imported_Momto2
New member
You're all in our prayers. I am so sorry this is happening to your family.
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Back into the hospital tonight
- Thread starter just1more
- Start date
imported_Momto2
New member
You're all in our prayers. I am so sorry this is happening to your family.
JennyCoulon
New member
I don't know much about Micah's liver issues but I was just thinking is a liver transplant a possible option? I am sorry and you and your family are going thru this. I can't imagine how you guys are feeling as my heart is breaking and I don't even know Micah. Sending good vibes and prayers your way and please let us know if there is anything that you guys need as we are all one big CF family.
JennyCoulon
New member
I don't know much about Micah's liver issues but I was just thinking is a liver transplant a possible option? I am sorry and you and your family are going thru this. I can't imagine how you guys are feeling as my heart is breaking and I don't even know Micah. Sending good vibes and prayers your way and please let us know if there is anything that you guys need as we are all one big CF family.
TestifyToLove
New member
When they corrected Micah's meconium illeum, they didn't leave enough small bowel for a liver transplant. Thus, he would require a multi-viseral transplant. There were less than half a dozen pediatric multi-viseral transplants done in the US last year. Micah will not qualify when you account for his advanced liver disease *and* his combination of Autism and Bipolar.
When we adopted him, we had assumed he would be able to get a liver transplant. We assumed daddy would be a living donor. We were told three years ago that was not an option based upon the condition of Micah's gut (or what little bit of it is actually left with him after multiple bowel obstructions and resections.
When we adopted him, we had assumed he would be able to get a liver transplant. We assumed daddy would be a living donor. We were told three years ago that was not an option based upon the condition of Micah's gut (or what little bit of it is actually left with him after multiple bowel obstructions and resections.
TestifyToLove
New member
When they corrected Micah's meconium illeum, they didn't leave enough small bowel for a liver transplant. Thus, he would require a multi-viseral transplant. There were less than half a dozen pediatric multi-viseral transplants done in the US last year. Micah will not qualify when you account for his advanced liver disease *and* his combination of Autism and Bipolar.
When we adopted him, we had assumed he would be able to get a liver transplant. We assumed daddy would be a living donor. We were told three years ago that was not an option based upon the condition of Micah's gut (or what little bit of it is actually left with him after multiple bowel obstructions and resections.
When we adopted him, we had assumed he would be able to get a liver transplant. We assumed daddy would be a living donor. We were told three years ago that was not an option based upon the condition of Micah's gut (or what little bit of it is actually left with him after multiple bowel obstructions and resections.