Bowel cancer and CF

[PinkPigg]

Hey Lila. That sucks that you have cancer. Nothing life having to scary diagnosis. Like Grace said GI cancers are more common in those with CF. My diagnosis was rectal cancer. I was lucky and it was stage 1. However, I ended up with a permanent colostomy due to the location. Treatment is very much dependant on what stage of cancer you have. The National Comprehensive Cancer Network sets treatment guidelines for various types of cancers. I liked looking at them to have an awareness of what the correct treatment is and then knowing that my doctor followed it.
<br />
<br />There is a lot on my blog as Lauren mentioned (thanks!). But of course you can always send me an email if you want to talk more. My email is <A HREF="mailto:randsrath@tds.net">randsrath@tds.net</A>. Cancer is not for pussies but stay strong and you can kick it's butt!!!
<br />
<br />Peace,
<br />Steph

 

[lilaonholiday]

Thank-you both for getting in touch. Things have changed for me as they have realised that some lesions in my liver are cancerous. They are too widespread to operate on, so there isn't a great deal that can be done in terms of a 'cure'. I am being offered chemo in order to shrink back the tumour in my bowel, and a stent fitted within it so it can be opened up. I had a barium enema today which showed a stricture, so food hasn't been passing through properly and I keep getting blocked. I feel so sad about the news it is hard to take in. I do wish docs had caught it earlier. Kept being told that the blood in my stools was piles. I have to try and pick myself up to keep on fighting, but as everyone with CF knows, this isn't always easy.

 

[lilaonholiday]

Thank-you both for getting in touch. Things have changed for me as they have realised that some lesions in my liver are cancerous. They are too widespread to operate on, so there isn't a great deal that can be done in terms of a 'cure'. I am being offered chemo in order to shrink back the tumour in my bowel, and a stent fitted within it so it can be opened up. I had a barium enema today which showed a stricture, so food hasn't been passing through properly and I keep getting blocked. I feel so sad about the news it is hard to take in. I do wish docs had caught it earlier. Kept being told that the blood in my stools was piles. I have to try and pick myself up to keep on fighting, but as everyone with CF knows, this isn't always easy.

 

[lilaonholiday]

Thank-you both for getting in touch. Things have changed for me as they have realised that some lesions in my liver are cancerous. They are too widespread to operate on, so there isn't a great deal that can be done in terms of a 'cure'. I am being offered chemo in order to shrink back the tumour in my bowel, and a stent fitted within it so it can be opened up. I had a barium enema today which showed a stricture, so food hasn't been passing through properly and I keep getting blocked. I feel so sad about the news it is hard to take in. I do wish docs had caught it earlier. Kept being told that the blood in my stools was piles. I have to try and pick myself up to keep on fighting, but as everyone with CF knows, this isn't always easy. <BR>

 

[PinkPigg]

Hey Lila. This is really crappy news. I got a card a week or so ago talking about how important it is to have hope. I'm not trying to say that you can be cured but rather that whatever comes that you have the hope that it will be as easy a journey as possible. Saw on another post that you are into yoga. I love it too and it is a huge help when things get really bad. Here's to happiness and peace <img src="i/expressions/face-icon-small-smile.gif" border="0">

Namaste,
Steph

 

[PinkPigg]

Hey Lila. This is really crappy news. I got a card a week or so ago talking about how important it is to have hope. I'm not trying to say that you can be cured but rather that whatever comes that you have the hope that it will be as easy a journey as possible. Saw on another post that you are into yoga. I love it too and it is a huge help when things get really bad. Here's to happiness and peace <img src="i/expressions/face-icon-small-smile.gif" border="0">

Namaste,
Steph

 

[PinkPigg]

Hey Lila. This is really crappy news. I got a card a week or so ago talking about how important it is to have hope. I'm not trying to say that you can be cured but rather that whatever comes that you have the hope that it will be as easy a journey as possible. Saw on another post that you are into yoga. I love it too and it is a huge help when things get really bad. Here's to happiness and peace <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Namaste,
<br />Steph

 

[lilaonholiday]

