Breastfeeding

Momtana

New member
Shannon, listen to your inner mother <img src="i/expressions/heart.gif" border="0"> voice. When I had my children (and we thought my problems were from allergies) I avoided wheat, dairy, citrus, peanuts (allergenic foods) and all meats except lamb and ham while I was pregnant and nursing. This was the advice given by my allergy doctor. So, one thing to consider is changing your diet. The end of our story is that our kids are all healthy; and the healthiest one of the three was solely breastfed for the first nine months. And, they didn't get allergies and I turned out to have CF!
I can recommend an excellent book for you: You Can Breastfeed Your Baby, Even in Special Situations. I can't remember the author, but it was a book I had in my hand in the 1980s when I was nursing my babies. Perhaps your local library has a copy.
p.s. when I was two weeks old and crying from belly pain the doctors told my Mother that "it must be your milk" and advised her to wean me. She always was bothered by that and felt it somehow led to all my health problems. <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

Momtana

New member
Shannon, listen to your inner mother <img src="i/expressions/heart.gif" border="0"> voice. When I had my children (and we thought my problems were from allergies) I avoided wheat, dairy, citrus, peanuts (allergenic foods) and all meats except lamb and ham while I was pregnant and nursing. This was the advice given by my allergy doctor. So, one thing to consider is changing your diet. The end of our story is that our kids are all healthy; and the healthiest one of the three was solely breastfed for the first nine months. And, they didn't get allergies and I turned out to have CF!
I can recommend an excellent book for you: You Can Breastfeed Your Baby, Even in Special Situations. I can't remember the author, but it was a book I had in my hand in the 1980s when I was nursing my babies. Perhaps your local library has a copy.
p.s. when I was two weeks old and crying from belly pain the doctors told my Mother that "it must be your milk" and advised her to wean me. She always was bothered by that and felt it somehow led to all my health problems. <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

Momtana

New member
Shannon, listen to your inner mother <img src="i/expressions/heart.gif" border="0"> voice. When I had my children (and we thought my problems were from allergies) I avoided wheat, dairy, citrus, peanuts (allergenic foods) and all meats except lamb and ham while I was pregnant and nursing. This was the advice given by my allergy doctor. So, one thing to consider is changing your diet. The end of our story is that our kids are all healthy; and the healthiest one of the three was solely breastfed for the first nine months. And, they didn't get allergies and I turned out to have CF!
I can recommend an excellent book for you: You Can Breastfeed Your Baby, Even in Special Situations. I can't remember the author, but it was a book I had in my hand in the 1980s when I was nursing my babies. Perhaps your local library has a copy.
p.s. when I was two weeks old and crying from belly pain the doctors told my Mother that "it must be your milk" and advised her to wean me. She always was bothered by that and felt it somehow led to all my health problems. <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

Momtana

New member
Shannon, listen to your inner mother <img src="i/expressions/heart.gif" border="0"> voice. When I had my children (and we thought my problems were from allergies) I avoided wheat, dairy, citrus, peanuts (allergenic foods) and all meats except lamb and ham while I was pregnant and nursing. This was the advice given by my allergy doctor. So, one thing to consider is changing your diet. The end of our story is that our kids are all healthy; and the healthiest one of the three was solely breastfed for the first nine months. And, they didn't get allergies and I turned out to have CF!
I can recommend an excellent book for you: You Can Breastfeed Your Baby, Even in Special Situations. I can't remember the author, but it was a book I had in my hand in the 1980s when I was nursing my babies. Perhaps your local library has a copy.
p.s. when I was two weeks old and crying from belly pain the doctors told my Mother that "it must be your milk" and advised her to wean me. She always was bothered by that and felt it somehow led to all my health problems. <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

