Celiac vs poor response to enzymes?

Andrea · Dec 14, 2009

Hey~

My son is 20 months now . At his last CF appointment he was just tested for celiac but at the same time they also ran an allergy panel in his bloodwork. We found out that he does not have celiac but he is allergic to milk. I guess sometimes when your dealing with CF you forget the other things that could be impacting weight gain. Since we found out he was allergic to milk he started on soy products. His stools have improved 100 percent and he is actually looking like he is getting bigger. And for an answer to your question... Ben was stooling 5-8 times a day runny and loose stools. Now he stools about 3 times a day, usually somewhat formed but always one is a little abnormal but it is a lot better then it was. He never had a solid stool prior to the soy milk. We also switched to different enzymes prior to the allergy panel. Creon by far is the best for Ben.

Andrea · Dec 14, 2009

Hey~

My son is 20 months now . At his last CF appointment he was just tested for celiac but at the same time they also ran an allergy panel in his bloodwork. We found out that he does not have celiac but he is allergic to milk. I guess sometimes when your dealing with CF you forget the other things that could be impacting weight gain. Since we found out he was allergic to milk he started on soy products. His stools have improved 100 percent and he is actually looking like he is getting bigger. And for an answer to your question... Ben was stooling 5-8 times a day runny and loose stools. Now he stools about 3 times a day, usually somewhat formed but always one is a little abnormal but it is a lot better then it was. He never had a solid stool prior to the soy milk. We also switched to different enzymes prior to the allergy panel. Creon by far is the best for Ben.

Andrea · Dec 14, 2009

Hey~

My son is 20 months now . At his last CF appointment he was just tested for celiac but at the same time they also ran an allergy panel in his bloodwork. We found out that he does not have celiac but he is allergic to milk. I guess sometimes when your dealing with CF you forget the other things that could be impacting weight gain. Since we found out he was allergic to milk he started on soy products. His stools have improved 100 percent and he is actually looking like he is getting bigger. And for an answer to your question... Ben was stooling 5-8 times a day runny and loose stools. Now he stools about 3 times a day, usually somewhat formed but always one is a little abnormal but it is a lot better then it was. He never had a solid stool prior to the soy milk. We also switched to different enzymes prior to the allergy panel. Creon by far is the best for Ben.

Andrea · Dec 14, 2009

Hey~

My son is 20 months now . At his last CF appointment he was just tested for celiac but at the same time they also ran an allergy panel in his bloodwork. We found out that he does not have celiac but he is allergic to milk. I guess sometimes when your dealing with CF you forget the other things that could be impacting weight gain. Since we found out he was allergic to milk he started on soy products. His stools have improved 100 percent and he is actually looking like he is getting bigger. And for an answer to your question... Ben was stooling 5-8 times a day runny and loose stools. Now he stools about 3 times a day, usually somewhat formed but always one is a little abnormal but it is a lot better then it was. He never had a solid stool prior to the soy milk. We also switched to different enzymes prior to the allergy panel. Creon by far is the best for Ben.

Andrea · Dec 14, 2009

Hey~
 
 My son is 20 months now . At his last CF appointment he was just tested for celiac but at the same time they also ran an allergy panel in his bloodwork. We found out that he does not have celiac but he is allergic to milk. I guess sometimes when your dealing with CF you forget the other things that could be impacting weight gain. Since we found out he was allergic to milk he started on soy products. His stools have improved 100 percent and he is actually looking like he is getting bigger. And for an answer to your question... Ben was stooling 5-8 times a day runny and loose stools. Now he stools about 3 times a day, usually somewhat formed but always one is a little abnormal but it is a lot better then it was. He never had a solid stool prior to the soy milk. We also switched to different enzymes prior to the allergy panel. Creon by far is the best for Ben.

hmw · Dec 14, 2009

Emily had the celiac panel done prior to her CF dx and results came back completely normal- everything was pretty much as low as it could be. There is also a gene that can be tested for to confirm a celiac dx when symptoms are there (not everyone with the gene will develop the disease but w/o it you can rule out the dx.) Some people will have both cf and celiac disease, making the malabsorption issues harder to deal with. A trial of a gluten-free diet can help you figure out if this is a culprit in what's going on with Ellie, but don't embark on this if you may be getting a celiac panel done (it can affect results of the testing, leading to a possible false-negative result.)

