Bronchoscope for Alysa (3) on June 6th

Mommy2Alysa · May 30, 2008

Alysa has been having serious problems with her mucus. Her clinic doesnt know what is going on and have decided to do a bronchoscope on her (putting a camera into her lungs and then filling it with liquid and drawing it up). They think she has 'something going on' in her lower lungs that isnt being captured on her swabs.

The thought of her being put under is making me nervous. I am getting flashbacks to when she was just diagnosed and we were alone in the hospital (husband was with our stuff moving across the country) and I was with her before her PICC line was put in and seeing her "passout" onto the nurse <img src="">

Anyone else been through this? I am also worried about some of the complications (lungs bleeding from "trama")

Poor thing she was also just diagnosed with allergies to cats, dogs and ragweed. So now we have to give away our cat (which I have had for 12 years) and our puppy (who we had since Jan).. for 6 months to see if that helps if it does then they have to go forever. she is so upset over that.

Mommy2Alysa · May 30, 2008

Alysa has been having serious problems with her mucus. Her clinic doesnt know what is going on and have decided to do a bronchoscope on her (putting a camera into her lungs and then filling it with liquid and drawing it up). They think she has 'something going on' in her lower lungs that isnt being captured on her swabs.

The thought of her being put under is making me nervous. I am getting flashbacks to when she was just diagnosed and we were alone in the hospital (husband was with our stuff moving across the country) and I was with her before her PICC line was put in and seeing her "passout" onto the nurse <img src="">

Anyone else been through this? I am also worried about some of the complications (lungs bleeding from "trama")

Poor thing she was also just diagnosed with allergies to cats, dogs and ragweed. So now we have to give away our cat (which I have had for 12 years) and our puppy (who we had since Jan).. for 6 months to see if that helps if it does then they have to go forever. she is so upset over that.

Mommy2Alysa · May 30, 2008

Alysa has been having serious problems with her mucus. Her clinic doesnt know what is going on and have decided to do a bronchoscope on her (putting a camera into her lungs and then filling it with liquid and drawing it up). They think she has 'something going on' in her lower lungs that isnt being captured on her swabs.

The thought of her being put under is making me nervous. I am getting flashbacks to when she was just diagnosed and we were alone in the hospital (husband was with our stuff moving across the country) and I was with her before her PICC line was put in and seeing her "passout" onto the nurse <img src="">

Anyone else been through this? I am also worried about some of the complications (lungs bleeding from "trama")

Poor thing she was also just diagnosed with allergies to cats, dogs and ragweed. So now we have to give away our cat (which I have had for 12 years) and our puppy (who we had since Jan).. for 6 months to see if that helps if it does then they have to go forever. she is so upset over that.

Mommy2Alysa · May 30, 2008

Alysa has been having serious problems with her mucus. Her clinic doesnt know what is going on and have decided to do a bronchoscope on her (putting a camera into her lungs and then filling it with liquid and drawing it up). They think she has 'something going on' in her lower lungs that isnt being captured on her swabs.

The thought of her being put under is making me nervous. I am getting flashbacks to when she was just diagnosed and we were alone in the hospital (husband was with our stuff moving across the country) and I was with her before her PICC line was put in and seeing her "passout" onto the nurse <img src="">

Anyone else been through this? I am also worried about some of the complications (lungs bleeding from "trama")

Poor thing she was also just diagnosed with allergies to cats, dogs and ragweed. So now we have to give away our cat (which I have had for 12 years) and our puppy (who we had since Jan).. for 6 months to see if that helps if it does then they have to go forever. she is so upset over that.

Mommy2Alysa · May 30, 2008

Alysa has been having serious problems with her mucus. Her clinic doesnt know what is going on and have decided to do a bronchoscope on her (putting a camera into her lungs and then filling it with liquid and drawing it up). They think she has 'something going on' in her lower lungs that isnt being captured on her swabs.
 
