CF survivor guilt

[BigBee]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote></div>


A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!

One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.

Glad you are back actively posting.

 

[BigBee]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote></div>


A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!

One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.

Glad you are back actively posting.

 

[BigBee]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote>


A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!

One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.

Glad you are back actively posting.

 

[BigBee]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote>


A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!

One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.

Glad you are back actively posting.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BigBee</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote></div>





A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!



One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.



Glad you are back actively posting.</end quote></div>


I would be lying if I said I only went by the birth and death date and didn't use Google to qualify me saying what I said. I thought I had the date right without googe, but I wanted to make sure <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think I would have agreed with your dad. If I was 67 and it was either a transplant or not, and I knew I had a VERY long life with this disease, and there were craploads of young cycstics that needed the potential lungs I might be gettings, I would also not pursue the lung transplant.

At a certain point most people realize it's better for them to throw in the towel and say give a 22 year old the chance at a fresh new life, than say a 50 year old. I'm sure many will argue my point, but that is how I feel. I'm now 36. and if my lungs continue to degrade at some type of predictive level, when i'm 50+ and have the option of going on the transplant list, I would say no. I already lived a fun decent life. Let a young cf have the chance of making to where I made it.

We *ALL* gotta die. Try not to forget that. If you make it to 70 or 37 is pointless. What is very important is that you make it to whatever age you make it to with a very full, wise life. In the end, to me, the biggest most important thing is not holding on for another 1-5 years, it's realize "Hey this is it, im checking out" and letting someone else go forward with many more years to try and do something with their life, in some way.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BigBee</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote></div>





A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!



One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.



Glad you are back actively posting.</end quote></div>


I would be lying if I said I only went by the birth and death date and didn't use Google to qualify me saying what I said. I thought I had the date right without googe, but I wanted to make sure <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think I would have agreed with your dad. If I was 67 and it was either a transplant or not, and I knew I had a VERY long life with this disease, and there were craploads of young cycstics that needed the potential lungs I might be gettings, I would also not pursue the lung transplant.

At a certain point most people realize it's better for them to throw in the towel and say give a 22 year old the chance at a fresh new life, than say a 50 year old. I'm sure many will argue my point, but that is how I feel. I'm now 36. and if my lungs continue to degrade at some type of predictive level, when i'm 50+ and have the option of going on the transplant list, I would say no. I already lived a fun decent life. Let a young cf have the chance of making to where I made it.

We *ALL* gotta die. Try not to forget that. If you make it to 70 or 37 is pointless. What is very important is that you make it to whatever age you make it to with a very full, wise life. In the end, to me, the biggest most important thing is not holding on for another 1-5 years, it's realize "Hey this is it, im checking out" and letting someone else go forward with many more years to try and do something with their life, in some way.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BigBee</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote></div>





A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!



One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.



Glad you are back actively posting.</end quote></div>


I would be lying if I said I only went by the birth and death date and didn't use Google to qualify me saying what I said. I thought I had the date right without googe, but I wanted to make sure <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think I would have agreed with your dad. If I was 67 and it was either a transplant or not, and I knew I had a VERY long life with this disease, and there were craploads of young cycstics that needed the potential lungs I might be gettings, I would also not pursue the lung transplant.

At a certain point most people realize it's better for them to throw in the towel and say give a 22 year old the chance at a fresh new life, than say a 50 year old. I'm sure many will argue my point, but that is how I feel. I'm now 36. and if my lungs continue to degrade at some type of predictive level, when i'm 50+ and have the option of going on the transplant list, I would say no. I already lived a fun decent life. Let a young cf have the chance of making to where I made it.

We *ALL* gotta die. Try not to forget that. If you make it to 70 or 37 is pointless. What is very important is that you make it to whatever age you make it to with a very full, wise life. In the end, to me, the biggest most important thing is not holding on for another 1-5 years, it's realize "Hey this is it, im checking out" and letting someone else go forward with many more years to try and do something with their life, in some way.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BigBee</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote></div>





A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!



One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.