I agree with Andrea in also looking into allergy issues or the possibility of intolerance to certain things (different from allergies but can also cause GI problems, i.e. lactose intolerance.)

In regards to stools...

We saw a dramatic change in Emily's stools when she started Creon. She never pooped multiple times a day prior to her cf dx (meaning, more than twice) but the poops were absolutely enormous and very oily, would separate into the water, floated, etc.

Once starting Creon, she usually only went once a day and while still pretty bulky they started sinking more often and were darker in color and more formed. It took increasing them several times to achieve stools that were mostly non-greasy. The occasional really high-fat meals still resulted in some oiliness but it was more the exception, not the rule. I think we need some more adjusting now that we've introduced heavy cream and Scandishakes into her diet (very poor growth); we're now seeing two huge poops a day, a lot of gas and some stomachaches, and they are lighter in color again. I can't help in regards to different brands- Creon is all we've used.

I hope you can get to the bottom of any other potential problems you are having with Ellie. It's so good that despite the oily stools she is gaining weight. <img src="i/expressions/face-icon-small-smile.gif" border="0">

eta> No one in our family has a known celiac dx either but that hadn't seemed unusual to them when they wanted to test for it.

hmw · Dec 14, 2009

Emily had the celiac panel done prior to her CF dx and results came back completely normal- everything was pretty much as low as it could be. There is also a gene that can be tested for to confirm a celiac dx when symptoms are there (not everyone with the gene will develop the disease but w/o it you can rule out the dx.) Some people will have both cf and celiac disease, making the malabsorption issues harder to deal with. A trial of a gluten-free diet can help you figure out if this is a culprit in what's going on with Ellie, but don't embark on this if you may be getting a celiac panel done (it can affect results of the testing, leading to a possible false-negative result.)

I agree with Andrea in also looking into allergy issues or the possibility of intolerance to certain things (different from allergies but can also cause GI problems, i.e. lactose intolerance.)

In regards to stools...

We saw a dramatic change in Emily's stools when she started Creon. She never pooped multiple times a day prior to her cf dx (meaning, more than twice) but the poops were absolutely enormous and very oily, would separate into the water, floated, etc.

Once starting Creon, she usually only went once a day and while still pretty bulky they started sinking more often and were darker in color and more formed. It took increasing them several times to achieve stools that were mostly non-greasy. The occasional really high-fat meals still resulted in some oiliness but it was more the exception, not the rule. I think we need some more adjusting now that we've introduced heavy cream and Scandishakes into her diet (very poor growth); we're now seeing two huge poops a day, a lot of gas and some stomachaches, and they are lighter in color again. I can't help in regards to different brands- Creon is all we've used.

I hope you can get to the bottom of any other potential problems you are having with Ellie. It's so good that despite the oily stools she is gaining weight. <img src="i/expressions/face-icon-small-smile.gif" border="0">

eta> No one in our family has a known celiac dx either but that hadn't seemed unusual to them when they wanted to test for it.

hmw · Dec 14, 2009

Emily had the celiac panel done prior to her CF dx and results came back completely normal- everything was pretty much as low as it could be. There is also a gene that can be tested for to confirm a celiac dx when symptoms are there (not everyone with the gene will develop the disease but w/o it you can rule out the dx.) Some people will have both cf and celiac disease, making the malabsorption issues harder to deal with. A trial of a gluten-free diet can help you figure out if this is a culprit in what's going on with Ellie, but don't embark on this if you may be getting a celiac panel done (it can affect results of the testing, leading to a possible false-negative result.)

I agree with Andrea in also looking into allergy issues or the possibility of intolerance to certain things (different from allergies but can also cause GI problems, i.e. lactose intolerance.)

In regards to stools...

We saw a dramatic change in Emily's stools when she started Creon. She never pooped multiple times a day prior to her cf dx (meaning, more than twice) but the poops were absolutely enormous and very oily, would separate into the water, floated, etc.

Once starting Creon, she usually only went once a day and while still pretty bulky they started sinking more often and were darker in color and more formed. It took increasing them several times to achieve stools that were mostly non-greasy. The occasional really high-fat meals still resulted in some oiliness but it was more the exception, not the rule. I think we need some more adjusting now that we've introduced heavy cream and Scandishakes into her diet (very poor growth); we're now seeing two huge poops a day, a lot of gas and some stomachaches, and they are lighter in color again. I can't help in regards to different brands- Creon is all we've used.