 The thought of her being put under is making me nervous. I am getting flashbacks to when she was just diagnosed and we were alone in the hospital (husband was with our stuff moving across the country) and I was with her before her PICC line was put in and seeing her "passout" onto the nurse <img src="">
 
 Anyone else been through this? I am also worried about some of the complications (lungs bleeding from "trama")
 
 Poor thing she was also just diagnosed with allergies to cats, dogs and ragweed. So now we have to give away our cat (which I have had for 12 years) and our puppy (who we had since Jan).. for 6 months to see if that helps if it does then they have to go forever. she is so upset over that.

shimmereestar · May 30, 2008

I am so sorry you are having to go through this. I couldn't imagine having to give away our pets, granted they have been pretty much banned to one room since Ellie has been born. Have you thought about just keeping then in a certain part of the house and out of the bedrooms. You could also get a couple of high powered air purifiers to help control the dander. About the bronch, Ellie has had two done. One when she was about 1 and a half months old when she was first diagnosed ( to see what she was culturing and no pictures) she was down for about 10 minutes. Another when she was about 4 months old this time with pictures she was under for about 15 mintues. She has also had an endoscopy at about 4 and a half months where she was out for about 15 minutes as well. All three times we got to stay in the room until she was completely out. Then we left. The whole process took about 30 minutes, but she was only actually out for 10 and 15 minutes. After the bronchs, she streaked blood once or twice but that's it. They actually are talking about doing another in a couple of months, but our pulm. is pretty aggressive. I don't know if this helps or not but I do know how scared I was at the thought of putting her under. Good luck.

shimmereestar · May 30, 2008

I am so sorry you are having to go through this. I couldn't imagine having to give away our pets, granted they have been pretty much banned to one room since Ellie has been born. Have you thought about just keeping then in a certain part of the house and out of the bedrooms. You could also get a couple of high powered air purifiers to help control the dander. About the bronch, Ellie has had two done. One when she was about 1 and a half months old when she was first diagnosed ( to see what she was culturing and no pictures) she was down for about 10 minutes. Another when she was about 4 months old this time with pictures she was under for about 15 mintues. She has also had an endoscopy at about 4 and a half months where she was out for about 15 minutes as well. All three times we got to stay in the room until she was completely out. Then we left. The whole process took about 30 minutes, but she was only actually out for 10 and 15 minutes. After the bronchs, she streaked blood once or twice but that's it. They actually are talking about doing another in a couple of months, but our pulm. is pretty aggressive. I don't know if this helps or not but I do know how scared I was at the thought of putting her under. Good luck.

shimmereestar · May 30, 2008

I am so sorry you are having to go through this. I couldn't imagine having to give away our pets, granted they have been pretty much banned to one room since Ellie has been born. Have you thought about just keeping then in a certain part of the house and out of the bedrooms. You could also get a couple of high powered air purifiers to help control the dander. About the bronch, Ellie has had two done. One when she was about 1 and a half months old when she was first diagnosed ( to see what she was culturing and no pictures) she was down for about 10 minutes. Another when she was about 4 months old this time with pictures she was under for about 15 mintues. She has also had an endoscopy at about 4 and a half months where she was out for about 15 minutes as well. All three times we got to stay in the room until she was completely out. Then we left. The whole process took about 30 minutes, but she was only actually out for 10 and 15 minutes. After the bronchs, she streaked blood once or twice but that's it. They actually are talking about doing another in a couple of months, but our pulm. is pretty aggressive. I don't know if this helps or not but I do know how scared I was at the thought of putting her under. Good luck.

shimmereestar · May 30, 2008

I am so sorry you are having to go through this. I couldn't imagine having to give away our pets, granted they have been pretty much banned to one room since Ellie has been born. Have you thought about just keeping then in a certain part of the house and out of the bedrooms. You could also get a couple of high powered air purifiers to help control the dander. About the bronch, Ellie has had two done. One when she was about 1 and a half months old when she was first diagnosed ( to see what she was culturing and no pictures) she was down for about 10 minutes. Another when she was about 4 months old this time with pictures she was under for about 15 mintues. She has also had an endoscopy at about 4 and a half months where she was out for about 15 minutes as well. All three times we got to stay in the room until she was completely out. Then we left. The whole process took about 30 minutes, but she was only actually out for 10 and 15 minutes. After the bronchs, she streaked blood once or twice but that's it. They actually are talking about doing another in a couple of months, but our pulm. is pretty aggressive. I don't know if this helps or not but I do know how scared I was at the thought of putting her under. Good luck.