Glad you are back actively posting.</end quote></div>


I would be lying if I said I only went by the birth and death date and didn't use Google to qualify me saying what I said. I thought I had the date right without googe, but I wanted to make sure <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think I would have agreed with your dad. If I was 67 and it was either a transplant or not, and I knew I had a VERY long life with this disease, and there were craploads of young cycstics that needed the potential lungs I might be gettings, I would also not pursue the lung transplant.

At a certain point most people realize it's better for them to throw in the towel and say give a 22 year old the chance at a fresh new life, than say a 50 year old. I'm sure many will argue my point, but that is how I feel. I'm now 36. and if my lungs continue to degrade at some type of predictive level, when i'm 50+ and have the option of going on the transplant list, I would say no. I already lived a fun decent life. Let a young cf have the chance of making to where I made it.

We *ALL* gotta die. Try not to forget that. If you make it to 70 or 37 is pointless. What is very important is that you make it to whatever age you make it to with a very full, wise life. In the end, to me, the biggest most important thing is not holding on for another 1-5 years, it's realize "Hey this is it, im checking out" and letting someone else go forward with many more years to try and do something with their life, in some way.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BigBee</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote>





A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!



One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.



Glad you are back actively posting.</end quote>


I would be lying if I said I only went by the birth and death date and didn't use Google to qualify me saying what I said. I thought I had the date right without googe, but I wanted to make sure <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think I would have agreed with your dad. If I was 67 and it was either a transplant or not, and I knew I had a VERY long life with this disease, and there were craploads of young cycstics that needed the potential lungs I might be gettings, I would also not pursue the lung transplant.

At a certain point most people realize it's better for them to throw in the towel and say give a 22 year old the chance at a fresh new life, than say a 50 year old. I'm sure many will argue my point, but that is how I feel. I'm now 36. and if my lungs continue to degrade at some type of predictive level, when i'm 50+ and have the option of going on the transplant list, I would say no. I already lived a fun decent life. Let a young cf have the chance of making to where I made it.

We *ALL* gotta die. Try not to forget that. If you make it to 70 or 37 is pointless. What is very important is that you make it to whatever age you make it to with a very full, wise life. In the end, to me, the biggest most important thing is not holding on for another 1-5 years, it's realize "Hey this is it, im checking out" and letting someone else go forward with many more years to try and do something with their life, in some way.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BigBee</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



@bigbee: Holy crap. Maybe my math is off, but your dad lived to be 68 with CF!?!?</end quote>





A+ in Math! You're math is right on the money - he was 68 years and one month old. He was damn proud of that too!



One of the reasons he didn't want a tx was that lungs were scarce and he felt the younger cf'ers should have a shot at them. He did struggle with the guilt of a "long" life in CF years. I struggle with the guilt here of being luckier than the average family member of a cf'er. All in all, this disease sucks. The only thing I can do to combat the helplessness I feel is to volunteer for our local CFF gala, it's not much, but it's something.



Glad you are back actively posting.</end quote>


I would be lying if I said I only went by the birth and death date and didn't use Google to qualify me saying what I said. I thought I had the date right without googe, but I wanted to make sure <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think I would have agreed with your dad. If I was 67 and it was either a transplant or not, and I knew I had a VERY long life with this disease, and there were craploads of young cycstics that needed the potential lungs I might be gettings, I would also not pursue the lung transplant.

At a certain point most people realize it's better for them to throw in the towel and say give a 22 year old the chance at a fresh new life, than say a 50 year old. I'm sure many will argue my point, but that is how I feel. I'm now 36. and if my lungs continue to degrade at some type of predictive level, when i'm 50+ and have the option of going on the transplant list, I would say no. I already lived a fun decent life. Let a young cf have the chance of making to where I made it.

We *ALL* gotta die. Try not to forget that. If you make it to 70 or 37 is pointless. What is very important is that you make it to whatever age you make it to with a very full, wise life. In the end, to me, the biggest most important thing is not holding on for another 1-5 years, it's realize "Hey this is it, im checking out" and letting someone else go forward with many more years to try and do something with their life, in some way.

 

[JennifersHope]

I have surviviors guilt very badly.... I deal with it on a regular basis... Since being dx with CF, almost 5 years ago, four of my closest CF friends died... my first experience with a close CF was a 17 year old girl that I adopted in my heart, her name was Kira and she was full of spunk, after she died.. I kept thinking how young she was and how much she just wanted to experience a lot of things in life that I already had...