Momtana

New member
Shannon, listen to your inner mother <img src="i/expressions/heart.gif" border="0"> voice. When I had my children (and we thought my problems were from allergies) I avoided wheat, dairy, citrus, peanuts (allergenic foods) and all meats except lamb and ham while I was pregnant and nursing. This was the advice given by my allergy doctor. So, one thing to consider is changing your diet. The end of our story is that our kids are all healthy; and the healthiest one of the three was solely breastfed for the first nine months. And, they didn't get allergies and I turned out to have CF!
I can recommend an excellent book for you: You Can Breastfeed Your Baby, Even in Special Situations. I can't remember the author, but it was a book I had in my hand in the 1980s when I was nursing my babies. Perhaps your local library has a copy.
p.s. when I was two weeks old and crying from belly pain the doctors told my Mother that "it must be your milk" and advised her to wean me. She always was bothered by that and felt it somehow led to all my health problems. <img src="i/expressions/face-icon-small-sad.gif" border="0">
 
S

sdelorenzo

Guest
Hi. I went a very similar situation. My daughter was diagnosed with cf at one month of age and I breast fed my daughter until 4 months old. She had started throwing up and not gaining weight at 6 weeks old. She had to be on a feeding tube for 3 months because she wasn't gaining and refusing to eat. The biggest mistake I made was stopping breast feeding or at least pumping. She ended up having a serious milk allergy, but we didn't find out until she was 7 months old. They did a bronchoscopy which showed her intestines were irritated by most likely an allergy. Once she switched to Nutrigamigen after three weeks she started to eat and gain weight. So her feeding tube came out then. When my son was born (also with cf) I was determined to breast feed until a year. I continued to pump for 6 months when he weaned himself at 6 months old. I really think breast feeding helps kids with cf. Have you considered pumping some and adding a milk-free formula like nutramigen?
Sharon, mom of Sophia, 6 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Hi. I went a very similar situation. My daughter was diagnosed with cf at one month of age and I breast fed my daughter until 4 months old. She had started throwing up and not gaining weight at 6 weeks old. She had to be on a feeding tube for 3 months because she wasn't gaining and refusing to eat. The biggest mistake I made was stopping breast feeding or at least pumping. She ended up having a serious milk allergy, but we didn't find out until she was 7 months old. They did a bronchoscopy which showed her intestines were irritated by most likely an allergy. Once she switched to Nutrigamigen after three weeks she started to eat and gain weight. So her feeding tube came out then. When my son was born (also with cf) I was determined to breast feed until a year. I continued to pump for 6 months when he weaned himself at 6 months old. I really think breast feeding helps kids with cf. Have you considered pumping some and adding a milk-free formula like nutramigen?
Sharon, mom of Sophia, 6 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Hi. I went a very similar situation. My daughter was diagnosed with cf at one month of age and I breast fed my daughter until 4 months old. She had started throwing up and not gaining weight at 6 weeks old. She had to be on a feeding tube for 3 months because she wasn't gaining and refusing to eat. The biggest mistake I made was stopping breast feeding or at least pumping. She ended up having a serious milk allergy, but we didn't find out until she was 7 months old. They did a bronchoscopy which showed her intestines were irritated by most likely an allergy. Once she switched to Nutrigamigen after three weeks she started to eat and gain weight. So her feeding tube came out then. When my son was born (also with cf) I was determined to breast feed until a year. I continued to pump for 6 months when he weaned himself at 6 months old. I really think breast feeding helps kids with cf. Have you considered pumping some and adding a milk-free formula like nutramigen?
Sharon, mom of Sophia, 6 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Hi. I went a very similar situation. My daughter was diagnosed with cf at one month of age and I breast fed my daughter until 4 months old. She had started throwing up and not gaining weight at 6 weeks old. She had to be on a feeding tube for 3 months because she wasn't gaining and refusing to eat. The biggest mistake I made was stopping breast feeding or at least pumping. She ended up having a serious milk allergy, but we didn't find out until she was 7 months old. They did a bronchoscopy which showed her intestines were irritated by most likely an allergy. Once she switched to Nutrigamigen after three weeks she started to eat and gain weight. So her feeding tube came out then. When my son was born (also with cf) I was determined to breast feed until a year. I continued to pump for 6 months when he weaned himself at 6 months old. I really think breast feeding helps kids with cf. Have you considered pumping some and adding a milk-free formula like nutramigen?
Sharon, mom of Sophia, 6 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Hi. I went a very similar situation. My daughter was diagnosed with cf at one month of age and I breast fed my daughter until 4 months old. She had started throwing up and not gaining weight at 6 weeks old. She had to be on a feeding tube for 3 months because she wasn't gaining and refusing to eat. The biggest mistake I made was stopping breast feeding or at least pumping. She ended up having a serious milk allergy, but we didn't find out until she was 7 months old. They did a bronchoscopy which showed her intestines were irritated by most likely an allergy. Once she switched to Nutrigamigen after three weeks she started to eat and gain weight. So her feeding tube came out then. When my son was born (also with cf) I was determined to breast feed until a year. I continued to pump for 6 months when he weaned himself at 6 months old. I really think breast feeding helps kids with cf. Have you considered pumping some and adding a milk-free formula like nutramigen?
Sharon, mom of Sophia, 6 and Jack, 3 both with cf
 