shimmereestar · May 30, 2008

I am so sorry you are having to go through this. I couldn't imagine having to give away our pets, granted they have been pretty much banned to one room since Ellie has been born. Have you thought about just keeping then in a certain part of the house and out of the bedrooms. You could also get a couple of high powered air purifiers to help control the dander. About the bronch, Ellie has had two done. One when she was about 1 and a half months old when she was first diagnosed ( to see what she was culturing and no pictures) she was down for about 10 minutes. Another when she was about 4 months old this time with pictures she was under for about 15 mintues. She has also had an endoscopy at about 4 and a half months where she was out for about 15 minutes as well. All three times we got to stay in the room until she was completely out. Then we left. The whole process took about 30 minutes, but she was only actually out for 10 and 15 minutes. After the bronchs, she streaked blood once or twice but that's it. They actually are talking about doing another in a couple of months, but our pulm. is pretty aggressive. I don't know if this helps or not but I do know how scared I was at the thought of putting her under. Good luck.

folione · May 30, 2008

My son (now 5) has had 3 bronchoscopies and no bad side effects or complaints. They cause some irritation and inflammation which results in some extra coughing for a few days afterwards. The sedation was via an IV and getting IV placed was no fun but the actual medicine and drifting to sleep did not seem to bother him much; a bit of whining / fear / clinginess on the way in but nothing but drowsiness afterwards. The sedatives include something that makes the patient not remember it.

My boy's bronch.s were for similar reasons - increasing lung junk but consistently clear cultures - but none of the bronch cultures found anything conclusive either so we've become less willing to do them. The last one we agreed to was because he'd been getting worse for 6 months and nothing seemed to be clearing it. On the plus side, the bronch does let the Dr. do a flushing out of junk and can be used to administer medicines deeply into the lungs (I think they gave some pulmozyme that way last time, but I'm not sure).

The approach we've adopted with proposals for invasive stuff is to ask the Dr. how their treatment plan will be changed by something they may or may not find. Sometimes we've ended up going with a new treatment on speculation instead of doing the test when it seemed like the test would be more risk/discomfort than just taking another medicine that may or may not work.

folione · May 30, 2008

My son (now 5) has had 3 bronchoscopies and no bad side effects or complaints. They cause some irritation and inflammation which results in some extra coughing for a few days afterwards. The sedation was via an IV and getting IV placed was no fun but the actual medicine and drifting to sleep did not seem to bother him much; a bit of whining / fear / clinginess on the way in but nothing but drowsiness afterwards. The sedatives include something that makes the patient not remember it.

My boy's bronch.s were for similar reasons - increasing lung junk but consistently clear cultures - but none of the bronch cultures found anything conclusive either so we've become less willing to do them. The last one we agreed to was because he'd been getting worse for 6 months and nothing seemed to be clearing it. On the plus side, the bronch does let the Dr. do a flushing out of junk and can be used to administer medicines deeply into the lungs (I think they gave some pulmozyme that way last time, but I'm not sure).

The approach we've adopted with proposals for invasive stuff is to ask the Dr. how their treatment plan will be changed by something they may or may not find. Sometimes we've ended up going with a new treatment on speculation instead of doing the test when it seemed like the test would be more risk/discomfort than just taking another medicine that may or may not work.

folione · May 30, 2008

My son (now 5) has had 3 bronchoscopies and no bad side effects or complaints. They cause some irritation and inflammation which results in some extra coughing for a few days afterwards. The sedation was via an IV and getting IV placed was no fun but the actual medicine and drifting to sleep did not seem to bother him much; a bit of whining / fear / clinginess on the way in but nothing but drowsiness afterwards. The sedatives include something that makes the patient not remember it.