I hope you can get to the bottom of any other potential problems you are having with Ellie. It's so good that despite the oily stools she is gaining weight. <img src="i/expressions/face-icon-small-smile.gif" border="0">

eta> No one in our family has a known celiac dx either but that hadn't seemed unusual to them when they wanted to test for it.

hmw · Dec 14, 2009

Emily had the celiac panel done prior to her CF dx and results came back completely normal- everything was pretty much as low as it could be. There is also a gene that can be tested for to confirm a celiac dx when symptoms are there (not everyone with the gene will develop the disease but w/o it you can rule out the dx.) Some people will have both cf and celiac disease, making the malabsorption issues harder to deal with. A trial of a gluten-free diet can help you figure out if this is a culprit in what's going on with Ellie, but don't embark on this if you may be getting a celiac panel done (it can affect results of the testing, leading to a possible false-negative result.)

I agree with Andrea in also looking into allergy issues or the possibility of intolerance to certain things (different from allergies but can also cause GI problems, i.e. lactose intolerance.)

In regards to stools...

We saw a dramatic change in Emily's stools when she started Creon. She never pooped multiple times a day prior to her cf dx (meaning, more than twice) but the poops were absolutely enormous and very oily, would separate into the water, floated, etc.

Once starting Creon, she usually only went once a day and while still pretty bulky they started sinking more often and were darker in color and more formed. It took increasing them several times to achieve stools that were mostly non-greasy. The occasional really high-fat meals still resulted in some oiliness but it was more the exception, not the rule. I think we need some more adjusting now that we've introduced heavy cream and Scandishakes into her diet (very poor growth); we're now seeing two huge poops a day, a lot of gas and some stomachaches, and they are lighter in color again. I can't help in regards to different brands- Creon is all we've used.

I hope you can get to the bottom of any other potential problems you are having with Ellie. It's so good that despite the oily stools she is gaining weight. <img src="i/expressions/face-icon-small-smile.gif" border="0">

eta> No one in our family has a known celiac dx either but that hadn't seemed unusual to them when they wanted to test for it.

hmw · Dec 14, 2009

Emily had the celiac panel done prior to her CF dx and results came back completely normal- everything was pretty much as low as it could be. There is also a gene that can be tested for to confirm a celiac dx when symptoms are there (not everyone with the gene will develop the disease but w/o it you can rule out the dx.) Some people will have both cf and celiac disease, making the malabsorption issues harder to deal with. A trial of a gluten-free diet can help you figure out if this is a culprit in what's going on with Ellie, but don't embark on this if you may be getting a celiac panel done (it can affect results of the testing, leading to a possible false-negative result.)
 
 I agree with Andrea in also looking into allergy issues or the possibility of intolerance to certain things (different from allergies but can also cause GI problems, i.e. lactose intolerance.)
 
 In regards to stools...
 
 We saw a dramatic change in Emily's stools when she started Creon. She never pooped multiple times a day prior to her cf dx (meaning, more than twice) but the poops were absolutely enormous and very oily, would separate into the water, floated, etc.
 
 Once starting Creon, she usually only went once a day and while still pretty bulky they started sinking more often and were darker in color and more formed. It took increasing them several times to achieve stools that were mostly non-greasy. The occasional really high-fat meals still resulted in some oiliness but it was more the exception, not the rule. I think we need some more adjusting now that we've introduced heavy cream and Scandishakes into her diet (very poor growth); we're now seeing two huge poops a day, a lot of gas and some stomachaches, and they are lighter in color again. I can't help in regards to different brands- Creon is all we've used.
 
 I hope you can get to the bottom of any other potential problems you are having with Ellie. It's so good that despite the oily stools she is gaining weight. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 eta> No one in our family has a known celiac dx either but that hadn't seemed unusual to them when they wanted to test for it.

