What I did is emailed them at the address that was listed on the website. Then someone emailed me an application to fill out. I faxed back the application with all relevant documents (rental contract, credit card bills, car insurance, pay stubbs...) and three weeks later I recieved a check from them.
Needless to say, in the CF fundraising that I am doing this year, I am sending out information on behalf of the milan foundation as well. I feel the CF foundation is very important and vital in their work towards a cure for CF, but I also think it is important to support other "foundations" that help CFers with some daily struggles. They helped us by food for christmas, and I definetly feel like it's important to give back what I get. If anyone else is interested in raising any money for them (it goes to support families of CFers, who are taking care of CFers in tough times) I know they would be extatic to send some information to anyone who inquires.
Julie