Rebjane

Super Moderator
I just wanted to add a few things; I breastfed my daughter with CF til she was 3 1/2 years old. We had alot of bumps in the road but we got through them. We did not encouter allergys however. Is you baby taking pancreatic enzymes with every nursing sesssion? I didn't see where you wrote what type of enzymes she takes. My daughter with CF nursed ALOT. I would say every 2 hours, sometimes every hour during the day. At night I would wake her up to nurse because she would sleep alot at night(just to beef her up). I found it helpful to have milk-over-supply issues to help the baby weight gain. There are things you can do to boost your milk supply; drink water every time you sit to nurse, eat a large bowl of oatmeal(for some reason it supposedly boost milk supply). Eat a healthy diet, continue to take your prenatal vitamin. I also took fish oil pills to boost the DHA in my breast milk. I'l be happy to help with ny questions you may have. My daughter nursed through two major abdominal surgeries, 1st bowel obstruction at birth and second another bowel obstruction at 5 1/2 months. I had a hospital-grade pump(medela) that I pumped while she couldn't nurse. her weight would drop after surgery and then I'ld get her nursing again when it was ok and her weght would go back up.HTH
 

Rebjane

Super Moderator
I just wanted to add a few things; I breastfed my daughter with CF til she was 3 1/2 years old. We had alot of bumps in the road but we got through them. We did not encouter allergys however. Is you baby taking pancreatic enzymes with every nursing sesssion? I didn't see where you wrote what type of enzymes she takes. My daughter with CF nursed ALOT. I would say every 2 hours, sometimes every hour during the day. At night I would wake her up to nurse because she would sleep alot at night(just to beef her up). I found it helpful to have milk-over-supply issues to help the baby weight gain. There are things you can do to boost your milk supply; drink water every time you sit to nurse, eat a large bowl of oatmeal(for some reason it supposedly boost milk supply). Eat a healthy diet, continue to take your prenatal vitamin. I also took fish oil pills to boost the DHA in my breast milk. I'l be happy to help with ny questions you may have. My daughter nursed through two major abdominal surgeries, 1st bowel obstruction at birth and second another bowel obstruction at 5 1/2 months. I had a hospital-grade pump(medela) that I pumped while she couldn't nurse. her weight would drop after surgery and then I'ld get her nursing again when it was ok and her weght would go back up.HTH
 