Ratatosk · Dec 14, 2009

DS had issues with malabsorbing for years! He had constipation issues as a baby and it seemed if we'd tweak his enzymes by half a capsule, he'd stop stooling. His stools never did look normal. It was never a concern by our clinic because he always gained weight, was in the 50th percentile plus. But a couple years ago he started to not gain weight. His doctor switched enzymes from MT4s to MT10s and his stools looked a little better and weren't AS frequent, but in his case he had some obstructive issues from his orginal surgery that were preventing the enzymes from getting where they should be in a timely manner.

Now that he's been 'cleaned out' we've aggresively upped his enzymes and for the first time ever he's had normal, brown stools.

What we've learned is to NOT be so concerned with giving DS too many enzymes. We were being conservative and probably should have been pushing more for a solution. But we were new parents and new parents of a child wcf. So we weren't quite sure what was normal...

Ratatosk · Dec 14, 2009

DS had issues with malabsorbing for years! He had constipation issues as a baby and it seemed if we'd tweak his enzymes by half a capsule, he'd stop stooling. His stools never did look normal. It was never a concern by our clinic because he always gained weight, was in the 50th percentile plus. But a couple years ago he started to not gain weight. His doctor switched enzymes from MT4s to MT10s and his stools looked a little better and weren't AS frequent, but in his case he had some obstructive issues from his orginal surgery that were preventing the enzymes from getting where they should be in a timely manner.

Now that he's been 'cleaned out' we've aggresively upped his enzymes and for the first time ever he's had normal, brown stools.

What we've learned is to NOT be so concerned with giving DS too many enzymes. We were being conservative and probably should have been pushing more for a solution. But we were new parents and new parents of a child wcf. So we weren't quite sure what was normal...

Ratatosk · Dec 14, 2009

DS had issues with malabsorbing for years! He had constipation issues as a baby and it seemed if we'd tweak his enzymes by half a capsule, he'd stop stooling. His stools never did look normal. It was never a concern by our clinic because he always gained weight, was in the 50th percentile plus. But a couple years ago he started to not gain weight. His doctor switched enzymes from MT4s to MT10s and his stools looked a little better and weren't AS frequent, but in his case he had some obstructive issues from his orginal surgery that were preventing the enzymes from getting where they should be in a timely manner.

Now that he's been 'cleaned out' we've aggresively upped his enzymes and for the first time ever he's had normal, brown stools.

What we've learned is to NOT be so concerned with giving DS too many enzymes. We were being conservative and probably should have been pushing more for a solution. But we were new parents and new parents of a child wcf. So we weren't quite sure what was normal...

Ratatosk · Dec 14, 2009

DS had issues with malabsorbing for years! He had constipation issues as a baby and it seemed if we'd tweak his enzymes by half a capsule, he'd stop stooling. His stools never did look normal. It was never a concern by our clinic because he always gained weight, was in the 50th percentile plus. But a couple years ago he started to not gain weight. His doctor switched enzymes from MT4s to MT10s and his stools looked a little better and weren't AS frequent, but in his case he had some obstructive issues from his orginal surgery that were preventing the enzymes from getting where they should be in a timely manner.

Now that he's been 'cleaned out' we've aggresively upped his enzymes and for the first time ever he's had normal, brown stools.

What we've learned is to NOT be so concerned with giving DS too many enzymes. We were being conservative and probably should have been pushing more for a solution. But we were new parents and new parents of a child wcf. So we weren't quite sure what was normal...

Ratatosk · Dec 14, 2009

DS had issues with malabsorbing for years! He had constipation issues as a baby and it seemed if we'd tweak his enzymes by half a capsule, he'd stop stooling. His stools never did look normal. It was never a concern by our clinic because he always gained weight, was in the 50th percentile plus. But a couple years ago he started to not gain weight. His doctor switched enzymes from MT4s to MT10s and his stools looked a little better and weren't AS frequent, but in his case he had some obstructive issues from his orginal surgery that were preventing the enzymes from getting where they should be in a timely manner.
 
 Now that he's been 'cleaned out' we've aggresively upped his enzymes and for the first time ever he's had normal, brown stools.
 
