cf is merciful

L

littledebbie

New member
I have wanted to wait a while before responding to this so that I would not just write an "emotional" response.

While I completely disagree with the sentiment that CF is a merciful disease/disability whatever you want to say. Sometimes I meet someone and it hits me that life has not singled me out to pick on and I don't own the market on suffering. At times like that I can feel a little ashamed of myself and I suddenly feel more generous about my health. I think it's possible this post was born of a moment like this.
 
L

littledebbie

New member
I have wanted to wait a while before responding to this so that I would not just write an "emotional" response.

While I completely disagree with the sentiment that CF is a merciful disease/disability whatever you want to say. Sometimes I meet someone and it hits me that life has not singled me out to pick on and I don't own the market on suffering. At times like that I can feel a little ashamed of myself and I suddenly feel more generous about my health. I think it's possible this post was born of a moment like this.
 
E

EnergyGal

New member
I think it is only natural to wonder what life would be like in another setting and as humans we tend to make comparisons. I learned long ago that comparing myself to others, brought me sadness, frustration and false hope. Accepting and loving oneself, is where I choose to be.
 
E

EnergyGal

New member
I think it is only natural to wonder what life would be like in another setting and as humans we tend to make comparisons. I learned long ago that comparing myself to others, brought me sadness, frustration and false hope. Accepting and loving oneself, is where I choose to be.
 
E

EnergyGal

New member
I think it is only natural to wonder what life would be like in another setting and as humans we tend to make comparisons. I learned long ago that comparing myself to others, brought me sadness, frustration and false hope. Accepting and loving oneself, is where I choose to be.
 
6

65rosessamurai

Guest
Not only do I respect Rami's perspective, I can also understand it very well. However, everyone else who has shown thier side of this newfound debate has also shown their feeling about it.

Perhaps, littledebbie may be accurate in keying in as to why Rami had made his comment. I can certainly see his side as to how the deterioration seems to give time to some who may know the end is near, yet, in Allies perspective, it's just a nasty disease that will shorten anyone's life.

However, I still like Jenn's perspective about how everyone measures such a thing, based on thier own experiences, and she shared her feelings, experience and such about it as well.

Among all the problems associated with CF, one in particular I don't like is how it can seem invisible for some of those who are applying for medical aide, but are rejected because "they don't seem sick". On the contrary, there are those CF'rs who can look and function, even blend in with those without CF, and get comments like "gosh, you don't look sick".

Yep, it's all in perspective of those who have it, those who have been around those who have it, and how it affects everyone's life.

I personally have mixed feelings; for example, before, when I found out I couldn't have children (at least the natural way, i'm still not sure now), I thought I'd rather be bald and ugly, being able to have children, than being what I am now, and not being able to have children. (Of course this was what I thought before I found this site, but not what I'm thinking now.)

To me, Rami's point about CF being 'merciful' doesn't seem to have any real answer, just good insight.
 
6

65rosessamurai

Guest
Not only do I respect Rami's perspective, I can also understand it very well. However, everyone else who has shown thier side of this newfound debate has also shown their feeling about it.

Perhaps, littledebbie may be accurate in keying in as to why Rami had made his comment. I can certainly see his side as to how the deterioration seems to give time to some who may know the end is near, yet, in Allies perspective, it's just a nasty disease that will shorten anyone's life.

However, I still like Jenn's perspective about how everyone measures such a thing, based on thier own experiences, and she shared her feelings, experience and such about it as well.

Among all the problems associated with CF, one in particular I don't like is how it can seem invisible for some of those who are applying for medical aide, but are rejected because "they don't seem sick". On the contrary, there are those CF'rs who can look and function, even blend in with those without CF, and get comments like "gosh, you don't look sick".

Yep, it's all in perspective of those who have it, those who have been around those who have it, and how it affects everyone's life.

I personally have mixed feelings; for example, before, when I found out I couldn't have children (at least the natural way, i'm still not sure now), I thought I'd rather be bald and ugly, being able to have children, than being what I am now, and not being able to have children. (Of course this was what I thought before I found this site, but not what I'm thinking now.)

To me, Rami's point about CF being 'merciful' doesn't seem to have any real answer, just good insight.
 
6

65rosessamurai

Guest
Not only do I respect Rami's perspective, I can also understand it very well. However, everyone else who has shown thier side of this newfound debate has also shown their feeling about it.

Perhaps, littledebbie may be accurate in keying in as to why Rami had made his comment. I can certainly see his side as to how the deterioration seems to give time to some who may know the end is near, yet, in Allies perspective, it's just a nasty disease that will shorten anyone's life.

However, I still like Jenn's perspective about how everyone measures such a thing, based on thier own experiences, and she shared her feelings, experience and such about it as well.

Among all the problems associated with CF, one in particular I don't like is how it can seem invisible for some of those who are applying for medical aide, but are rejected because "they don't seem sick". On the contrary, there are those CF'rs who can look and function, even blend in with those without CF, and get comments like "gosh, you don't look sick".

Yep, it's all in perspective of those who have it, those who have been around those who have it, and how it affects everyone's life.

I personally have mixed feelings; for example, before, when I found out I couldn't have children (at least the natural way, i'm still not sure now), I thought I'd rather be bald and ugly, being able to have children, than being what I am now, and not being able to have children. (Of course this was what I thought before I found this site, but not what I'm thinking now.)

To me, Rami's point about CF being 'merciful' doesn't seem to have any real answer, just good insight.
 
C

christyisnutz

Guest
Lynda, I am in total agreement with you.. but all of the rest of you bring up very good points too!!