I knew a few other CFers that died in between but the next closest one was John, he will be gone a year now on August 10th, if anyone deserved to live it was him, and not me, he was the most faithful person I know to his treatments and to enjoying life to the fullest, he was my inspiration for life for the past few years, I would to this day, and was just thinking about it on my drive home, trade places with him in one instant.. He was just better at living life then I am...

Then came my friend Dave three months later, he was another good friend of mine, I was not as close to him as John by a long shot, John was in my inner most circle, but Dave was someone I talked to several times a week and he was already setteled in life.... had a wife and two beautiful kids.. I never felt to trade places with him, but I felt guilty and wished I could share my better lungs with him

two months Later.. RIch died.. Rich and John were my closest CF friends.. I talked to RIch all the time on the phone, computer etc and he always knew when I was BSing him about how "fine" I was..

When he died, after losing John, I wished so bad I could bring them back, and I would go for them....

I look at little kids like Garren and Reece. who are so sick at such a young age and I feel stupid thinking I have the same disease as them.. and wish again that I could take it from them... I pray for Max Lisa's son and wish I could make him never have a booger nose again...

So the answer to you question is yes, I am filled with guilt, but I try so hard to force myself to remember what they taught me about life.. especially John and Rich.. and they taught me to enjoy life now, because I won't always be able to... so that is what I try to do..

 

[JennifersHope]

I have surviviors guilt very badly.... I deal with it on a regular basis... Since being dx with CF, almost 5 years ago, four of my closest CF friends died... my first experience with a close CF was a 17 year old girl that I adopted in my heart, her name was Kira and she was full of spunk, after she died.. I kept thinking how young she was and how much she just wanted to experience a lot of things in life that I already had...

I knew a few other CFers that died in between but the next closest one was John, he will be gone a year now on August 10th, if anyone deserved to live it was him, and not me, he was the most faithful person I know to his treatments and to enjoying life to the fullest, he was my inspiration for life for the past few years, I would to this day, and was just thinking about it on my drive home, trade places with him in one instant.. He was just better at living life then I am...

Then came my friend Dave three months later, he was another good friend of mine, I was not as close to him as John by a long shot, John was in my inner most circle, but Dave was someone I talked to several times a week and he was already setteled in life.... had a wife and two beautiful kids.. I never felt to trade places with him, but I felt guilty and wished I could share my better lungs with him

two months Later.. RIch died.. Rich and John were my closest CF friends.. I talked to RIch all the time on the phone, computer etc and he always knew when I was BSing him about how "fine" I was..

When he died, after losing John, I wished so bad I could bring them back, and I would go for them....

I look at little kids like Garren and Reece. who are so sick at such a young age and I feel stupid thinking I have the same disease as them.. and wish again that I could take it from them... I pray for Max Lisa's son and wish I could make him never have a booger nose again...

So the answer to you question is yes, I am filled with guilt, but I try so hard to force myself to remember what they taught me about life.. especially John and Rich.. and they taught me to enjoy life now, because I won't always be able to... so that is what I try to do..

 

[JennifersHope]

I have surviviors guilt very badly.... I deal with it on a regular basis... Since being dx with CF, almost 5 years ago, four of my closest CF friends died... my first experience with a close CF was a 17 year old girl that I adopted in my heart, her name was Kira and she was full of spunk, after she died.. I kept thinking how young she was and how much she just wanted to experience a lot of things in life that I already had...

I knew a few other CFers that died in between but the next closest one was John, he will be gone a year now on August 10th, if anyone deserved to live it was him, and not me, he was the most faithful person I know to his treatments and to enjoying life to the fullest, he was my inspiration for life for the past few years, I would to this day, and was just thinking about it on my drive home, trade places with him in one instant.. He was just better at living life then I am...

Then came my friend Dave three months later, he was another good friend of mine, I was not as close to him as John by a long shot, John was in my inner most circle, but Dave was someone I talked to several times a week and he was already setteled in life.... had a wife and two beautiful kids.. I never felt to trade places with him, but I felt guilty and wished I could share my better lungs with him

two months Later.. RIch died.. Rich and John were my closest CF friends.. I talked to RIch all the time on the phone, computer etc and he always knew when I was BSing him about how "fine" I was..