 What we've learned is to NOT be so concerned with giving DS too many enzymes. We were being conservative and probably should have been pushing more for a solution. But we were new parents and new parents of a child wcf. So we weren't quite sure what was normal...

dlo2977 · Dec 15, 2009

Well, we kind of had the opposite problem with Celiac. My daughter was initially sent to a ped gastro due to the presence of oil in a few BM's. He did extensive bloodwork and ordered a sweat test. Obviously her seat test cam eback positive, so we were sent to the CF Center and kind of forgot about the gastro. Her stools completely improved on the Creon, but a couple weeks later, the gastro called and said her TTG/IgA (screening test for Celiac) was really high. She had to have endoscopy done to confirm the diagnosis. They assumed she had it based on the blood test and we even started the gluten free diet while we waited on the biopsy results. Her biopsies came back completely normal and the gastro was kind of confused. We consulted with a celiac specialist at Univeristy of Chicago who recommended we do a genetic test to check for the presence of the celiac genes. She does have 1 copy of the less common gene which gives her a less than 3% chance of ever developing Celiac in her life time. So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer. According to the celiac doc, this test is more reliable than the TTG in young children. If either is positive, i would check with your insurance to see if they would cover the genetic test. It is $400 and thru Kimball Genetics. They send the kit straight to you and all you have to do is a cheek swab. If your daughter doesn't have the genes, there is no chance of her having celiac. if she does, it doesn't mean anything as 1/3 of Americans carry the gene. You would then have to do the endoscopy. We were also told that the TTG can be inaccurate in kids under 5 and CF can throw it off (thus our daughter's false positive). I also wanted to mention that the oil you are adding to the foods may be contributing to the greasy stools. My daughter is still sensitive to oil and the one time she did get oil in her stool while on the Creon was when she had a meal with larghe amount of oil. For some reason, she does fine with other fats like cream and butter, so it may be worth a try to try butter instead of the olive oil to add fat.

dlo2977 · Dec 15, 2009

Well, we kind of had the opposite problem with Celiac. My daughter was initially sent to a ped gastro due to the presence of oil in a few BM's. He did extensive bloodwork and ordered a sweat test. Obviously her seat test cam eback positive, so we were sent to the CF Center and kind of forgot about the gastro. Her stools completely improved on the Creon, but a couple weeks later, the gastro called and said her TTG/IgA (screening test for Celiac) was really high. She had to have endoscopy done to confirm the diagnosis. They assumed she had it based on the blood test and we even started the gluten free diet while we waited on the biopsy results. Her biopsies came back completely normal and the gastro was kind of confused. We consulted with a celiac specialist at Univeristy of Chicago who recommended we do a genetic test to check for the presence of the celiac genes. She does have 1 copy of the less common gene which gives her a less than 3% chance of ever developing Celiac in her life time. So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer. According to the celiac doc, this test is more reliable than the TTG in young children. If either is positive, i would check with your insurance to see if they would cover the genetic test. It is $400 and thru Kimball Genetics. They send the kit straight to you and all you have to do is a cheek swab. If your daughter doesn't have the genes, there is no chance of her having celiac. if she does, it doesn't mean anything as 1/3 of Americans carry the gene. You would then have to do the endoscopy. We were also told that the TTG can be inaccurate in kids under 5 and CF can throw it off (thus our daughter's false positive). I also wanted to mention that the oil you are adding to the foods may be contributing to the greasy stools. My daughter is still sensitive to oil and the one time she did get oil in her stool while on the Creon was when she had a meal with larghe amount of oil. For some reason, she does fine with other fats like cream and butter, so it may be worth a try to try butter instead of the olive oil to add fat.

dlo2977 · Dec 15, 2009

Well, we kind of had the opposite problem with Celiac. My daughter was initially sent to a ped gastro due to the presence of oil in a few BM's. He did extensive bloodwork and ordered a sweat test. Obviously her seat test cam eback positive, so we were sent to the CF Center and kind of forgot about the gastro. Her stools completely improved on the Creon, but a couple weeks later, the gastro called and said her TTG/IgA (screening test for Celiac) was really high. She had to have endoscopy done to confirm the diagnosis. They assumed she had it based on the blood test and we even started the gluten free diet while we waited on the biopsy results. Her biopsies came back completely normal and the gastro was kind of confused. We consulted with a celiac specialist at Univeristy of Chicago who recommended we do a genetic test to check for the presence of the celiac genes. She does have 1 copy of the less common gene which gives her a less than 3% chance of ever developing Celiac in her life time. So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer. According to the celiac doc, this test is more reliable than the TTG in young children. If either is positive, i would check with your insurance to see if they would cover the genetic test. It is $400 and thru Kimball Genetics. They send the kit straight to you and all you have to do is a cheek swab. If your daughter doesn't have the genes, there is no chance of her having celiac. if she does, it doesn't mean anything as 1/3 of Americans carry the gene. You would then have to do the endoscopy. We were also told that the TTG can be inaccurate in kids under 5 and CF can throw it off (thus our daughter's false positive). I also wanted to mention that the oil you are adding to the foods may be contributing to the greasy stools. My daughter is still sensitive to oil and the one time she did get oil in her stool while on the Creon was when she had a meal with larghe amount of oil. For some reason, she does fine with other fats like cream and butter, so it may be worth a try to try butter instead of the olive oil to add fat.

