At the hospital that my son goes to the CF docs have strict rules that cfers are done with at 9 pm and dont get woke up till 7 am because they believe that they are there to get well and sleep is an important part of it. In our house he goes to bed at 7:30 in the winter and 8:30 in the summer. The rt learned real soon that she can not come in his room after he is a sleep because he let her have it. He is not a happy person when woke up. Hope they let him get some sleep.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Bedtime in Hospital--??
- Thread starter just1more
- Start date
At the hospital that my son goes to the CF docs have strict rules that cfers are done with at 9 pm and dont get woke up till 7 am because they believe that they are there to get well and sleep is an important part of it. In our house he goes to bed at 7:30 in the winter and 8:30 in the summer. The rt learned real soon that she can not come in his room after he is a sleep because he let her have it. He is not a happy person when woke up. Hope they let him get some sleep.
At the hospital that my son goes to the CF docs have strict rules that cfers are done with at 9 pm and dont get woke up till 7 am because they believe that they are there to get well and sleep is an important part of it. In our house he goes to bed at 7:30 in the winter and 8:30 in the summer. The rt learned real soon that she can not come in his room after he is a sleep because he let her have it. He is not a happy person when woke up. Hope they let him get some sleep.
At the hospital that my son goes to the CF docs have strict rules that cfers are done with at 9 pm and dont get woke up till 7 am because they believe that they are there to get well and sleep is an important part of it. In our house he goes to bed at 7:30 in the winter and 8:30 in the summer. The rt learned real soon that she can not come in his room after he is a sleep because he let her have it. He is not a happy person when woke up. Hope they let him get some sleep.
At the hospital that my son goes to the CF docs have strict rules that cfers are done with at 9 pm and dont get woke up till 7 am because they believe that they are there to get well and sleep is an important part of it. In our house he goes to bed at 7:30 in the winter and 8:30 in the summer. The rt learned real soon that she can not come in his room after he is a sleep because he let her have it. He is not a happy person when woke up. Hope they let him get some sleep.
I think in general in a Childrens Hospital the kid's normal bedtimes get thrown out the window. You have to figure that the majority of the kids are in there for surgeries, serious injuries, burns etc so for them it is more a matter of sleeping when they can get pain relief. IV's for CFers would be one of the rare instances where you could even attempt a normal bedtime routine, so maybe those nurses aren't used to Cfers?When my son was in in October for Kidney stones he was put on the pulmo floor for the 1st time since his cf diagnosis and those nurses tended to respect his need for sleep a little more than the other nurses we've run into. Not that he could sleep very well with the Kidney stones, but at least if he happened to be asleep they didn't bother him. But if you walk the floor at 4:00 am, you might be surprised at how many rooms have TVs still on.
I think in general in a Childrens Hospital the kid's normal bedtimes get thrown out the window. You have to figure that the majority of the kids are in there for surgeries, serious injuries, burns etc so for them it is more a matter of sleeping when they can get pain relief. IV's for CFers would be one of the rare instances where you could even attempt a normal bedtime routine, so maybe those nurses aren't used to Cfers?When my son was in in October for Kidney stones he was put on the pulmo floor for the 1st time since his cf diagnosis and those nurses tended to respect his need for sleep a little more than the other nurses we've run into. Not that he could sleep very well with the Kidney stones, but at least if he happened to be asleep they didn't bother him. But if you walk the floor at 4:00 am, you might be surprised at how many rooms have TVs still on.
I think in general in a Childrens Hospital the kid's normal bedtimes get thrown out the window. You have to figure that the majority of the kids are in there for surgeries, serious injuries, burns etc so for them it is more a matter of sleeping when they can get pain relief. IV's for CFers would be one of the rare instances where you could even attempt a normal bedtime routine, so maybe those nurses aren't used to Cfers?When my son was in in October for Kidney stones he was put on the pulmo floor for the 1st time since his cf diagnosis and those nurses tended to respect his need for sleep a little more than the other nurses we've run into. Not that he could sleep very well with the Kidney stones, but at least if he happened to be asleep they didn't bother him. But if you walk the floor at 4:00 am, you might be surprised at how many rooms have TVs still on.
I think in general in a Childrens Hospital the kid's normal bedtimes get thrown out the window. You have to figure that the majority of the kids are in there for surgeries, serious injuries, burns etc so for them it is more a matter of sleeping when they can get pain relief. IV's for CFers would be one of the rare instances where you could even attempt a normal bedtime routine, so maybe those nurses aren't used to Cfers?When my son was in in October for Kidney stones he was put on the pulmo floor for the 1st time since his cf diagnosis and those nurses tended to respect his need for sleep a little more than the other nurses we've run into. Not that he could sleep very well with the Kidney stones, but at least if he happened to be asleep they didn't bother him. But if you walk the floor at 4:00 am, you might be surprised at how many rooms have TVs still on.
I think in general in a Childrens Hospital the kid's normal bedtimes get thrown out the window. You have to figure that the majority of the kids are in there for surgeries, serious injuries, burns etc so for them it is more a matter of sleeping when they can get pain relief. IV's for CFers would be one of the rare instances where you could even attempt a normal bedtime routine, so maybe those nurses aren't used to Cfers?<p>When my son was in in October for Kidney stones he was put on the pulmo floor for the 1st time since his cf diagnosis and those nurses tended to respect his need for sleep a little more than the other nurses we've run into. Not that he could sleep very well with the Kidney stones, but at least if he happened to be asleep they didn't bother him. But if you walk the floor at 4:00 am, you might be surprised at how many rooms have TVs still on.
