CF and Sleep Apnea??

[Sweetness81]

I am a 27 year old with cf and I was recently hospitalized here in Oregon at the Oregon Health Science University for a cf exasperation. The Cf care team noted that I didnt sleep at all day or night for the whole two weeks I was in there. They are concerned that I might have sleep apnea. But when I went to see a sleep specialist and explained that I wake up choking for air, and have breathing problems at night, he gave me a sleep log for a month. I filled it out and went back.

I explained that constantly getting up every fifteen minutes because I couldnt fall asleep wasnt helping me. He said that I just needed to change my sleeping habits and if I dont fall asleep in fifteen minutes while laying in bed that I should get up and go do something else until I get sleepy again. Problem is that I end up being up for days on end.

If I lay in bed in the dark for about two hours or so I eventually just pass out from exhaustion or from suffering from too much pain in my system. The sleep specialist simply said that I had insomnia and didnt do any sleep study or anything. I still have my tonsils and I am afraid that I might have sleep apnea. Im sticking with what my cf care team told me. They are very concerned with this matter. I am getting frustrated by not being able to sleep at night. And when I do get some sleep, I wake up feeling more exhausted than I felt when I finally fell asleep. Can anyone please help me?? I welcome any suggestions and advice!!!

Thanks!

 

[Sweetness81]

I am a 27 year old with cf and I was recently hospitalized here in Oregon at the Oregon Health Science University for a cf exasperation. The Cf care team noted that I didnt sleep at all day or night for the whole two weeks I was in there. They are concerned that I might have sleep apnea. But when I went to see a sleep specialist and explained that I wake up choking for air, and have breathing problems at night, he gave me a sleep log for a month. I filled it out and went back.

I explained that constantly getting up every fifteen minutes because I couldnt fall asleep wasnt helping me. He said that I just needed to change my sleeping habits and if I dont fall asleep in fifteen minutes while laying in bed that I should get up and go do something else until I get sleepy again. Problem is that I end up being up for days on end.

If I lay in bed in the dark for about two hours or so I eventually just pass out from exhaustion or from suffering from too much pain in my system. The sleep specialist simply said that I had insomnia and didnt do any sleep study or anything. I still have my tonsils and I am afraid that I might have sleep apnea. Im sticking with what my cf care team told me. They are very concerned with this matter. I am getting frustrated by not being able to sleep at night. And when I do get some sleep, I wake up feeling more exhausted than I felt when I finally fell asleep. Can anyone please help me?? I welcome any suggestions and advice!!!

Thanks!

 

[Sweetness81]

I am a 27 year old with cf and I was recently hospitalized here in Oregon at the Oregon Health Science University for a cf exasperation. The Cf care team noted that I didnt sleep at all day or night for the whole two weeks I was in there. They are concerned that I might have sleep apnea. But when I went to see a sleep specialist and explained that I wake up choking for air, and have breathing problems at night, he gave me a sleep log for a month. I filled it out and went back.

I explained that constantly getting up every fifteen minutes because I couldnt fall asleep wasnt helping me. He said that I just needed to change my sleeping habits and if I dont fall asleep in fifteen minutes while laying in bed that I should get up and go do something else until I get sleepy again. Problem is that I end up being up for days on end.

If I lay in bed in the dark for about two hours or so I eventually just pass out from exhaustion or from suffering from too much pain in my system. The sleep specialist simply said that I had insomnia and didnt do any sleep study or anything. I still have my tonsils and I am afraid that I might have sleep apnea. Im sticking with what my cf care team told me. They are very concerned with this matter. I am getting frustrated by not being able to sleep at night. And when I do get some sleep, I wake up feeling more exhausted than I felt when I finally fell asleep. Can anyone please help me?? I welcome any suggestions and advice!!!

Thanks!

 

[Sweetness81]

I am a 27 year old with cf and I was recently hospitalized here in Oregon at the Oregon Health Science University for a cf exasperation. The Cf care team noted that I didnt sleep at all day or night for the whole two weeks I was in there. They are concerned that I might have sleep apnea. But when I went to see a sleep specialist and explained that I wake up choking for air, and have breathing problems at night, he gave me a sleep log for a month. I filled it out and went back.

I explained that constantly getting up every fifteen minutes because I couldnt fall asleep wasnt helping me. He said that I just needed to change my sleeping habits and if I dont fall asleep in fifteen minutes while laying in bed that I should get up and go do something else until I get sleepy again. Problem is that I end up being up for days on end.

If I lay in bed in the dark for about two hours or so I eventually just pass out from exhaustion or from suffering from too much pain in my system. The sleep specialist simply said that I had insomnia and didnt do any sleep study or anything. I still have my tonsils and I am afraid that I might have sleep apnea. Im sticking with what my cf care team told me. They are very concerned with this matter. I am getting frustrated by not being able to sleep at night. And when I do get some sleep, I wake up feeling more exhausted than I felt when I finally fell asleep. Can anyone please help me?? I welcome any suggestions and advice!!!

Thanks!