Jenn, I miss you girl and saw those same pics recently too. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Call me soon.. let's catch up. The gang kinda broke up and I miss everyone so terribly.

Love you and hope to chat soon!! I would love a visit in NC. Let me know.
 
C

christyisnutz

Guest
Lynda, I am in total agreement with you.. but all of the rest of you bring up very good points too!!

Jenn, I miss you girl and saw those same pics recently too. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Call me soon.. let's catch up. The gang kinda broke up and I miss everyone so terribly.

Love you and hope to chat soon!! I would love a visit in NC. Let me know.
 
C

christyisnutz

Guest
Lynda, I am in total agreement with you.. but all of the rest of you bring up very good points too!!

Jenn, I miss you girl and saw those same pics recently too. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Call me soon.. let's catch up. The gang kinda broke up and I miss everyone so terribly.

Love you and hope to chat soon!! I would love a visit in NC. Let me know.
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LGMClark1</b></i>

Hey, you never know, I can get hit by a bus on my way home..that will be it" or .</end quote></div>

The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.

I'm so sick of people using the bus accident analogy. It's utterly ludicrous for many reasons, not the least of which is that it paints bus drivers in a bad light.

YES, life can be good IN SPITE of CF. I know that first-hand. However, I believe that the ability to cope with CF is something that is born not out of my experiences with CF. Every one of us falls into one of two categories. The "haves" and the "have nots" when it comes to coping skills.

There are plenty of people who have experienced heartache after heartache and are still strong in character/faith/spirit/resolve etc. There are equally as many people who, when presented with the same set of trying circumstances are little more than petty whiners with the "woe is me" attitude.

What then can we conclude? Is it the experiences that make a person stronger somehow? Hardly. I believe it is something else entirely. Strip a person of all their experiences and what remains is the soul. The soul is not physical, therefore it can hardly be tempered by physical things.

I argue that some people's souls must be, for no apparent reason, resilient. A person's soul is the essence of his or her being, not the external circumstances. That is what enables each of us to cope (or in some cases wallow) in the midst of the pain of CF.
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LGMClark1</b></i>

Hey, you never know, I can get hit by a bus on my way home..that will be it" or .</end quote></div>

The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.

I'm so sick of people using the bus accident analogy. It's utterly ludicrous for many reasons, not the least of which is that it paints bus drivers in a bad light.

YES, life can be good IN SPITE of CF. I know that first-hand. However, I believe that the ability to cope with CF is something that is born not out of my experiences with CF. Every one of us falls into one of two categories. The "haves" and the "have nots" when it comes to coping skills.

There are plenty of people who have experienced heartache after heartache and are still strong in character/faith/spirit/resolve etc. There are equally as many people who, when presented with the same set of trying circumstances are little more than petty whiners with the "woe is me" attitude.

What then can we conclude? Is it the experiences that make a person stronger somehow? Hardly. I believe it is something else entirely. Strip a person of all their experiences and what remains is the soul. The soul is not physical, therefore it can hardly be tempered by physical things.

I argue that some people's souls must be, for no apparent reason, resilient. A person's soul is the essence of his or her being, not the external circumstances. That is what enables each of us to cope (or in some cases wallow) in the midst of the pain of CF.
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LGMClark1</b></i>

Hey, you never know, I can get hit by a bus on my way home..that will be it" or .</end quote></div>

The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.

I'm so sick of people using the bus accident analogy. It's utterly ludicrous for many reasons, not the least of which is that it paints bus drivers in a bad light.

YES, life can be good IN SPITE of CF. I know that first-hand. However, I believe that the ability to cope with CF is something that is born not out of my experiences with CF. Every one of us falls into one of two categories. The "haves" and the "have nots" when it comes to coping skills.

There are plenty of people who have experienced heartache after heartache and are still strong in character/faith/spirit/resolve etc. There are equally as many people who, when presented with the same set of trying circumstances are little more than petty whiners with the "woe is me" attitude.

What then can we conclude? Is it the experiences that make a person stronger somehow? Hardly. I believe it is something else entirely. Strip a person of all their experiences and what remains is the soul. The soul is not physical, therefore it can hardly be tempered by physical things.

I argue that some people's souls must be, for no apparent reason, resilient. A person's soul is the essence of his or her being, not the external circumstances. That is what enables each of us to cope (or in some cases wallow) in the midst of the pain of CF.
 
I

ihatecf

New member
LightNlife I like the question you raised. It gives me the insight to open another topic. I hope this thread didnt offend anyone. It was just my pt of view. I respect all your answers. At the end i wanted your perspectives and Im glad you wrote them.
 
I

ihatecf

New member
LightNlife I like the question you raised. It gives me the insight to open another topic. I hope this thread didnt offend anyone. It was just my pt of view. I respect all your answers. At the end i wanted your perspectives and Im glad you wrote them.
 
I

ihatecf

New member
LightNlife I like the question you raised. It gives me the insight to open another topic. I hope this thread didnt offend anyone. It was just my pt of view. I respect all your answers. At the end i wanted your perspectives and Im glad you wrote them.
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>
It gives me the insight to open another topic.</end quote></div>

Just make sure you don't slip on all those worms that will come wriggling out of that can! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>
It gives me the insight to open another topic.</end quote></div>

Just make sure you don't slip on all those worms that will come wriggling out of that can! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>
It gives me the insight to open another topic.</end quote></div>

Just make sure you don't slip on all those worms that will come wriggling out of that can! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
You must log in or register to reply here.
Top