My boy's bronch.s were for similar reasons - increasing lung junk but consistently clear cultures - but none of the bronch cultures found anything conclusive either so we've become less willing to do them. The last one we agreed to was because he'd been getting worse for 6 months and nothing seemed to be clearing it. On the plus side, the bronch does let the Dr. do a flushing out of junk and can be used to administer medicines deeply into the lungs (I think they gave some pulmozyme that way last time, but I'm not sure).

The approach we've adopted with proposals for invasive stuff is to ask the Dr. how their treatment plan will be changed by something they may or may not find. Sometimes we've ended up going with a new treatment on speculation instead of doing the test when it seemed like the test would be more risk/discomfort than just taking another medicine that may or may not work.

folione · May 30, 2008

My son (now 5) has had 3 bronchoscopies and no bad side effects or complaints. They cause some irritation and inflammation which results in some extra coughing for a few days afterwards. The sedation was via an IV and getting IV placed was no fun but the actual medicine and drifting to sleep did not seem to bother him much; a bit of whining / fear / clinginess on the way in but nothing but drowsiness afterwards. The sedatives include something that makes the patient not remember it.

My boy's bronch.s were for similar reasons - increasing lung junk but consistently clear cultures - but none of the bronch cultures found anything conclusive either so we've become less willing to do them. The last one we agreed to was because he'd been getting worse for 6 months and nothing seemed to be clearing it. On the plus side, the bronch does let the Dr. do a flushing out of junk and can be used to administer medicines deeply into the lungs (I think they gave some pulmozyme that way last time, but I'm not sure).

The approach we've adopted with proposals for invasive stuff is to ask the Dr. how their treatment plan will be changed by something they may or may not find. Sometimes we've ended up going with a new treatment on speculation instead of doing the test when it seemed like the test would be more risk/discomfort than just taking another medicine that may or may not work.

folione · May 30, 2008

My son (now 5) has had 3 bronchoscopies and no bad side effects or complaints. They cause some irritation and inflammation which results in some extra coughing for a few days afterwards. The sedation was via an IV and getting IV placed was no fun but the actual medicine and drifting to sleep did not seem to bother him much; a bit of whining / fear / clinginess on the way in but nothing but drowsiness afterwards. The sedatives include something that makes the patient not remember it.
 
 My boy's bronch.s were for similar reasons - increasing lung junk but consistently clear cultures - but none of the bronch cultures found anything conclusive either so we've become less willing to do them. The last one we agreed to was because he'd been getting worse for 6 months and nothing seemed to be clearing it. On the plus side, the bronch does let the Dr. do a flushing out of junk and can be used to administer medicines deeply into the lungs (I think they gave some pulmozyme that way last time, but I'm not sure).
 
 The approach we've adopted with proposals for invasive stuff is to ask the Dr. how their treatment plan will be changed by something they may or may not find. Sometimes we've ended up going with a new treatment on speculation instead of doing the test when it seemed like the test would be more risk/discomfort than just taking another medicine that may or may not work.

Mommy2Alysa · May 30, 2008

Thanks ladies,

It's sort of comforting to know that this is a "normal" thing but still... we have been through so much already.

Mommy2Alysa · May 30, 2008

Thanks ladies,

It's sort of comforting to know that this is a "normal" thing but still... we have been through so much already.

Mommy2Alysa · May 30, 2008

Thanks ladies,

It's sort of comforting to know that this is a "normal" thing but still... we have been through so much already.

Mommy2Alysa · May 30, 2008

Thanks ladies,

It's sort of comforting to know that this is a "normal" thing but still... we have been through so much already.

Mommy2Alysa · May 30, 2008

Thanks ladies,
 
 It's sort of comforting to know that this is a "normal" thing but still... we have been through so much already.

Bronchoscope for Alysa (3) on June 6th

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member