When he died, after losing John, I wished so bad I could bring them back, and I would go for them....

I look at little kids like Garren and Reece. who are so sick at such a young age and I feel stupid thinking I have the same disease as them.. and wish again that I could take it from them... I pray for Max Lisa's son and wish I could make him never have a booger nose again...

So the answer to you question is yes, I am filled with guilt, but I try so hard to force myself to remember what they taught me about life.. especially John and Rich.. and they taught me to enjoy life now, because I won't always be able to... so that is what I try to do..

 

[JennifersHope]

I have surviviors guilt very badly.... I deal with it on a regular basis... Since being dx with CF, almost 5 years ago, four of my closest CF friends died... my first experience with a close CF was a 17 year old girl that I adopted in my heart, her name was Kira and she was full of spunk, after she died.. I kept thinking how young she was and how much she just wanted to experience a lot of things in life that I already had...

I knew a few other CFers that died in between but the next closest one was John, he will be gone a year now on August 10th, if anyone deserved to live it was him, and not me, he was the most faithful person I know to his treatments and to enjoying life to the fullest, he was my inspiration for life for the past few years, I would to this day, and was just thinking about it on my drive home, trade places with him in one instant.. He was just better at living life then I am...

Then came my friend Dave three months later, he was another good friend of mine, I was not as close to him as John by a long shot, John was in my inner most circle, but Dave was someone I talked to several times a week and he was already setteled in life.... had a wife and two beautiful kids.. I never felt to trade places with him, but I felt guilty and wished I could share my better lungs with him

two months Later.. RIch died.. Rich and John were my closest CF friends.. I talked to RIch all the time on the phone, computer etc and he always knew when I was BSing him about how "fine" I was..

When he died, after losing John, I wished so bad I could bring them back, and I would go for them....

I look at little kids like Garren and Reece. who are so sick at such a young age and I feel stupid thinking I have the same disease as them.. and wish again that I could take it from them... I pray for Max Lisa's son and wish I could make him never have a booger nose again...

So the answer to you question is yes, I am filled with guilt, but I try so hard to force myself to remember what they taught me about life.. especially John and Rich.. and they taught me to enjoy life now, because I won't always be able to... so that is what I try to do..

 

[JennifersHope]

I have surviviors guilt very badly.... I deal with it on a regular basis... Since being dx with CF, almost 5 years ago, four of my closest CF friends died... my first experience with a close CF was a 17 year old girl that I adopted in my heart, her name was Kira and she was full of spunk, after she died.. I kept thinking how young she was and how much she just wanted to experience a lot of things in life that I already had...

I knew a few other CFers that died in between but the next closest one was John, he will be gone a year now on August 10th, if anyone deserved to live it was him, and not me, he was the most faithful person I know to his treatments and to enjoying life to the fullest, he was my inspiration for life for the past few years, I would to this day, and was just thinking about it on my drive home, trade places with him in one instant.. He was just better at living life then I am...

Then came my friend Dave three months later, he was another good friend of mine, I was not as close to him as John by a long shot, John was in my inner most circle, but Dave was someone I talked to several times a week and he was already setteled in life.... had a wife and two beautiful kids.. I never felt to trade places with him, but I felt guilty and wished I could share my better lungs with him

two months Later.. RIch died.. Rich and John were my closest CF friends.. I talked to RIch all the time on the phone, computer etc and he always knew when I was BSing him about how "fine" I was..

When he died, after losing John, I wished so bad I could bring them back, and I would go for them....

I look at little kids like Garren and Reece. who are so sick at such a young age and I feel stupid thinking I have the same disease as them.. and wish again that I could take it from them... I pray for Max Lisa's son and wish I could make him never have a booger nose again...

So the answer to you question is yes, I am filled with guilt, but I try so hard to force myself to remember what they taught me about life.. especially John and Rich.. and they taught me to enjoy life now, because I won't always be able to... so that is what I try to do..

 

[JennifersHope]

I have surviviors guilt very badly.... I deal with it on a regular basis... Since being dx with CF, almost 5 years ago, four of my closest CF friends died... my first experience with a close CF was a 17 year old girl that I adopted in my heart, her name was Kira and she was full of spunk, after she died.. I kept thinking how young she was and how much she just wanted to experience a lot of things in life that I already had...