Rebjane

Super Moderator
I just wanted to add a few things; I breastfed my daughter with CF til she was 3 1/2 years old. We had alot of bumps in the road but we got through them. We did not encouter allergys however. Is you baby taking pancreatic enzymes with every nursing sesssion? I didn't see where you wrote what type of enzymes she takes. My daughter with CF nursed ALOT. I would say every 2 hours, sometimes every hour during the day. At night I would wake her up to nurse because she would sleep alot at night(just to beef her up). I found it helpful to have milk-over-supply issues to help the baby weight gain. There are things you can do to boost your milk supply; drink water every time you sit to nurse, eat a large bowl of oatmeal(for some reason it supposedly boost milk supply). Eat a healthy diet, continue to take your prenatal vitamin. I also took fish oil pills to boost the DHA in my breast milk. I'l be happy to help with ny questions you may have. My daughter nursed through two major abdominal surgeries, 1st bowel obstruction at birth and second another bowel obstruction at 5 1/2 months. I had a hospital-grade pump(medela) that I pumped while she couldn't nurse. her weight would drop after surgery and then I'ld get her nursing again when it was ok and her weght would go back up.HTH
 

Rebjane

Super Moderator
I just wanted to add a few things; I breastfed my daughter with CF til she was 3 1/2 years old. We had alot of bumps in the road but we got through them. We did not encouter allergys however. Is you baby taking pancreatic enzymes with every nursing sesssion? I didn't see where you wrote what type of enzymes she takes. My daughter with CF nursed ALOT. I would say every 2 hours, sometimes every hour during the day. At night I would wake her up to nurse because she would sleep alot at night(just to beef her up). I found it helpful to have milk-over-supply issues to help the baby weight gain. There are things you can do to boost your milk supply; drink water every time you sit to nurse, eat a large bowl of oatmeal(for some reason it supposedly boost milk supply). Eat a healthy diet, continue to take your prenatal vitamin. I also took fish oil pills to boost the DHA in my breast milk. I'l be happy to help with ny questions you may have. My daughter nursed through two major abdominal surgeries, 1st bowel obstruction at birth and second another bowel obstruction at 5 1/2 months. I had a hospital-grade pump(medela) that I pumped while she couldn't nurse. her weight would drop after surgery and then I'ld get her nursing again when it was ok and her weght would go back up.HTH
 

Rebjane

Super Moderator
I just wanted to add a few things; I breastfed my daughter with CF til she was 3 1/2 years old. We had alot of bumps in the road but we got through them. We did not encouter allergys however. Is you baby taking pancreatic enzymes with every nursing sesssion? I didn't see where you wrote what type of enzymes she takes. My daughter with CF nursed ALOT. I would say every 2 hours, sometimes every hour during the day. At night I would wake her up to nurse because she would sleep alot at night(just to beef her up). I found it helpful to have milk-over-supply issues to help the baby weight gain. There are things you can do to boost your milk supply; drink water every time you sit to nurse, eat a large bowl of oatmeal(for some reason it supposedly boost milk supply). Eat a healthy diet, continue to take your prenatal vitamin. I also took fish oil pills to boost the DHA in my breast milk. I'l be happy to help with ny questions you may have. My daughter nursed through two major abdominal surgeries, 1st bowel obstruction at birth and second another bowel obstruction at 5 1/2 months. I had a hospital-grade pump(medela) that I pumped while she couldn't nurse. her weight would drop after surgery and then I'ld get her nursing again when it was ok and her weght would go back up.HTH
 

wanderlost

New member
I am not a mom of a Cfer, just a mom and a CFer, but I am a huge breastfeeding advocate - please don't stop nursing it is the very best best food for your little Cfer and will be much easier for him to break downa dn digest than formula will. Even normal babies do go through spurts and plateaus with their weight gain - and some babie sre obviously naturally smaller than others. You may want to ask your doc if they are charting hsi weight on a breastfed baby weight gain chart - many peds offcies have weigth gain charts supplied by formula companies and are relevant for formula fed babes - I will find you a link to a breastfeeding one. I think with a CF baby you have to be very vigiilant in what you want - do you feel that he is growing and achieving as expected - is he healthy - and does he have enzymes yet? As momtana said, listen to your heart.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/index.html
">http://www.kellymom.com/babyconcerns/growth/index.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/chart2.html">http://www.kellymom.com/babyconcerns/growth/chart2.html</a>
 

