Shannon, I have too been where you are and you can make it work. My son had a dairy allergy up until a few months ago (he is now 3). His system went haywire whenever we had to supplement his diet. We only supplemented in the very beginning when we were recovering from being undiagnosed and when he stopped eating during RSV. They pressured me alot but he truly did better with breast milk alone (slowly but surely).
There are so many more reasons to continue than to stop breastfeeding. It is the single greatest thing you can give your child in terms of developing immune system, less chances of allergies down the road, the DHA in breastmilk is so important to CF children, and the fat is easily digestable. My site has many articles and studies if you feel you need them (and stories of mom who kept going).
Most doctors, even if they are pro-breastfeeding, don't understand how to work WITH the breastfeeding relationship. Their advice will often lead to lower milk supply and eventually interupts the natural supply and demand of breastfeeding. The advice to supplement is sometimes warranted and if baby isn't doing well very important. BUT there are ways to do it which will not interupt the breast milk supply.
How many nursings does he do right now and for how long? DO you feel your supply is healthy?
If you think you could boost your supple a bit you can try offering the breast more often and also some natural supplements to increase supply (fenugreek is a good one). Another thing to watch for is if you are introducing foods, always breastfeed first. Some moms will see a decrease in supply if they offer food earlier...it will fill them up and they end up missing a feeding thus reducing the supply. When a baby is ready for food they will eat after a feeding.
If you feel it isn't a supply thing and you feel supplementation is warranted, you could try something like this for 4-6 weeks and see what happens:
* In between his regular feeding (say about an 45 minutes to an hour after), pump some milk. Have 1 bottle ready to catch the foremilk only (milk which comes right after let down for about the first 3-5 minutes - lighter in color, more translucent). Have another ready to attach and collect only the hind milk (fatty, high calorie milk, white, more opaque). At first you won't get much because your not use to the extra stimulation. In a few days your supply will increase and you will notice a change.
* Collect all the hind milk pumpings into 2-4 ounce amounts (you may have to freeze them - I can give you resources on proper storage if you need them) and begin adding them to his regular feedings and if he is eating cereal you can make it with this as well.
* There are a few ways to offer this to him without interupting the supply and demand you already have. One is a cup or spoon after the first breast is offered. Even very small babies can sip from a small cup. The other way is using an SNS (supplemental nursing system) which connects a small tube along the breast onto the nipple. When he sucks he will get your milk and the hind milk supplement at the same time, thus doubling the hing milk per feeding. You could do this maybe 2x daily and go from there. Here is a supplier for SNS and cup feeders if you need one <a target=_blank class=ftalternatingbarlinklarge href="http://www.medela.com/NewFiles/specialtyfdg.html
">http://www.medela.com/NewFiles/specialtyfdg.html
</a>
Our son was in the 5-10th percentile in the beginning and they wanted me to stop entirely. He would take nothing other than the breast and I just knew my body could provide what he needed. He kept gaining slowly but surely and once we were able to add a bit of "souped up cereal" here and there he kept climbing. Around 6 months or so he was up to the 25th and by 1 year the 40th. When he started eating we would add a little cocnut oil or MCT to his fruits/veggies/cereals. This weight gain was all without any dairy, so it can be done. Also, a change in enzymes can sometimes help. He didn't do as well on Creon as he has on Pancreacarb (we think it is the sodium bicarbonate).
Also, probiotics can help the intestines absorb even more so you may want to try adding a non-dairy probiotic.
Please email me directly if you'd like some more ideas at jody@meta4tech.com. I am out of town this week but will reply as soon as I can. You can do this and it may just be needed for a short time. This approach will also increase you milk supply rather than decrease it.
BEst of luck and please know you are not alone!
There are so many more reasons to continue than to stop breastfeeding. It is the single greatest thing you can give your child in terms of developing immune system, less chances of allergies down the road, the DHA in breastmilk is so important to CF children, and the fat is easily digestable. My site has many articles and studies if you feel you need them (and stories of mom who kept going).
Most doctors, even if they are pro-breastfeeding, don't understand how to work WITH the breastfeeding relationship. Their advice will often lead to lower milk supply and eventually interupts the natural supply and demand of breastfeeding. The advice to supplement is sometimes warranted and if baby isn't doing well very important. BUT there are ways to do it which will not interupt the breast milk supply.
How many nursings does he do right now and for how long? DO you feel your supply is healthy?
If you think you could boost your supple a bit you can try offering the breast more often and also some natural supplements to increase supply (fenugreek is a good one). Another thing to watch for is if you are introducing foods, always breastfeed first. Some moms will see a decrease in supply if they offer food earlier...it will fill them up and they end up missing a feeding thus reducing the supply. When a baby is ready for food they will eat after a feeding.
If you feel it isn't a supply thing and you feel supplementation is warranted, you could try something like this for 4-6 weeks and see what happens:
* In between his regular feeding (say about an 45 minutes to an hour after), pump some milk. Have 1 bottle ready to catch the foremilk only (milk which comes right after let down for about the first 3-5 minutes - lighter in color, more translucent). Have another ready to attach and collect only the hind milk (fatty, high calorie milk, white, more opaque). At first you won't get much because your not use to the extra stimulation. In a few days your supply will increase and you will notice a change.
* Collect all the hind milk pumpings into 2-4 ounce amounts (you may have to freeze them - I can give you resources on proper storage if you need them) and begin adding them to his regular feedings and if he is eating cereal you can make it with this as well.
* There are a few ways to offer this to him without interupting the supply and demand you already have. One is a cup or spoon after the first breast is offered. Even very small babies can sip from a small cup. The other way is using an SNS (supplemental nursing system) which connects a small tube along the breast onto the nipple. When he sucks he will get your milk and the hind milk supplement at the same time, thus doubling the hing milk per feeding. You could do this maybe 2x daily and go from there. Here is a supplier for SNS and cup feeders if you need one <a target=_blank class=ftalternatingbarlinklarge href="http://www.medela.com/NewFiles/specialtyfdg.html
">http://www.medela.com/NewFiles/specialtyfdg.html
</a>
Our son was in the 5-10th percentile in the beginning and they wanted me to stop entirely. He would take nothing other than the breast and I just knew my body could provide what he needed. He kept gaining slowly but surely and once we were able to add a bit of "souped up cereal" here and there he kept climbing. Around 6 months or so he was up to the 25th and by 1 year the 40th. When he started eating we would add a little cocnut oil or MCT to his fruits/veggies/cereals. This weight gain was all without any dairy, so it can be done. Also, a change in enzymes can sometimes help. He didn't do as well on Creon as he has on Pancreacarb (we think it is the sodium bicarbonate).
Also, probiotics can help the intestines absorb even more so you may want to try adding a non-dairy probiotic.
Please email me directly if you'd like some more ideas at jody@meta4tech.com. I am out of town this week but will reply as soon as I can. You can do this and it may just be needed for a short time. This approach will also increase you milk supply rather than decrease it.
BEst of luck and please know you are not alone!