 

[Sweetness81]

I am a 27 year old with cf and I was recently hospitalized here in Oregon at the Oregon Health Science University for a cf exasperation. The Cf care team noted that I didnt sleep at all day or night for the whole two weeks I was in there. They are concerned that I might have sleep apnea. But when I went to see a sleep specialist and explained that I wake up choking for air, and have breathing problems at night, he gave me a sleep log for a month. I filled it out and went back.
<br />
<br /> I explained that constantly getting up every fifteen minutes because I couldnt fall asleep wasnt helping me. He said that I just needed to change my sleeping habits and if I dont fall asleep in fifteen minutes while laying in bed that I should get up and go do something else until I get sleepy again. Problem is that I end up being up for days on end.
<br />
<br /> If I lay in bed in the dark for about two hours or so I eventually just pass out from exhaustion or from suffering from too much pain in my system. The sleep specialist simply said that I had insomnia and didnt do any sleep study or anything. I still have my tonsils and I am afraid that I might have sleep apnea. Im sticking with what my cf care team told me. They are very concerned with this matter. I am getting frustrated by not being able to sleep at night. And when I do get some sleep, I wake up feeling more exhausted than I felt when I finally fell asleep. Can anyone please help me?? I welcome any suggestions and advice!!!
<br />
<br />Thanks!

 

[Shaunessy]

Do you use oxygen at night? Maybe you're waking up because your oxygen levels are dropping too low.
For Jake, the oxygen rental company did an at-home study where they measured his oxygen saturation levels for one night. He stayed below 90% most of the time, which can really affect your quality of sleep. Based on those results, insurance covers our concentrator rental and he feels more rested in the morning.

 

[Shaunessy]

Do you use oxygen at night? Maybe you're waking up because your oxygen levels are dropping too low.
For Jake, the oxygen rental company did an at-home study where they measured his oxygen saturation levels for one night. He stayed below 90% most of the time, which can really affect your quality of sleep. Based on those results, insurance covers our concentrator rental and he feels more rested in the morning.

 

[Shaunessy]

Do you use oxygen at night? Maybe you're waking up because your oxygen levels are dropping too low.
For Jake, the oxygen rental company did an at-home study where they measured his oxygen saturation levels for one night. He stayed below 90% most of the time, which can really affect your quality of sleep. Based on those results, insurance covers our concentrator rental and he feels more rested in the morning.

 

[Shaunessy]

Do you use oxygen at night? Maybe you're waking up because your oxygen levels are dropping too low.
For Jake, the oxygen rental company did an at-home study where they measured his oxygen saturation levels for one night. He stayed below 90% most of the time, which can really affect your quality of sleep. Based on those results, insurance covers our concentrator rental and he feels more rested in the morning.

 

[Shaunessy]

Do you use oxygen at night? Maybe you're waking up because your oxygen levels are dropping too low.
<br />For Jake, the oxygen rental company did an at-home study where they measured his oxygen saturation levels for one night. He stayed below 90% most of the time, which can really affect your quality of sleep. Based on those results, insurance covers our concentrator rental and he feels more rested in the morning.

 

[mabusincarnate]

the doc gave me a script for ambien. i dont take it often but sometimes the insomnia is unbearable.

 

[mabusincarnate]

the doc gave me a script for ambien. i dont take it often but sometimes the insomnia is unbearable.

 

[mabusincarnate]

the doc gave me a script for ambien. i dont take it often but sometimes the insomnia is unbearable.

 

[mabusincarnate]

the doc gave me a script for ambien. i dont take it often but sometimes the insomnia is unbearable.

 

[mabusincarnate]

the doc gave me a script for ambien. i dont take it often but sometimes the insomnia is unbearable.

 

[Diane]

I was thinking oxygen while sleeping may help also . Not sleeping can make you feel horrible and can affect your cf in a negative way. I've had times where i keep waking up at night and in the morning and the rest of the day i feel more tired then when i went to sleep the night before....so i know the exhaustion you are talking about. I can't understand why they havent done an actual sleep study....certainly sounds like you may have sleep apnea.

 

[Diane]

I was thinking oxygen while sleeping may help also . Not sleeping can make you feel horrible and can affect your cf in a negative way. I've had times where i keep waking up at night and in the morning and the rest of the day i feel more tired then when i went to sleep the night before....so i know the exhaustion you are talking about. I can't understand why they havent done an actual sleep study....certainly sounds like you may have sleep apnea.

 

[Diane]

I was thinking oxygen while sleeping may help also . Not sleeping can make you feel horrible and can affect your cf in a negative way. I've had times where i keep waking up at night and in the morning and the rest of the day i feel more tired then when i went to sleep the night before....so i know the exhaustion you are talking about. I can't understand why they havent done an actual sleep study....certainly sounds like you may have sleep apnea.

 

[Diane]

I was thinking oxygen while sleeping may help also . Not sleeping can make you feel horrible and can affect your cf in a negative way. I've had times where i keep waking up at night and in the morning and the rest of the day i feel more tired then when i went to sleep the night before....so i know the exhaustion you are talking about. I can't understand why they havent done an actual sleep study....certainly sounds like you may have sleep apnea.

 

[Diane]

I was thinking oxygen while sleeping may help also . Not sleeping can make you feel horrible and can affect your cf in a negative way. I've had times where i keep waking up at night and in the morning and the rest of the day i feel more tired then when i went to sleep the night before....so i know the exhaustion you are talking about. I can't understand why they havent done an actual sleep study....certainly sounds like you may have sleep apnea.