wanderlost

New member
I am not a mom of a Cfer, just a mom and a CFer, but I am a huge breastfeeding advocate - please don't stop nursing it is the very best best food for your little Cfer and will be much easier for him to break downa dn digest than formula will. Even normal babies do go through spurts and plateaus with their weight gain - and some babie sre obviously naturally smaller than others. You may want to ask your doc if they are charting hsi weight on a breastfed baby weight gain chart - many peds offcies have weigth gain charts supplied by formula companies and are relevant for formula fed babes - I will find you a link to a breastfeeding one. I think with a CF baby you have to be very vigiilant in what you want - do you feel that he is growing and achieving as expected - is he healthy - and does he have enzymes yet? As momtana said, listen to your heart.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/index.html
">http://www.kellymom.com/babyconcerns/growth/index.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/chart2.html">http://www.kellymom.com/babyconcerns/growth/chart2.html</a>
 

wanderlost

New member
I am not a mom of a Cfer, just a mom and a CFer, but I am a huge breastfeeding advocate - please don't stop nursing it is the very best best food for your little Cfer and will be much easier for him to break downa dn digest than formula will. Even normal babies do go through spurts and plateaus with their weight gain - and some babie sre obviously naturally smaller than others. You may want to ask your doc if they are charting hsi weight on a breastfed baby weight gain chart - many peds offcies have weigth gain charts supplied by formula companies and are relevant for formula fed babes - I will find you a link to a breastfeeding one. I think with a CF baby you have to be very vigiilant in what you want - do you feel that he is growing and achieving as expected - is he healthy - and does he have enzymes yet? As momtana said, listen to your heart.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/index.html
">http://www.kellymom.com/babyconcerns/growth/index.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/chart2.html">http://www.kellymom.com/babyconcerns/growth/chart2.html</a>
 

wanderlost

New member
I am not a mom of a Cfer, just a mom and a CFer, but I am a huge breastfeeding advocate - please don't stop nursing it is the very best best food for your little Cfer and will be much easier for him to break downa dn digest than formula will. Even normal babies do go through spurts and plateaus with their weight gain - and some babie sre obviously naturally smaller than others. You may want to ask your doc if they are charting hsi weight on a breastfed baby weight gain chart - many peds offcies have weigth gain charts supplied by formula companies and are relevant for formula fed babes - I will find you a link to a breastfeeding one. I think with a CF baby you have to be very vigiilant in what you want - do you feel that he is growing and achieving as expected - is he healthy - and does he have enzymes yet? As momtana said, listen to your heart.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/index.html
">http://www.kellymom.com/babyconcerns/growth/index.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/chart2.html">http://www.kellymom.com/babyconcerns/growth/chart2.html</a>
 

wanderlost

New member
I am not a mom of a Cfer, just a mom and a CFer, but I am a huge breastfeeding advocate - please don't stop nursing it is the very best best food for your little Cfer and will be much easier for him to break downa dn digest than formula will. Even normal babies do go through spurts and plateaus with their weight gain - and some babie sre obviously naturally smaller than others. You may want to ask your doc if they are charting hsi weight on a breastfed baby weight gain chart - many peds offcies have weigth gain charts supplied by formula companies and are relevant for formula fed babes - I will find you a link to a breastfeeding one. I think with a CF baby you have to be very vigiilant in what you want - do you feel that he is growing and achieving as expected - is he healthy - and does he have enzymes yet? As momtana said, listen to your heart.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/index.html
">http://www.kellymom.com/babyconcerns/growth/index.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.kellymom.com/babyconcerns/growth/chart2.html">http://www.kellymom.com/babyconcerns/growth/chart2.html</a>
 
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