I knew a few other CFers that died in between but the next closest one was John, he will be gone a year now on August 10th, if anyone deserved to live it was him, and not me, he was the most faithful person I know to his treatments and to enjoying life to the fullest, he was my inspiration for life for the past few years, I would to this day, and was just thinking about it on my drive home, trade places with him in one instant.. He was just better at living life then I am...

Then came my friend Dave three months later, he was another good friend of mine, I was not as close to him as John by a long shot, John was in my inner most circle, but Dave was someone I talked to several times a week and he was already setteled in life.... had a wife and two beautiful kids.. I never felt to trade places with him, but I felt guilty and wished I could share my better lungs with him

two months Later.. RIch died.. Rich and John were my closest CF friends.. I talked to RIch all the time on the phone, computer etc and he always knew when I was BSing him about how "fine" I was..

When he died, after losing John, I wished so bad I could bring them back, and I would go for them....

I look at little kids like Garren and Reece. who are so sick at such a young age and I feel stupid thinking I have the same disease as them.. and wish again that I could take it from them... I pray for Max Lisa's son and wish I could make him never have a booger nose again...

So the answer to you question is yes, I am filled with guilt, but I try so hard to force myself to remember what they taught me about life.. especially John and Rich.. and they taught me to enjoy life now, because I won't always be able to... so that is what I try to do..

 

[abnormal]

This is my first post... I'm 31 and have CF and two weeks I lost my youngest sister to CF. She was 22, she just graduated from college and had alot going for her. That's when I discovered "survivor guilt".

I have a fairly "mild" case of CF while my sister had it much worse, so I already was feeling some guilt prior to her death. It's not easy losing anyone you love but to lose sibling with the same disease as you is pretty hard. It really sucks but I know that she isn't suffering any more and she was able to die happy surrounded by people she loved...

I'm trying to cope with her loss the best I can and every has been a challenge. She was strong, smart and brave. She never gave up. CF may have taken her body but not her spirit! I hope some good can come from her passing as she donated her body to science.

 

[abnormal]

This is my first post... I'm 31 and have CF and two weeks I lost my youngest sister to CF. She was 22, she just graduated from college and had alot going for her. That's when I discovered "survivor guilt".

I have a fairly "mild" case of CF while my sister had it much worse, so I already was feeling some guilt prior to her death. It's not easy losing anyone you love but to lose sibling with the same disease as you is pretty hard. It really sucks but I know that she isn't suffering any more and she was able to die happy surrounded by people she loved...

I'm trying to cope with her loss the best I can and every has been a challenge. She was strong, smart and brave. She never gave up. CF may have taken her body but not her spirit! I hope some good can come from her passing as she donated her body to science.

 

[abnormal]

This is my first post... I'm 31 and have CF and two weeks I lost my youngest sister to CF. She was 22, she just graduated from college and had alot going for her. That's when I discovered "survivor guilt".

I have a fairly "mild" case of CF while my sister had it much worse, so I already was feeling some guilt prior to her death. It's not easy losing anyone you love but to lose sibling with the same disease as you is pretty hard. It really sucks but I know that she isn't suffering any more and she was able to die happy surrounded by people she loved...

I'm trying to cope with her loss the best I can and every has been a challenge. She was strong, smart and brave. She never gave up. CF may have taken her body but not her spirit! I hope some good can come from her passing as she donated her body to science.

 

[abnormal]

This is my first post... I'm 31 and have CF and two weeks I lost my youngest sister to CF. She was 22, she just graduated from college and had alot going for her. That's when I discovered "survivor guilt".

I have a fairly "mild" case of CF while my sister had it much worse, so I already was feeling some guilt prior to her death. It's not easy losing anyone you love but to lose sibling with the same disease as you is pretty hard. It really sucks but I know that she isn't suffering any more and she was able to die happy surrounded by people she loved...

I'm trying to cope with her loss the best I can and every has been a challenge. She was strong, smart and brave. She never gave up. CF may have taken her body but not her spirit! I hope some good can come from her passing as she donated her body to science.