Thanks Steph, It is so important to have hope and I appreciate your timely reminder. It is the times when I feel helpless and without hope that I feel the worst. I suppose my hope in terms of a possible 'cure' have been dashed, but that's not to say I won't have more good times in my life. I will take inspiration from you lovely people and try to carry on with a more positive outlook. I have too for the sake of my daughter and rest of the family if not for myself. I really enjoyed reading your blog, inspirational stuff. So good to hear another cfer who's into yoga. It's really helped get me through over the years and glad to hear it has been of such benefit to you. I had some reiki today, I do think that helped to relax me and put me in a better headspace.
Namaste
Karen (Lila is my lovely dog)

 

[lilaonholiday]

Thanks Steph, It is so important to have hope and I appreciate your timely reminder. It is the times when I feel helpless and without hope that I feel the worst. I suppose my hope in terms of a possible 'cure' have been dashed, but that's not to say I won't have more good times in my life. I will take inspiration from you lovely people and try to carry on with a more positive outlook. I have too for the sake of my daughter and rest of the family if not for myself. I really enjoyed reading your blog, inspirational stuff. So good to hear another cfer who's into yoga. It's really helped get me through over the years and glad to hear it has been of such benefit to you. I had some reiki today, I do think that helped to relax me and put me in a better headspace.
Namaste
Karen (Lila is my lovely dog)

 

[lilaonholiday]

Thanks Steph, It is so important to have hope and I appreciate your timely reminder. It is the times when I feel helpless and without hope that I feel the worst. I suppose my hope in terms of a possible 'cure' have been dashed, but that's not to say I won't have more good times in my life. I will take inspiration from you lovely people and try to carry on with a more positive outlook. I have too for the sake of my daughter and rest of the family if not for myself. I really enjoyed reading your blog, inspirational stuff. So good to hear another cfer who's into yoga. It's really helped get me through over the years and glad to hear it has been of such benefit to you. I had some reiki today, I do think that helped to relax me and put me in a better headspace.
<br />Namaste
<br />Karen (Lila is my lovely dog)

 

[Hopeandlove]

Hi Karen,
My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

 

[Hopeandlove]

Hi Karen,
My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

 

[Hopeandlove]

Hi Karen,
<br />My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!
<br />

 

[Hopeandlove]

Hi Karen,
My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

 

[Hopeandlove]

Hi Karen,
My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

 

[Hopeandlove]

Hi Karen,
<br />My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!
<br />

 

[lilaonholiday]

Hi Hope and Love,
Glad to hear the smoothies have been helpful. I'm wondering whether to try some natural remedies instead of chemo. They have said that chemo may extend my life a little but won't offer me a cure as such. I don't fully understand which stage my cancer is at, but if it's as widespread as the doctors seem to think I'm not sure that I want to put myself through chemo, if it's going to be very unpleasant. I was thinking about a high dose of curcumin, about 5g a day, milkthistle and aloe vera juice. Any thoughts anyone? Thanks for all your responses, they are so helpful.
Karen

 

[lilaonholiday]

Hi Hope and Love,
Glad to hear the smoothies have been helpful. I'm wondering whether to try some natural remedies instead of chemo. They have said that chemo may extend my life a little but won't offer me a cure as such. I don't fully understand which stage my cancer is at, but if it's as widespread as the doctors seem to think I'm not sure that I want to put myself through chemo, if it's going to be very unpleasant. I was thinking about a high dose of curcumin, about 5g a day, milkthistle and aloe vera juice. Any thoughts anyone? Thanks for all your responses, they are so helpful.
Karen

 

[lilaonholiday]

Hi Hope and Love,
<br />Glad to hear the smoothies have been helpful. I'm wondering whether to try some natural remedies instead of chemo. They have said that chemo may extend my life a little but won't offer me a cure as such. I don't fully understand which stage my cancer is at, but if it's as widespread as the doctors seem to think I'm not sure that I want to put myself through chemo, if it's going to be very unpleasant. I was thinking about a high dose of curcumin, about 5g a day, milkthistle and aloe vera juice. Any thoughts anyone? Thanks for all your responses, they are so helpful.
<br />Karen

 

[LouLou]

I've heard of someone who hired someone to come in and juice (including shopping to procur the veggies/herbs/fruits) to rid the woman of cancer AND it worked. So you might look into other options if they aren't even hopeful that the chemo would cure it. Miracles do happen!