When Austin was a little bit younger he developed a routine in the hospital of staying awake very late. The 3rd shift nurse thought maybe he was hungry. So around 1 am every day he wanted a bowl of cereal.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
When Austin was a little bit younger he developed a routine in the hospital of staying awake very late. The 3rd shift nurse thought maybe he was hungry. So around 1 am every day he wanted a bowl of cereal.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
When Austin was a little bit younger he developed a routine in the hospital of staying awake very late. The 3rd shift nurse thought maybe he was hungry. So around 1 am every day he wanted a bowl of cereal.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
When Austin was a little bit younger he developed a routine in the hospital of staying awake very late. The 3rd shift nurse thought maybe he was hungry. So around 1 am every day he wanted a bowl of cereal.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
When Austin was a little bit younger he developed a routine in the hospital of staying awake very late. The 3rd shift nurse thought maybe he was hungry. So around 1 am every day he wanted a bowl of cereal.
<br />
<br />Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
<br />
<br />Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
<br />
<br />The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
<br />
<br />Over time we started developing a stricter bed time. It is really important that they ahve rest aslo. Our cf doctors work really well with having the children get as much rest as possible.
<br />
<br />Austin routinely has melatonin at home during the school year. So the doctors were making sure he had his melatonin at his normal time. But we did adjust the timeing of that because Rt came in after he was asleep one night to do his therapy and he really went beserk when they were hooking him up. So now when he is in we make sure RT is there before 8 pm for the last treatment.
<br />
<br />The nurses that we have encountered on the most part are very good about not interrupting him while he is asleep. They have been able to do the meds without waking him.
M
Mommafirst
Guest
I HATE the way the hospital doesn't respect a child's need to sleep. While it isn't always feasible, I tell the night nurse that I would like to have EVERYTHING done at once, whatever time she sees fit, but once: vitals, IV meds, etc. Once between 10pm at 6am. And even at that I get up with a flashlight and help her do it quietly so that we don't wake my daughter. Almost all the nurses I've dealt with have been helpful once I've laid it out there. Of course this only works when they are in for a CF exacerbation, surgeries, etc., seem to have different rules, but I still try to get them to work with me.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
M
Mommafirst
Guest
I HATE the way the hospital doesn't respect a child's need to sleep. While it isn't always feasible, I tell the night nurse that I would like to have EVERYTHING done at once, whatever time she sees fit, but once: vitals, IV meds, etc. Once between 10pm at 6am. And even at that I get up with a flashlight and help her do it quietly so that we don't wake my daughter. Almost all the nurses I've dealt with have been helpful once I've laid it out there. Of course this only works when they are in for a CF exacerbation, surgeries, etc., seem to have different rules, but I still try to get them to work with me.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
M
Mommafirst
Guest
I HATE the way the hospital doesn't respect a child's need to sleep. While it isn't always feasible, I tell the night nurse that I would like to have EVERYTHING done at once, whatever time she sees fit, but once: vitals, IV meds, etc. Once between 10pm at 6am. And even at that I get up with a flashlight and help her do it quietly so that we don't wake my daughter. Almost all the nurses I've dealt with have been helpful once I've laid it out there. Of course this only works when they are in for a CF exacerbation, surgeries, etc., seem to have different rules, but I still try to get them to work with me.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
M
Mommafirst
Guest
I HATE the way the hospital doesn't respect a child's need to sleep. While it isn't always feasible, I tell the night nurse that I would like to have EVERYTHING done at once, whatever time she sees fit, but once: vitals, IV meds, etc. Once between 10pm at 6am. And even at that I get up with a flashlight and help her do it quietly so that we don't wake my daughter. Almost all the nurses I've dealt with have been helpful once I've laid it out there. Of course this only works when they are in for a CF exacerbation, surgeries, etc., seem to have different rules, but I still try to get them to work with me.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
M
Mommafirst
Guest
I HATE the way the hospital doesn't respect a child's need to sleep. While it isn't always feasible, I tell the night nurse that I would like to have EVERYTHING done at once, whatever time she sees fit, but once: vitals, IV meds, etc. Once between 10pm at 6am. And even at that I get up with a flashlight and help her do it quietly so that we don't wake my daughter. Almost all the nurses I've dealt with have been helpful once I've laid it out there. Of course this only works when they are in for a CF exacerbation, surgeries, etc., seem to have different rules, but I still try to get them to work with me.
<br />
<br />As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
<br />
<br />I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
<br />
<br />I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.
<br />
<br />As for staying up past bedtime, I try to start dimming the lights about 8ish. nurses work 7-7 shifts. So when the night nurse comes in to do vitals etc., its usually 8ish. AFter that visit, I dim the lights and we sit quietly.
<br />
<br />I also have had to tell the RT that she will get her 4 therapies during waking hours 7am - 9pm only. They have left the vest machine for us in the room so that I can just give it to her before bed and don't have to wait for the RT who tends to show up late every time, usually after 10, but once she showed up at 1am!! WTH????
<br />
<br />I am thankful that our docs let us go home with the IVs after just 4 days in patient. I'm always eager to get her home and on a more normal schedule.