Celiac vs poor response to enzymes?

H

hmw

New member
<div class="FTQUOTE"><begin quote>So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer</end quote></div>
I agree with this! Running the complete panel of tests will ensure much more accurate results, since young children's immune systems are not as mature and some of the tests can have a lower rate of accuracy. Emily's labs came back with a whole assortment of results and seeing a negative result for ALL of them was much more reassuring to us in knowing that this wasn't what we were dealing with (at the time, of course. Little did we know it would end up being CF.)

They also wanted to investigate potential inflammation in general through her GI tract and did ESR (sedimentation) and CRP (c-reactive protein) tests. I will be honest and say it's been a long time and can't remember the full import of those tests, but in the interest of being thorough the GI felt they were important to do along with the celiac panel because he felt problems in this area could add to the symptoms she was experiencing.

It's also true that kids will sometimes tolerate some fats better than others; some are also known to be more easily digested than others.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer</end quote></div>
I agree with this! Running the complete panel of tests will ensure much more accurate results, since young children's immune systems are not as mature and some of the tests can have a lower rate of accuracy. Emily's labs came back with a whole assortment of results and seeing a negative result for ALL of them was much more reassuring to us in knowing that this wasn't what we were dealing with (at the time, of course. Little did we know it would end up being CF.)

They also wanted to investigate potential inflammation in general through her GI tract and did ESR (sedimentation) and CRP (c-reactive protein) tests. I will be honest and say it's been a long time and can't remember the full import of those tests, but in the interest of being thorough the GI felt they were important to do along with the celiac panel because he felt problems in this area could add to the symptoms she was experiencing.

It's also true that kids will sometimes tolerate some fats better than others; some are also known to be more easily digested than others.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer</end quote></div>
I agree with this! Running the complete panel of tests will ensure much more accurate results, since young children's immune systems are not as mature and some of the tests can have a lower rate of accuracy. Emily's labs came back with a whole assortment of results and seeing a negative result for ALL of them was much more reassuring to us in knowing that this wasn't what we were dealing with (at the time, of course. Little did we know it would end up being CF.)

They also wanted to investigate potential inflammation in general through her GI tract and did ESR (sedimentation) and CRP (c-reactive protein) tests. I will be honest and say it's been a long time and can't remember the full import of those tests, but in the interest of being thorough the GI felt they were important to do along with the celiac panel because he felt problems in this area could add to the symptoms she was experiencing.

It's also true that kids will sometimes tolerate some fats better than others; some are also known to be more easily digested than others.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer</end quote>
I agree with this! Running the complete panel of tests will ensure much more accurate results, since young children's immune systems are not as mature and some of the tests can have a lower rate of accuracy. Emily's labs came back with a whole assortment of results and seeing a negative result for ALL of them was much more reassuring to us in knowing that this wasn't what we were dealing with (at the time, of course. Little did we know it would end up being CF.)

They also wanted to investigate potential inflammation in general through her GI tract and did ESR (sedimentation) and CRP (c-reactive protein) tests. I will be honest and say it's been a long time and can't remember the full import of those tests, but in the interest of being thorough the GI felt they were important to do along with the celiac panel because he felt problems in this area could add to the symptoms she was experiencing.

It's also true that kids will sometimes tolerate some fats better than others; some are also known to be more easily digested than others.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>So, if I were you, I would start with the blood tests, but make sure that in addition to the TTg, they run an anti-endomysium antibody titer</end quote>
<br />I agree with this! Running the complete panel of tests will ensure much more accurate results, since young children's immune systems are not as mature and some of the tests can have a lower rate of accuracy. Emily's labs came back with a whole assortment of results and seeing a negative result for ALL of them was much more reassuring to us in knowing that this wasn't what we were dealing with (at the time, of course. Little did we know it would end up being CF.)
<br />
<br />They also wanted to investigate potential inflammation in general through her GI tract and did ESR (sedimentation) and CRP (c-reactive protein) tests. I will be honest and say it's been a long time and can't remember the full import of those tests, but in the interest of being thorough the GI felt they were important to do along with the celiac panel because he felt problems in this area could add to the symptoms she was experiencing.
<br />
<br />It's also true that kids will sometimes tolerate some fats better than others; some are also known to be more easily digested than others.
 
T

TonyaH

Guest
Talk to your doctor about an acid reducer like prevacid or prilosec...it makes a huge difference in how greasy Andrew's stools are. I'm not sure at what age those meds can be started, but it's worth asking! Good luck!
 
T

TonyaH

Guest
Talk to your doctor about an acid reducer like prevacid or prilosec...it makes a huge difference in how greasy Andrew's stools are. I'm not sure at what age those meds can be started, but it's worth asking! Good luck!
 
T

TonyaH

Guest
Talk to your doctor about an acid reducer like prevacid or prilosec...it makes a huge difference in how greasy Andrew's stools are. I'm not sure at what age those meds can be started, but it's worth asking! Good luck!
 
T

TonyaH

Guest
Talk to your doctor about an acid reducer like prevacid or prilosec...it makes a huge difference in how greasy Andrew's stools are. I'm not sure at what age those meds can be started, but it's worth asking! Good luck!
 
T

TonyaH

Guest
Talk to your doctor about an acid reducer like prevacid or prilosec...it makes a huge difference in how greasy Andrew's stools are. I'm not sure at what age those meds can be started, but it's worth asking! Good luck!
 
G

grammakaky

New member
Hi Katie, my granddaughter who is about the same age as Ellie, was also put on Prevacid two months ago. She didn;t have acid reflex but weight issues. She is also on creon and was not absorbing her food well. They put her on the prevacid to adjust her stomach acids. We think it helped her; she is eating alot better and more now; where as eating meals was an issue. Also her stools are alot better now.
 
G

grammakaky

New member
Hi Katie, my granddaughter who is about the same age as Ellie, was also put on Prevacid two months ago. She didn;t have acid reflex but weight issues. She is also on creon and was not absorbing her food well. They put her on the prevacid to adjust her stomach acids. We think it helped her; she is eating alot better and more now; where as eating meals was an issue. Also her stools are alot better now.
 
G

grammakaky

New member
Hi Katie, my granddaughter who is about the same age as Ellie, was also put on Prevacid two months ago. She didn;t have acid reflex but weight issues. She is also on creon and was not absorbing her food well. They put her on the prevacid to adjust her stomach acids. We think it helped her; she is eating alot better and more now; where as eating meals was an issue. Also her stools are alot better now.
 
G

grammakaky

New member
Hi Katie, my granddaughter who is about the same age as Ellie, was also put on Prevacid two months ago. She didn;t have acid reflex but weight issues. She is also on creon and was not absorbing her food well. They put her on the prevacid to adjust her stomach acids. We think it helped her; she is eating alot better and more now; where as eating meals was an issue. Also her stools are alot better now.
 
G

grammakaky

New member
Hi Katie, my granddaughter who is about the same age as Ellie, was also put on Prevacid two months ago. She didn;t have acid reflex but weight issues. She is also on creon and was not absorbing her food well. They put her on the prevacid to adjust her stomach acids. We think it helped her; she is eating alot better and more now; where as eating meals was an issue. Also her stools are alot better now.
 
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