Childrens Hospital of Philadelphia, which I love. To our shock my oldest daughter Caitlin was positive for cf. She had been undiagnosed for 9 yrs! When her pulmonologist saw her x-ray at CHOP and she had a partial collapse of her left lung. She has also tested positive for MRSA. She always had a cough, since she was little. I took her to allergist and specialist and everyone told me that she had allergies, asthma, sinus infections and bronchitis. She was highly allergic to dust, so I thought that I could only protect her from so much dust in the world that is why she had a cough all the time. I knew something was wrong but I was made to feel like I was being over protective. I hope that it is not cf but whatever it is you want to know as much as you can about it, so you can help her. Remember there are some cases where a child may have cf but they have only found one mutated gene. I will keep you in my prayers, but keep us posted.
Megan- Mom to
Caity- 10 yrs- with cf
Mike 8 yrs- with no cf
Gracie- 8 months with cf DF508 & R117H

 

[MeganMartinez]

Sandy,
I read your story and agree with everyone that you need to keep pushing. My 3rd child, Gracie was born in Aug '07, within 2 weeks she was diagnosed with cf. We had my other 2 kids tested at Childrens Hospital of Philadelphia, which I love. To our shock my oldest daughter Caitlin was positive for cf. She had been undiagnosed for 9 yrs! When her pulmonologist saw her x-ray at CHOP and she had a partial collapse of her left lung. She has also tested positive for MRSA. She always had a cough, since she was little. I took her to allergist and specialist and everyone told me that she had allergies, asthma, sinus infections and bronchitis. She was highly allergic to dust, so I thought that I could only protect her from so much dust in the world that is why she had a cough all the time. I knew something was wrong but I was made to feel like I was being over protective. I hope that it is not cf but whatever it is you want to know as much as you can about it, so you can help her. Remember there are some cases where a child may have cf but they have only found one mutated gene. I will keep you in my prayers, but keep us posted.
Megan- Mom to
Caity- 10 yrs- with cf
Mike 8 yrs- with no cf
Gracie- 8 months with cf DF508 & R117H

 

[MeganMartinez]

Sandy,
I read your story and agree with everyone that you need to keep pushing. My 3rd child, Gracie was born in Aug '07, within 2 weeks she was diagnosed with cf. We had my other 2 kids tested at Childrens Hospital of Philadelphia, which I love. To our shock my oldest daughter Caitlin was positive for cf. She had been undiagnosed for 9 yrs! When her pulmonologist saw her x-ray at CHOP and she had a partial collapse of her left lung. She has also tested positive for MRSA. She always had a cough, since she was little. I took her to allergist and specialist and everyone told me that she had allergies, asthma, sinus infections and bronchitis. She was highly allergic to dust, so I thought that I could only protect her from so much dust in the world that is why she had a cough all the time. I knew something was wrong but I was made to feel like I was being over protective. I hope that it is not cf but whatever it is you want to know as much as you can about it, so you can help her. Remember there are some cases where a child may have cf but they have only found one mutated gene. I will keep you in my prayers, but keep us posted.
Megan- Mom to
Caity- 10 yrs- with cf
Mike 8 yrs- with no cf
Gracie- 8 months with cf DF508 & R117H

 

[MeganMartinez]

Sandy,
<br /> I read your story and agree with everyone that you need to keep pushing. My 3rd child, Gracie was born in Aug '07, within 2 weeks she was diagnosed with cf. We had my other 2 kids tested at Childrens Hospital of Philadelphia, which I love. To our shock my oldest daughter Caitlin was positive for cf. She had been undiagnosed for 9 yrs! When her pulmonologist saw her x-ray at CHOP and she had a partial collapse of her left lung. She has also tested positive for MRSA. She always had a cough, since she was little. I took her to allergist and specialist and everyone told me that she had allergies, asthma, sinus infections and bronchitis. She was highly allergic to dust, so I thought that I could only protect her from so much dust in the world that is why she had a cough all the time. I knew something was wrong but I was made to feel like I was being over protective. I hope that it is not cf but whatever it is you want to know as much as you can about it, so you can help her. Remember there are some cases where a child may have cf but they have only found one mutated gene. I will keep you in my prayers, but keep us posted.
<br />Megan- Mom to
<br />Caity- 10 yrs- with cf
<br />Mike 8 yrs- with no cf
<br />Gracie- 8 months with cf DF508 & R117H