dlo2977 · Dec 15, 2009

Well, we kind of had the opposite problem with Celiac. My daughter was initially sent to a ped gastro due to the presence of oil in a few BM's. He did extensive bloodwork and ordered a sweat test. Obviously her seat test cam eback positive, so we were sent to the CF Center and kind of forgot about the gastro. Her stools completely improved on the Creon, but a couple weeks later, the gastro called and said her TTG/IgA (screening test for Celiac) was really high. She had to have endoscopy done to confirm the diagnosis. They assumed she had it based on the blood test and we even started the gluten free diet while we waited on the biopsy results. Her biopsies came back completely normal and the gastro was kind of confused. We consulted with a celiac specialist at Univeristy of Chicago who recommended we do a genetic test to check for the presence of the celiac genes. She does have 1 copy of the less common gene which gives her a less than 3% chance of ever developing Celiac in her life time. So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer. According to the celiac doc, this test is more reliable than the TTG in young children. If either is positive, i would check with your insurance to see if they would cover the genetic test. It is $400 and thru Kimball Genetics. They send the kit straight to you and all you have to do is a cheek swab. If your daughter doesn't have the genes, there is no chance of her having celiac. if she does, it doesn't mean anything as 1/3 of Americans carry the gene. You would then have to do the endoscopy. We were also told that the TTG can be inaccurate in kids under 5 and CF can throw it off (thus our daughter's false positive). I also wanted to mention that the oil you are adding to the foods may be contributing to the greasy stools. My daughter is still sensitive to oil and the one time she did get oil in her stool while on the Creon was when she had a meal with larghe amount of oil. For some reason, she does fine with other fats like cream and butter, so it may be worth a try to try butter instead of the olive oil to add fat.

dlo2977 · Dec 15, 2009

Well, we kind of had the opposite problem with Celiac. My daughter was initially sent to a ped gastro due to the presence of oil in a few BM's. He did extensive bloodwork and ordered a sweat test. Obviously her seat test cam eback positive, so we were sent to the CF Center and kind of forgot about the gastro. Her stools completely improved on the Creon, but a couple weeks later, the gastro called and said her TTG/IgA (screening test for Celiac) was really high. She had to have endoscopy done to confirm the diagnosis. They assumed she had it based on the blood test and we even started the gluten free diet while we waited on the biopsy results. Her biopsies came back completely normal and the gastro was kind of confused. We consulted with a celiac specialist at Univeristy of Chicago who recommended we do a genetic test to check for the presence of the celiac genes. She does have 1 copy of the less common gene which gives her a less than 3% chance of ever developing Celiac in her life time. So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer. According to the celiac doc, this test is more reliable than the TTG in young children. If either is positive, i would check with your insurance to see if they would cover the genetic test. It is $400 and thru Kimball Genetics. They send the kit straight to you and all you have to do is a cheek swab. If your daughter doesn't have the genes, there is no chance of her having celiac. if she does, it doesn't mean anything as 1/3 of Americans carry the gene. You would then have to do the endoscopy. We were also told that the TTG can be inaccurate in kids under 5 and CF can throw it off (thus our daughter's false positive). I also wanted to mention that the oil you are adding to the foods may be contributing to the greasy stools. My daughter is still sensitive to oil and the one time she did get oil in her stool while on the Creon was when she had a meal with larghe amount of oil. For some reason, she does fine with other fats like cream and butter, so it may be worth a try to try butter instead of the olive oil to add fat.

Celiac vs poor response to enzymes?

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